LymeNet Flash: Questions for those who take b12 shots

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Posted by kitkat32 (Member # 9682) on :

Hello,

I searched b12 shots on the board and I see that others do take them.

I have a few questions for anyone who uses them.

My b12 is not low on my lab results. Do others who take them have low b12? I would like to try it if it would increase my energy.

Does your b12 have to be low to feel some energizing effects from it?

Also, I read somewhere that you shouldn't take B supplements while on Biaxin. I can't find where I read that though. Does anyone know if there is any truth to that.

Thanks...from the land of fatigue..Kit [sleepy]

Posted by kitkat32 (Member # 9682) on :

Thanks Carol,

I did the liquid sublingaul and I didn't notice a difference. That is why I why to try the shots.

Is your b12 low on your labs?

Thanks, kit

Posted by Mommy*of*3 (Member # 11688) on :

Well I just got a B12 shot today and don't feel even the least bit better. How quickly is it supposed to help, if its going to?

But I'm seriously sleep deprived due to taking care of 4 small children. Not sure how much of my fatigue is lyme related and how much is sleep deprivation.

Posted by Lymetoo (Member # 743) on :

I think in one of the discussions on B-12 someone posted that a test showing a high level of B-12 could indicate that the body is trying to hold onto it.

I THINK that's what I read. It interested me because I had a test show high about 6 yrs ago... and an adequate level right before I began the B-12 shots 2 yrs ago.

They helped me tremendously!

Posted by kitkat32 (Member # 9682) on :

Thanks. I think that maybe I will try them.

I already have them. There is a family doctor in my area who is trying to educate himself on Lyme.

He believes that he has it too and one of his current patients..who happens to work with my husband.

I spoke in great detail with him about it a few weeks ago. He has been trying to treat himself but hasn't had any success. I told him he wasn't taking enough abx. He wrote down all the info I gave him and I also provided him with pamphlets from the LDA. He will be attending the meeting at CT university this Saturday.

He also just sent his Lyme testing with all co-infections to Igenex. He had my husband friend do the same.

Anyway, I mentioned to him that I would like to take B12 and see if it could possibly help. He wrote me a script for it.

I am sorry that he is dealing with Lyme himself, but sometimes that is what it takes to open a doctors eyes about this disease.

He invited me to attend the conference with him, even pay my way. I had to decline though. I don't think I am up for traveling.

Thanks again for the B12 info.

kit

Posted by hshbmom (Member # 9478) on :

Does your B12 injection burn?

Posted by kitkat32 (Member # 9682) on :

I haven't taken it yet..so I don't know if it burns.

I thought I would bump this up so maybe someone can answer that for you.

I might get the courage tomorrow to do it. If I do I will let you know if it burns.

kit

Posted by daise (Member # 13622) on :

Hi kitkat,

If you are low in B12, then getting shots can be expected to give you energy. The pills and tablets--even sublinguals--don't work as they are not absorbed.

If you are not low in B12 then shots can be used to help heal neuro damage.

Cobalamin B12 costs about $5.00 from your local pharmacist and provides about 10 shots.

However, methyl B12 is thought to be far superior as it comes in a form ready for your body to use, whereas your body has to turn cobalamin into methyl.

Methyl prices vary. Call around. I got mine from College Pharmacy in Colorado Springs for--I think--$68.00. That included shipping to another state. It was enough for one shot 7 days a week for 30 days.

I did two bottles over three months. I was also doing machine weight-lifting, doing glorious stretch dancing in a warm pool, getting acupuncture and on high dose, multiple antibiotics. In my mind, my total program helped me with some of my neuro problems.

Yes--the methyl is better! Dr. B mentions it at: www.ILADS.org, on the left menu click "Treatment Guidelines," and you'll see Dr. B's 33 pages of tips for 2008.

It's essential information for lymies. Look for the supplement section for methyl B12 information.

Methyl must be compounded and not all compounding pharmacies do methyl. If it contains a certain type of preservative compounding, some are allergic to it and the results are scary.

Mine did not have that special preservative.

I got a B12 shot right after I took biaxin. No problems.

daise [Smile]

Posted by cottonbrain (Member # 13769) on :

I've done B12 sub-q injexns for about ten years. They do increase my energy ever so very slightly on the day of injection.

I've done two different kinds--the kind that burns and the more benign kind -- Cheney the CFS expert recommends the burning kind. I really never could tell a difference and went back to the regular compounded kind that did not hurt.

(one is hydroxycobalimine and the other i can't remember, sorry. help, anybody?)

Recently I switched from the injections to Perque B12 sublinguals, six a day. I believe i get a tad more energy from the sublinguals than i did from the injections.

the Perque costs more than the injections, but it is a lot less hassle and you don't have to prick yourself. My LLMD sells them below retail -- cheaper than i could find them on the web, thank goodness.