I HAVE HAD LYME OR SOME KIND OF DISEASE SINCE 1990 I HAVE DONE ANTI BIOTICS I HAVE BEEN TO ITALY , MEXICO, FLORIDA FOR TREATMENT I HAVE SEEN SOME OF BEST DOCTORS MY SPECT SCANS HAVE BEEN BAD MY FRYE SAID I HAD BARTONELLA , I JUST GOT POSITIVE BABS TEST FROM IGENIX I HAVE BEEN ON BACTRIM MEPRON ZITH PLAQUNIL FOR 3 WEEKS BUT HAVE BEEN ON ANTIBIOTICS FOR YEARS I TRIED COWDEN BUT NOTHING SEEMS TO HELP. MY SYMPTOMS ARE EXTREME NECK CRACKING AND PAIN AND HEADACHES BETWEEN BRIDGE OF NOSE WHICH RADIATE TO AROUND EYES. I ALSO FEEL BLURIED VISION IN RIGHT EYE. I TRIED SOME CIPRO A FEW WEEKS AGO AND FELT TERRIBLE BUT LIKE I SAID I AM JUST STUCK PLEASE ANY OPIOIONS ON THESE SYMPTOMS WOULD HELP .IN 1992 I DID IV ROCHEPERIN AND WAS GREAT FOR 1.5 YEARS TRIED IN 1996 IT DID NOT WORK I JUSTCANT GET MORE THEN A DAY HERE AND THER OF FEELING SOMEWHAT NORMAL
Posted by AZURE WISH (Member # 804) on :
I can share my expereince with you but this is just my expereince/opinion as a lyme patient...
I think my babs has kept me from getting well. 3 weeks of treating babs didnt begin to touch the babs for me.
and babs herxes have been much worse than the lyme ones.
here is a post by fuzzyslippers on babs and bart symptoms.
Bartonella/Babesia Symptom Questionnaires FuzzySlippers Frequent Contributor Member # 13658
posted 24 January, 2008 04:13 PM -------------------------------------------------------------------------------- Got these from an LLMD. Thought they might be helpful to some.
Bartonellosis
Common symptoms of bartonellosis include:
___Fatigue (often with agitation, unlike Lyme disease, which is more exhaustion)
___Low grade fevers, especially morning and/or late afternoon, often associated with feelings of "coming down with the flu or a virus"
___Sweats, often morning or late afternoon (sometimes at night) - often described as "thick" or "sticky" in nature
___Headaches, especially frontal (often confused with sinus) or on top of head
___Eye symptoms including episodes of blurred vision, red eyes, dry eyes
___Ringing in the ears (tinnitus) and sometimes hearing problems (decreased or even increased sensitivity - so-called hyperacusis)
___Sore throats (recurring)
___Swollen glands, especially neck and under arms
___Anxiety and worry attacks; others perceive as "very anxious"
___Episodes of confusion and disorientation that are usually transient (and very scary); often can be seizure-like in nature
___Joint pain and stiffness (often both Left and Right sides as opposed to Lyme which is often on one side only with pain and stiffness that changes locations)
___Muscle pains especially the calves; may be twitching and cramping also
___Foot pain, more in the morning involving the heels or soles of the feet (sometimes misdiagnosed as plantar fasciitis)
___Nerve irritation symptoms which can be described as burning, vibrating, numb, shooting, etc.
___Tremors and/or muscle twitching
___Heart palpitations and strange chest pains
___Episodes of breathlessness
___Strange rashes recurring on the body often, red stretch marks, and peculiar tender lumps and nodules along the sides of the legs or arms, spider veins
___Gastrointestinal symptoms, abdominal pain and acid reflux
___Shin bone pain and tenderness
Bartonella is a bacterium that causes illness, the most commonly known of which is a disease called "Cat Scratch Fever." Thousands of known cases of Bartonella occur in the U.S. each Year, with the vast majority of known cases due to bites from fleas that infest cats or infected dogs (may also occur directly from bites and scratches from infected dogs or cats). Bartonella can also be transmitted by ticks that transmit Lyme Disease. In fact, in a study published recently, deer ticks from New Jersey had a higher prevalence of Bartonella organisms than of Lyme organisms.
It is unclear whether the organism that we see transmitted along with Lyme disease is actually a Bartonella species (such as B. henselae or B. quintana) or is "Bartonella-Like Organism" (BLO) that is yet to be fully identified. While BLO has features similar to organisms in the Bartonella family, it also has features slimiar to the Mycoplasma and the Francisella (causes tularemia) families.
_________________
Babesiosis
As with other co-infections, there is a lot of overlap of symptoms between Lyme disease and Babesiosis. An accumulation of the following signs and symptoms probably warrant testing and/or treatment of Babesiosis:
___Chills
___Fatigue and often excessive sleepiness
___High fever at onset of illness
___Night sweats that are often drenching and profuse
___Severe muscle pains, especially the large muscles of the legs (quads, buttocks, etc.)
___Neurological symptoms often described as "dizzy, tipsy, and spaciness," similar to a sensation of "floating" or "walking off the top of a mountain onto a cloud"
___Depression
___Episodes of breathlessness, "air hunger", and/or cough
___Decreased appetite and/or nausea
___Spleen and/or liver enlargement
___Abnormal labs (low white blood count, low platelet counts, mild elevation of liver enzymes, and elevated sed rate)
___Headaches (migraine-like, persistent, and especially involving the back of the head and upper neck areas)
___Joint pain (more common with Lyme and Bartonella)
___anxiety/panic (more common with Bartonella)
___Lymph gland swelling (more common with Bartonella and Lyme)
Posted by Lymetoo (Member # 743) on :
Hi Louis! I'm sorry you're still suffering even after all the abx you've taken and the doctors you've seen.
I agree with Azure that babs treatment can take a long time. You need to stay with it for as many months or years as it takes to get well.
I hate to ask you this, but would you please not post in CAPITALS? It's very hard to read and most here consider it to be like SHOUTING.
Thanks! We'll all appreciate that!
Do you have a good LLMD right now??
Posted by louis2 (Member # 9238) on :
THANKYOU FOR RESPONDING BUT I SEEM TO HAVE MORE
BART SYMPTOMS BY THAT LIST SUCH AS SINUS HEADACHES BRAIN FOG I HAVE NO WEIGHT LOSS NO SWEATING BUT I DO HAVE ENLARGED LIVER AND SPLEEN SO HOW DO YOU TREAT BOTH DISEASES AT THE SAME TIME I AM SO DISCOURAGED.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Lymetoo: I hate to ask you this, but would you please not post in CAPITALS?
Do you have a good LLMD right now??
Some LLMD's give meds for both at the same time. Others rotate the meds.
Posted by bettyg (Member # 6147) on :
tutu,
i also sent a pm to louis asking the same to convert all caps to lower using his software program and then to break it all up so we can comprehend/read it...
i'm scrolling on by for now since i can't read it.
if he ever converts to lower case and breaks it up, let me know, then i'll come back and read it. thanks tutu.
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