Mine is both legs. It feels like it is deep in the muscle, or maybe even bone.
Both quadriceps all the way down the front of my thighs to my knees hurt, and feel so tired.
I used to be able run & do the elliptical, but not anymore. It feels like my legs will collapse. This has been about 2 months. There was a brief period where it went away, then came back.
I am just wondering what causes this and if there is anything I can do to help relieve some of it?
Thank You!
Posted by laura miller (Member # 12703) on :
Yes I have this, you described my pain totally. I think it is just the bacteria drilling down deep into the connective tissue from what I understand. Mine has been way worse at times and has gotten better with treatment. It would also hit the back legs in the hamstrings area. It just throbs doesn't it? I feel your pain! Hang in there!I hope you feel better.. Laura
Posted by bettyg (Member # 6147) on :
....yes, me too.
just finished another month of physical therapy for this:
my new hip has BURSITUS in it, and front thigh is TENDONITIS.
here are exercises you can do:
do you have 1 of those PT bands or some tight hose?
for me, they have tight one around both knees; then you open them up as far as you can WITHOUT PAIN, and do 10 at a time; REST for 10 seconds and build up to 30 max! do 3-5 times/week.
mine is left hip, so put band on lower ankles...WEAR SOCKS THT GLIDE!!;
take left one and SLIDE it out slowly until you are NOT comfortable and any pain starts; do this 10 times; rest 10 seconds; then do 1 more round. when you have built it up ... then do 30; rest in between. 3-5 times/wk.
lay on GOOD HIP not hurting,
you don't need bank for this, but keep your BACK STRIAGHT, feet together, and open your legs from knee up 90% BUT not until you feel any pain. same as rest; 10; rest; 10 more and rest. build up to 30; 3-5 x/week.
while laying on good hip,
lift BAD hip/THIGH up slowly building up those muscles. have a PILLOW BETWEEN KNEES; that helps comfort level. do 10 slowly. eventually do up to 20 resting, and finally up to 30. 3-5 times/week.
when done, are you able to massage the hurting, painful area yourself, or a family member for 15 minutes??
then ICE IT for 15 minutes with towels covering frozen ice packs, etc.
that's what has helped me, but I'VE GOT TO TAKE TIME AND "DO" THOSE EXERCISES RELIGIOUSLY!! ********************************************
Posted by Nora DeBoard (Member # 15600) on :
I get this too. I see a Kenisiologist. Which works with the muscles and how they relate to the body.
Question, Do you happen to be having any stomache issues at the time of your thigh issues? That muscle is linked to intestinal issues.
I was having MAJOR stomache issues at the time my thighs were hurting. My therapist could barely even touch them. Or the outer area (piriformus). Which I've had injections into.
Nothing helps because it's only masking symptoms. I agree that magnesium can help. Mangesteen is also a good antioxidant and detox. You can find it at most healthfood stores. Hope this helps and you feel better. Posted by AnneRoto (Member # 13363) on :
I have had pain in my knees, then thighs, then lower leg,however the pain comes and goes. Does anyone have this type of on and off pain?
Posted by HaplyCarlessdave (Member # 413) on :
quote:Originally posted by AnneRoto: I have had pain in my knees, then thighs, then lower leg,however the pain comes and goes. Does anyone have this type of on and off pain?
Sounds like very typical Lyme symptoms, perhaps babesia, too. For me there was sometimes a bit of on-and-off-ness, which varied as I "herxed" during treatment, and generally improved as I got better. DaveS
Posted by dg0207 (Member # 15623) on :
I also have this problem with my legs which is the most disturbing one of my symptoms since it hase a direct impact on my livelihood.
Mine seems to come on if I am on my feet for a while. Above my knee in the front, the ache is a deep burning one. Sort of like when you have been exercising; doing squats or climbing stairs.
As of late when this comes on I tend to take a break. Otherwise it seems to trigger more pains in my hamstrings which feel like they are over-stretched and straining. I have no inflammation in any joints.
I am trying to stretch a lot and do "very moderate" types of exercise so that I keep some form of physical conditioning.
It seems my pains have increased after starting the ABX treatment. Might be related to the build up of bacterial toxins or perhaps the bacteria are stealing my of muscles metabolic substances. Also since starting the treatment, muscle twitches are more often. I am taking magnesium which seems to knock them out.
I wish we all had a quick fix for this. Any have any solutions?
Get well,
Dave
Posted by dg0207 (Member # 15623) on :
To All;
Not to mention, I have also have been experiencing burning sensations and stabbing sensations which seem to come and go.
Prior to any muscle pains back in February I had several periods where I felt like my whole body was on fire from head to toe and in my guts. I think they are neuro-Lyme symptoms.
Do any of you people experience these and could they be related to the leg muscle pains or are they seperate issues?
DG
Posted by NanaDubo (Member # 14794) on :
DG - I had the same burning all over although moslyt my head
and stomach but heat everywhere.. Babs treatment has helped that a lot.
Really good quality collodial silver has help tremendously too.
Now all the burning has moved down to my legs. Not sure what
that means. I haven't heard a whole lot of positive things here
about silver but I actually had 6 days in a row where I felt
completely well and normal. First time in years. I'm sticking with it.
NanaDubo
Posted by Sammi (Member # 110) on :
I have had extreme pain and weakness like this from Babesiosis. Do you have it ticks_me_off?
Posted by lymebytes (Member # 11830) on :
Yes, exactly the same pain. Comes and goes. No babesia, LD and ehrlichia and viral co-infections. I say an LD symptom.
Posted by dg0207 (Member # 15623) on :
Has anyone had experience with this and get it resolved?
Those that have posted, are you better with treatment?
It seems to be consitent with me. If I over do it with too much walking, my upper front legs burn and hamstrings have "tearing" like pains.
Later after resting them, the twitching begins. I can't get relief. Ocassionally there are good days. It seems to cycle. not sure.
W/ IV rocephin it is constant along w/ newer symptoms.
Posted by robi (Member # 5547) on :
This is a guess. Look up "compartment syndrome"
Posted by jam338 (Member # 14002) on :
I experienced this same thigh pain. So does my sister. We both have been diagnosed with FM for many years.
If you recline back, raise your leg, and use a lotion to lube up the back of your thigh, you feel thigh lesions right above the knee area (between the knee and the butt). If you regularly massage those areas it helps loosen those lesions.
I am not saying this is what y'all are experiencing. I am just sharing mine and my sister's personal experience in hopes that the information may help anyone else.
One of my treating doctors is Dr. R. Paul St. Amand, an endocrinologist in Marina del Ray, CA. To be clear, Dr. St. Amand does not treat lyme. He treats FM/CFS. He has been treating FM/CFS for about 45 years. He is the author of "What Your Doctor May Not Tell You About Fibromyalgia". The thigh muscle, because it is a large muscle group,along with the butt muscles, are largely affected muscle groups.
In fact, the left thigh muscle is the one that Dr. St. Amand uses to monitor the effectiveness of his treatment protocol. My sister and I have been on his treatment protocol for a year, and the thigh muscle area has substantially cleared and improved.
But, there is a snag (isn't there always??), in order to do Dr. St. Amand's treatment protocol one must avoid all external and medicinal level salicylates which of course means herbals. You can see the conflict with lyme treatment.
While some doctors theorize that many FM/CFS patients are misdiagnosed Lyme patients, not all researchers or doctors are sure they are mutually exclusive disorders. Research has not yet conclusively answered this question. In other words, it is possible you could have both FM and Lyme Disease.
Dr. St. Amand's theory on FM is there is a genetic predisposition factor that causes the kidneys to not be able to escort out all cellular debris particulate matter. When it can't get escorted out, it is redeposited into available tissue, particularly thighs, butt muscle, and trapezius muscle. Over years it will even deposit into tendons and ligaments.
Dr. St. Amand uses Guaifensin (Mucinex) which I think is basically like a binder agent to collect up & escort this particulate matter out of the tissue. The Guaifenesin, for reasons where the science of its actions are not fully understood, basically grabs onto the particulate matter, creates an irritation in that area which builds up with fluid (creating more pressure and pain on nerve endings) and when sufficiently irritated the body triggers a flushing out and the fluid and debris is swept into the elimination system.
The process is basically analgous to how the body can rid itself of a splinter by festering up with fluid and rinsing out the irritation area.
But, in order to get through the kidneys the Guaifenesin needs to occupy certain receptors in the kidneys...the same receptors that salicylates use. The size of everyone's receptors is unique to your genetics. If you can imagine the receptors as your home car garage; some are single, double, triple car size. Same is true with the kidney receptor. If you have a single size receptor and salicylates are parked there not allowing Guaifenesin in, the collected up cellular debris can not be escorted out and are sent back and redeposited back into muscle tissue.
Since starting the Guaifenesin Protocol I can see the excreted debris in my urine. In fact within 2-3 days of massage I see an increased amount of urine debris! In order to monitor the level of debris, one has to be able to bite the bullet and pee in a jar. Sorry if that is beyond your tolerance of sensibilities to do that. At my level of incapacity, I am willing to do what it takes to recover my functioning again.
Right now I am experimenting with herbals (red root) to see whether it blocks the Guaifenesin. I see Dr. St. Amand again next month so I will know for sure when he does my body map. If I have a larger count of muscle lesions it will mean I have been blocking. I am still seeing some urine debris so I know at least some is getting out, but I could be partially blocking since the amounts don't seem as much as before. I am intentionally not changing the dose on Guaifenesin until after the body mapping next month. Thereafter, I will increase the dose and see if it bumps up the amount of debris.
My LLMD, like most doctors, says he doesn't know the science of how Guaifenesin works, but he acknowledges that Dr. St. Amand gets good results with many patients. The Guai Protocol dramatically altered my sister's life in less than 4 months she went from couch-ridden to redecorating her house!
In fact, it was when I didn't experience similar results (which I should have because of our DNA similarities) that I knew something more was happening with me, and learned on message boards to check for lyme disease and viral factors, voila. There it was.
For those interested in learning more about Dr. St. Amand's protocol and theory, you might check out fibromyalgiatreatment.com.
Hope this info helps somone!
Posted by nyjohn (Member # 15361) on :
i have the same/similar muscle pains in the calves, quads, hammies, and gluteals. also in the triceps, on occasion, but usually only after working out.
moving around helps it go away.
they weren't around until about 3 mos into my abx protocol.
i also should mention that i have hip impingement, and a torn labrum in the left hip, which would also cause the muscle imbalances and the gluteals to tighten, which i had going on prior to lyme/babs/myco...
but i am able to work out some and do long walks, and even swim. i *think* that helps. i also just began starting to work out legs some...
so who knows?
Posted by nwisser (Member # 15682) on :
I don't know if this works for anyone else, but on occasions when my muscles are MUCH worse than usual, I make a dip of extra virgin olive oil and romano cheese (from sheep, not cows! and sometimes I add dried basil) and eat it with corn chips, or crunch them into it. For some reason, probably the olive oil, it gives me a few hours' respite from the pain. It's not a cure--it does come back--but on some days just a break is heavenly!
Posted by jocus20 (Member # 11576) on :
I have this same exact pain. It is right in the center of the front of my thighs and a very deep knawing pain. Both legs are affected at the same time too. It also comes along with a tightness and weakness feeling.
Ive wondered what causes this.
Along with the deep thighbone pain i will have this pain and weakness that moves up and down my lefs in the front and back that starts in the hip/groin area. Sometimes it feels like ligaments or tendons. I really dont know.
Right now im treating babesia. Im not sure if thats what it is but it sure does suck.
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