Sorry to ask such a negative question, but in reading some threads on here about Dr. recommendations it seems few people are saying they are getting much better. My sister has late stage Lyme disease plus degenerative disc disease. We are looking to get her to Dr. H in NY but now I'm skeptical about how much better we can really hope for.
So, has anyone on this forum had severe Lyme and is now close to normal as a result of going through one of these extensive treatments?
Posted by sixgoofykids (Member # 11141) on :
I was about 15% of normal when I started treatment with Dr. H.
Now, I've been up to 98% of normal on a good day, and on a bad day I'm still functional though I need more rest.
I have been in treatment for a little over a year, so expect to even get better from here. I have had Lyme untreated for 34 years.
Posted by hokie (Member # 14720) on :
My dad is a different person after treatment. Plays golf again, works full time, enjoys life.
Many people stop posting here once they are completely (or close to completely) symptom free.
There is a link here somewhere to "success stories." Leave "medical questions" and you should find it.
Posted by mojo (Member # 9309) on :
I don't think this is a negative question - I think it's a question that we all have early in our treatment.
I am fortunate to know some folks who are in complete remission and have been for years. That is a huge comfort. And I was blessed to meet them early in my treatment.
I have been in treatment for almost 2 1/2 years - but I now know that I've been infected for most of my life so this DD is deeply embedded in my body. I consider myself to be 75% better and in the home stretch.
It can take a while but after time (everyone is different) you will noticed that your bad days are less frequent and not as severe. Then you'll just feel better and better - but with setbacks along the way.
To ensure a speedier recovery it's important to have a healthy diet, rest when you need to (listen to your body), no smoking or alcohol and excersize to your ability (even if that means walking around the couch). Another important thing is to detox. Warm detox baths, saunas (especially infra red saunas), detox supplements and drink a lot of purified water.
I learned most of this information from Lyme Boards like this one and from my Lyme Dr. We are truly blessed to have boards like this.
Posted by lymeinhell (Member # 4622) on :
I did!!
I've been off antibiotics more than 3 1/2 years now. I continue to eat right, GET MY SLEEP, exercise and detox.
I live a normal life, with a few added extras. I work 8-10 hours a day with a 1 hour each way commute. I have a high pressure career that requires me to crunch numbers all day and I am thriving.
I went undiagnosed/treated for more than a decade. I feel better now than I have in 15 years.
I still take TOA Free Cat's claw, Flexeril, a beta blocker to keep my pulse in the normal zone(2 tries to get me off have not gone well), and periodic treatment with Diflucan. I continue on my vitamin regimen and Theralac and biweekly IM shots of magnesium. I use the podi patches about 5 days each month and use a trampoline and body wraps also for detox.
Just wanted others to know that it can be done - people do get well and even stick around here (just maybe don't stick our 2 cents in often enough). Posted by silvermoon (Member # 15072) on :
Thanks for all the positive info, I think it is really helpful when you don't know what's ahead!
Posted by Larkspur (Member # 5131) on :
I was about 90% better (lyme undiagnosed for 30 some years) but for me I went off of treatment too early and have now found myself in a nasty lyme relapse
But..I am back on aggressive treatment now, so theoretically I can get back to where I was.
that's what I keep telling myself anyway.
Posted by AZURE WISH (Member # 804) on :
have you looked at the sucess stories.... here is the link
Hope and hang in there Posted by tickssuck (Member # 15388) on :
Thanks for this post - something I needed to read this AM. I am only 2.5 months into tx after 4 years of no diagnosis (I guess not too long compared to many). I am often discouraged when I read the board, but appreciate the information and support provided here.
I agree, I think many who get well stop reading and/or posting as they are busy living their lives. I hope your sister pursues the LLMD and reads the success stories...there is hope! Thank God, there is hope for wellness!
Posted by dbourne (Member # 13833) on :
I will be the first one to admit that on my good days I do not post. I am loving life and enjoying my new found body, mind, and spirit. It is the days where I feel desperate and frustrated that I come back to the board like a lost friend.
I began treatment 5 months ago and had complete numbness on the left side of my body including my skull. I had lost memory ability, speech ability, etc... Today, I feel 90% better.
Please know and remember that it does take time. More for some. But progress no matter how small is still progress.
I will be one to make an effort to keep posting even on those glorious days. I remember how desperate I felt in those first few weeks and cannot thank this board enough for the help I received.
Please say a prayer for my 2 year old. I sent off her Igenx test yesterday. I should know something in a few weeks.
Posted by Lymetoo (Member # 743) on :
Read my story below.
(PS to dbourne.. prayer said!)
Posted by CherylSue (Member # 13077) on :
![[Big Grin]](biggrin.gif)
![[group hug]](graemlins/grouphug.gif)