I have been on a CAP protocol since 9/2006. I was diagnosed with MS in 1996. I was off all abx 3 weeks before I had this Igenex test. Any comments on test results would be appreciated. I just got my results back and here they are:
IGG Result: **31 kDa IND **39 kDa IND **41 kDa + 66 kDa +
IGM Result **23-25 kDa IND 30 kDa + **31 kDa IND **39 kDa IND **41 kDa ++
All other bands negative and report states negative for lyme
Posted by disturbedme (Member # 12346) on :
I'd say that's lyme.
I'm not a doctor, but that's my opinion.
Posted by Lymetoo (Member # 743) on :
"In my clinical experience, if a patient has symptoms suspicious for borreliosis, and has one or more of the following bands, there is a very high probability the patient has borreliosis.
These bands are 18, 22, 23-25, 28, 30, 31, 34, 37, 39, 41, 83, and 93."
This is true regardless of whether it is IgG or IgM.. But again, there is no universal agreement on the significance of these bands."
==================
IN 2005, HE SAID THIS ABOUT THE BANDS:
"The significant antibodies, in my opinion, are the 18, 23-25, 28, 30, 31, 34, 39, 58, 66 and 93."
YOUR bands are in bold.
Posted by bunnyfluff (Member # 14117) on :
Welcome to our little club!!
Looks like Lyme to me!!!
It is *supposed* to be a clinical Dx based on symptoms, with the tests just as a follow-up sort of thing. But each + thingy or IND counts as 10% (+) of the chances of Lyme, in basic terms.
Certain bands are ONLY from Lyme. You've got some winners!!
Bunny
Posted by WIGGY (Member # 15377) on :
Thanks for your feedback. I have my first appointment with a LLMD in June - I got the Igenex done for a starting point. I was hoping I would have a positive report even though its not a good diagnosis. I just hope to get some relief of MS symptoms. I also feel I need another opinion. My MD has written off Lyme disease based on this negative report. Another reason I was hoping for a positive to get her buy in.
Posted by Lymetoo (Member # 743) on :
Print out a copy of Dr C's explanation!!! Take it to her! She needs an education!
Posted by timaca (Member # 6911) on :
And by Cpn. See www.cpnhelp.org (you can also google search "Dr. Stratton, MS, Cpn" and get articles.
You should be tested for HHV-6 and Cpn at Focus Diagnostics lab in CA before concluding that lyme is the cause of your problems. HHV-6, lyme and Cpn cause the same symptoms.
Best, Timaca
Posted by WIGGY (Member # 15377) on :
Thanks Timaca, I am a regular at cpnhelp - I have been exposed to cpn and on Wheldon protocol. I am checking to see what else I may have. I do not think I have been tested for HH6. I'll ask LLMD if he will run the bloodwork.