Was just reading Dr. C in Mo thoughts on vasculitis and that perhaps 90% of those with Borreliosis might have this condition.
I have VERY much wondered about my own 'neuropathic' pain sx's and IF they might actually be related to vasculitis? I suspect this based on sx improvement while moving and generating increased circulation...btw, I am a young person (late 30s) and everyone says, 'you don't have circ. problems', and YES, I do NOT of the larger veins and my pulse CAN be felt in ankle etc, however it's the tiny capillaries that are first affected by vasculitis, thus affecting sensory nerve function, dermal/hair nutrition etc. Again, as many as 90% with Borreliosis (Lyme) are thought to have this problem, so I really think this is important for many of us...
Anyone here ever used Heparin therapy for vasculitis? It is claimed to have a high success rate! Can be injected or given in a troche (lozenge). Any idea of what this costs? I know of one other on this board who is doing this, any others?
All very intriguing...seems heparin is not just for IV line maintenance after all?
Take Care, MBB3 Posted by Lymetoo (Member # 743) on :
Dr C uses heparin therapy a lot for hypercoagulation. Are you talking about that, or vasculitis? or are they the same thing?
PS.. Yes, you can get it in an injectible form or in troches. I took both (not at the same time) over a period of several years.
Now I take serrapeptase.
Posted by ByronSBell 2007 (Member # 11496) on :
I am using IV heparin for my treatment but not alone.
I conjuct it with very high dose ABX, Antioxidants, Bio-feedback, Glutathione, and detox regimes, and of course a mountain of supplements.
It is very effective in treating vasculitus in which you are right, most all lyme patients have it. After one week on IV heparin I am already seeing signs of better circultion and more clear brain function/vision.
Posted by tailz (Member # 10014) on :
I can visibly see my clogged blood vessels over the left side of my chest and down my left arm.
I find it hard to believe that they didn't teach doctors in medical school what vasculitis can look like from the outside, because all doctors wanted to do with me was to blame the one-sided network of blue blood vessels that were visible over my chest on my two-sided thinness.
Posted by chamade (Member # 11472) on :
My LLMD is having me do a hemex blood coagulation test before heparin. He said he doesn't use it in his practice like some other LLMDs. Well if nothing else there are systemic enzymes you can take that have a similar effect.
Would heparin be useful even if the hemex blood coagulation test comes back normal? I am asking since us lymies know the value of blood tests - mostly good for wiping...
Posted by Rianna (Member # 11038) on :
I am on Heparin Sub Cut Heparin injections twice a day and have been for 18 months and have Platelets and APTT measured every month - I keep my blood as thin as these tests allow so I take the APTT to the top of ref range.
I saw some improvement but in my case it was only when I added Trental that I really felt a difference as this opens up capillaries and helps blood flow in the legs - it is also necessary for total antibiotic penetration.
Rianna
Posted by bettyg (Member # 6147) on :
....to all on heparin,
please look for GIGI'S post .... bad meds, etc .... read this and WEEP!
heparin is specifically mentioned in here.
SPECIAL CARE EVERYONE; i don't want to lose any of you to this dangerous drug !!
Posted by swedish lyme sufferer (Member # 14579) on :
Aspirin is also a good blood thinner, my LLMD wants me to take aspirin every day for this purpose. Anyone here using that?
Posted by ByronSBell 2007 (Member # 11496) on :
quote:Originally posted by swedish lyme sufferer: Aspirin is also a good blood thinner, my LLMD wants me to take aspirin every day for this purpose. Anyone here using that?
Aspirin does nothing for hypercoagulation. It does not reduce the fibrin.
Posted by ByronSBell 2007 (Member # 11496) on :
quote:Originally posted by bettyg: ....to all on heparin,
please look for GIGI'S post .... bad meds, etc .... read this and WEEP!
heparin is specifically mentioned in here.
SPECIAL CARE EVERYONE; i don't want to lose any of you to this dangerous drug !!
Show me.
Posted by Raymond (Member # 13980) on :
I had a PTT test come in at 25. Is this hypercoagulation?Think norm is 60-80 no? Thanks
Posted by Rianna (Member # 11038) on :
quote:Originally posted by bettyg: please look for GIGI'S post .... bad meds, etc .... read this and WEEP! SPECIAL CARE EVERYONE; i don't want to lose any of you to this dangerous drug !!
Show me. [/QB][/QUOTE]
HEPARIN IS VERY SAFE AS LONG AS YOU GET AN APTT AND PLATELET RUN EVERY MONTH - IT IS NOT ONLY USED FOR HYPERCOAGULATION IT ALSO HAS ANTIVIRAL AND ANTI CANCER PROPERTIES - IT AS A STAND ALONE DRUG **TOTALLY** SWITCHED MY HUSBANDS AGRESSIVE PROSTATE CANCER OFF
SO AGAIN AS WITH ANY DRUG AS LONG AS YOU GET THE CORRECT MONTHLY BLOODS RUN IT IS SAFE
Rianna
Posted by Rianna (Member # 11038) on :
quote:Originally posted by Raymond: I had a PTT test come in at 25. Is this hypercoagulation?Think norm is 60-80 no? Thanks
NO - you will need a full Coag screen done, Hemex labs specialise in these - www.hemex.com
Rianna
Posted by Raymond (Member # 13980) on :
What about a hematologist for a full screening?
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Raymond: What about a hematologist for a full screening?
You could, if you want to spend the money.
I think the only danger in heparin is if you're not being tested regularly.....
and the fact that China was putting CR** in the heparin it was manufacturing. That's a bad thing! It killed some people because of the contamination, not the blood-thinning.
Aspirin, won't fix hypercoagulation .. and watch out for your STOMACH!!!
Posted by slappy2779 (Member # 12193) on :
I was getting heprain shots when I was in rehab, it actually didnt' work for me. I ended up getting a blood clot in my leg that traveled to my lungs and I ended up having a siezure. *shrugs*
IV would probably have been better but, y'know the mantra "Your 28 yrs. old you shouldn't be having these problems"
I think the best thing is those boots. I got lucky, found one at a garage sale and the lady gave it to me for free.
Posted by Blackstone (Member # 9453) on :
I believe that Lovenox (low molecular-weight heparin) is safe from the Chinese contamination. I could be incorrect, but in all of my research I've only seen "normal" heparin mentioned. Lovenox may be a fine alternative.
Posted by Raymond (Member # 13980) on :
slappy - what boots are you talking about? Thanks
Posted by slappy2779 (Member # 12193) on :
the ones that fill with air, they massage your feet and legs by applying pressure then releasing to get blood and fluids flowing. They're for people with leg paralysis.
Posted by Lymetoo (Member # 743) on :
Glad you cleared that up!! I was afraid to ask! I thought maybe I had missed it somewhere.
Posted by Jellybelly (Member # 7142) on :
actally I am on heparin now, for the added side effects, not hypercoagulation this time, although I have used it on and off for htpercoagulation for many years. Along with low dose mino, I believe it has helped get me out of the black abyss.
It has some very good additional uses other than thinning blood.
Posted by Raymond (Member # 13980) on :
I bought the book by Buhner. In the beggining very medical detailed and if I didn't have my wife's Taber's Medical Dictionary I'd be reading without an understanding. Even though with that it is still difficult.
He mentions Herparin. In it he states "different types of proteoglycans contribute to the spirochetes ability to bind to brain cells.
Binding is inhibited by substances that interfere with proteoglycan synthesis and by exogenous (externally supplied) proteoglycans. e.g. herparin.
That is why herparin taken along with antibiotics has been found to help cure the disease".
Don't know what supplemnts he mentions as an inhibitor, haven't gotten that far and I don't want to jump around...
Posted by aiden424 (Member # 7633) on :
I was on heparin for three years and really never noticed a difference. When heparin was re-called a few months back I stopped the heparin and started taking Bolouke. I herxed really bad on the Bolouke, almost to the point of not being able to take it. I don't know what the problem was. I thought maybe the antibiotis worked better with Bolouke.
I like the Bolouke better but I think I'm going to have to go back on heparin because I get really sick to my stomach from Bolouke. I thought it would get better, but after three months I still get really sick to my stomach.
Kathy
[ 06. June 2008, 07:32 PM: Message edited by: aiden424 ]
Posted by cottonbrain (Member # 13769) on :
another alternative to Heparin, from Neutricutical site:
NSI� Serrazimes� is a vegetarian formula that may help support cardiovascular, lymphatic and immune health. How does NSI� Serrazimes work? Serrazimes� is a proteolytic (protein digesting)
blend of enzymes derived from the edible fungi, Aspergillus oryzae and Aspergillus melleus. Serrazimes may help to maintain and support cardiovascular and lymphatic health through...
its ability to help break down excess fibrin. Serrazimes� may also help support the immune system and promote a healthy response to external stresses. Serrazimes� is designed as an alternative to Serrapeptidase (also known as
serratio-peptidase and serrapeptase) in dietary supplements. Serrapeptidase was initially isolated from Serratia marcescens, a potentially pathogenic bacteria found in the gut of the Japanese silkworm. Serrapeptidase has wide
clinical use in Asia and Europe for the management of inflammation. NSI� Serrazimes may help reduce inflammation and promote healthy joint flexibility. It is highly resistant to strong stomach acidity. NSI� Serrazimes� is
better because it:. - Is a vegetarian formula. - May help support cardiovascular, lymphatic and immune health. - Is made of the finest quality ingredients
-------- I took a bottle of Swanson's brand for a month --it is really super cheap there. i had no side effects from it.
notice what the author of the ad says about serrapeptase being bacterial...yuck... don't know if it's true or not.
Posted by Raymond (Member # 13980) on :
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