we just got back from camping. man, it was hot --96 and 97 most days.
i stood at the dock and just fished for about an hour. then i got sick. i was sweating like crazy, dizzy, and my face was dark red.
i was drinking water but oh, did i feel bad. so back to the camper and a/c.
is hot temps outdoors, like in texas, bad for lymies?
does it kill anything or just me???
Posted by disturbedme (Member # 12346) on :
I was wondering this as well!
We were under a heat advisory today.
I wasn't even outside very long today, but while I was for the short time and then right after I came inside from outside, I was very dizzy and lightheaded, had some hot flashes, and felt like I was going to faint a few times. NOT a good feeling at all. So most of today ended up badly for me.
Not happy because tomorrow we're in another heat advisory. Posted by sixgoofykids (Member # 11141) on :
Last year I could not. I would be sick the rest of the day if I took the kids to the pool even for just 30 min.
This year, I am having no trouble with it at all. A year of treatment has made the difference.
Posted by teresambear (Member # 15061) on :
Me too !!!!!! very dizzy !!!!!!
Posted by SmurfyMom (Member # 13688) on :
Last Thursday, my daughter had a party at the park from 2-4pm. I know... not the smartest time for Texas.
There was virtually no shade. It was HOT. The cupcakes melted.
That night I was typing nonsense. I could not get anything out right.
Friday I was stuck in bed I was in so much pain and was so weak and stiff. In the a.m. I couldn't even roll over without help.
I didn't get back to my usual blechy self till Monday.
I'd say there is definitely something up with the sun/heat. I am NOT trying ANYTHING out in the sun again.
I wondered at the time if it was maybe a mini-herx like thing, considering the buggers don't like heat.
Posted by AZURE WISH (Member # 804) on :
I went out to get the mail today...tht was enuff of the heat for me. It made me lightheaded that fast...but it was mid 90's here today.
Posted by Feather Herrari (Member # 15777) on :
I was told by numerous Lymies that the heat is the best thing to bring the buggies out. I believe that the spirochetes do not tolerate heat and when they encounter heat you tend to have a Herx which is a good thing, the more the Herx's the more the buggies are freaking out. I was also told that if you want to bring the buggies to surface that the a sauna and hot tub are the best thing. Just what I heard, not proven.
Posted by Geneal (Member # 10375) on :
Well we bake here daily (mid 90's with 80% plus humidity) .
I've done a lot of work outside in the last 3 weeks.
Gardening, moving dirt, flower garden in front of the new house, etc.
By evening, I feel sick. Nauseated, dizzy, heart pounding and hot (even though body temp is below 97.4).
I drink constantly outside.
I sweat tons too.
I don't know about why I feel so bad, but with 2 children who live outside....
Well, I just sweat and barely bear it.
I know the heat really aggravates my POTs issues.
Here's to nice, crisp fall days.
Hugs,
Geneal
Posted by charlie (Member # 25) on :
....Just the opposite here...i can't stand even the slightest chill and I thrive on heat and humidity.
Temps below 70 degrees send me inside cranking the furnace up.
I grew up as a beach bum and I like the tropical feeling air.
Charlie
Posted by lymednva (Member # 9098) on :
i am currently heat intolerant due to dysautonomia. some of my symptoms have improved, but not that one, yet.
several of you mentioned things that tie in with dysautonomia, POTS being the most obvious. feeling nauseous, dizzy, like you will faint, all fall under that heading.
Posted by UnexpectedIlls (Member # 15144) on :
I have the same problem... The sun/heat flare my symptoms very badly, I even get low grade fevers. Posted by randibear (Member # 11290) on :
what's dysautonia? sorry for spelling...
Posted by njlymemom (Member # 15088) on :
I was told the same thing that Feather
mentioned. The spirochete does not like heat.
It can cause a major kill off, which sounds
like a good idea, unless you are chronicly
ill and can't handle that kind of heat.
Stepped outside today (over 100 registered
in the sun) briefly....and went numb up to
my hips. We went for a walk tonight, it was
still 73 degrees and humid. Again i wnet numb,
lost my vision, pain in joints , dizzy.
If this is what kill off feels like, I just
can't handle it.
Posted by Tincup (Member # 5829) on :
Sick or not.. the heat you all are getting up north is bad. I was told there was a heat advisory today.
The high humidity is wicked.
But personally.. I'm with Charlie. Give me the heat! I like it hot!
It was 97 today and I was out in it all day... took a long walk... hung out at the beach.... and loving it.
If it isn't 80 degrees.. I am very uncomfortable.
Get down to 70 degrees and I am cold!
Posted by cantgiveupyet (Member # 8165) on :
I can take the heat just not the humidity.
Im up here in the attic. The AC unit was put in late tonite and its still about 88-90 up here.
I figure a cheap way to detox...possibly
Posted by bettyg (Member # 6147) on :
.. i do not do well in HEAT/HUMIDITY like today! i was gone all afternoon or i would have had central ac on!!
also, any of you on DOXYCYCLONE will also be MUCH WORSE AND SUNBURN!! so cover up every piece of skin!
if driving; LONG SLEEVES; LONG PANTS, AND DRIVING GLOVES. Posted by Rianna (Member # 11038) on :
I'm totally heat intollerant my LLMD told me it is a combination of POTS, Adrenal problems and also Lyme itself hate the heat so it livens them up.
Rianna
Posted by Curiouser (Member # 14128) on :
I spent all of 10 minutes outside yesterday.
The heat felt really good, but it sucked the life right out of me. Had to go back inside and take another nap.
And yeah, the humidity's awful. It's like trying to breathe soup out there.
It's supposed to be 98* here tomorrow. EEK! Posted by laurie sm (Member # 14584) on :
I have found that I am always cold. I didn't know how I was going to react to the heat yesterday.
I loved it. I sat outside in the shade and sweat as if I was in a sauna and drank alot of water. I actually planted some flowers.
Last Sun. I was in bed all day.
I had a "better" day. By evening my body had
enough and symptoms came back.
Update-I am waiting to get my first Picc line for IV Rocephin hopefully next week.
I am not on any abx. right now and doc says that since my body is not FIghTING right now I don't feel totally crappy ALL the time-just most of the time!
Apprehensive about my next step but hoping and praying it will make me feel somewhat better..
Stay cool Laurie
Posted by jklynd (Member # 7550) on :
I'm in Northern NJ,where it's expected to be like this for at least a few more days.This is more like August weather, unheard of pre-Father's Day. It's like taking a bath..(With your clothes on)
Posted by AlphaRn3 (Member # 13677) on :
Hi When Im in florida, the heat usually makes me feel quite sick after going out for some minutes. But I noticed that the overall symptoms become less when Im in a more hot environment, while when staying in a cold country for some weeks symptoms slowly become worse.
So I try to get as much heat as I can tolerate .. maybe it really helps a little.
I also heat the spa to 104F and try to get in there after having the last IV for the week, as I read somewhere that the heat makes the bacteria much more sensitive to abx even when not directly killing them.
Arne
Posted by Keebler (Member # 12673) on :
-
Heat and humidity can be very hard on the hearts and brains of some people.
Very very careful not to overtax and try to keep a cool, wet towel around the back and side of neck. A wet wash cloth under a hat is good, too.
Salt, electrolytes, etc. help. ICE cold water actually can cause the body to work harder and be a shock. Jumping into cold water, too, should be avoided. Gradual changes are safest.
Sugary drinks, too, speed up the body, making one hotter.
Soft ice packs are great. They don't get shocking cold. Putting damp kitchen towels - or tee shirts - in the freezer.
Ice chips in the mouth
-
-
Posted by LymeCFIDSMCS (Member # 13573) on :
Dr. Paul Cheney says that with CFIDS, patients become heat-intolerant in the earlier stages of illness and then become more and more cold-intolerant. I wonder if it's similar with Lyme?
Me, I LOVE heat now. I can't get enough of it, but I'm always cold and in the winter I get so much sicker. For me the ideal temp would be about 85 all the time.
Posted by mojo (Member # 9309) on :
I've never tolerated heat well. I like to be just a little bit chilly.
My favorite temp is about 75. I don't like it too cold, either, but I love sweatshirt weather.
This hot humid stuff we are getting is not making me happy. I've been in the air conditioning all day. We had a big storm and now its only about 75 degrees but still very muggy.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by randibear: is hot temps outdoors, like in texas, bad for lymies?
Why do you think I'm still hanging out in Missouri!? It's not nearly as hot here and is only hot for a few months....as opposed to about 6 months in TX!
I can't stand the heat!!! We're headed to TX soon for family time. OH joy, facing the heat!!
I love 75 degrees the best!!
Posted by Curiouser (Member # 14128) on :
I'm with LymeToo and Mojo - 75 is my Goldilocks temp - not too hot, not too cold, Juuuuust right.
I just noticed one really bizarre thing. Ever since this heatwave hit, I've been able to sleep at night!
Most nights, I'll get 4-5 hours of sleep with at least one or two awakenings during that time.
The past two nights, I've been getting 7 hours of zzzzzz time in, with no mid-sleep awakenings.
Yeah, I'm still having the usual vivid bizarre dreams, but I'm sleeping!
It's wonderful!
Posted by TerryK (Member # 8552) on :
Dysautonomia is the disruption of the autonomic nervous system. The autonomic nervous system is the part of our nervous system that is not under our conscious control like blood pressure, heart rate, breathing, sweating, salivation, etc..
One reason that people can get dizzy and have problems in the heat is because the heat dumps our blood pressure causing it to become low. Many of us already have low blood pressure or orthostatic hypotension due to our infections.
Heat dialates blood vessels and can cause blood to pool in the extremeties (anyone notice bluish or spotty looking extremeties?) which can cause POTS type symptoms like a high pulse along with the low blood pressure. This is because some of the blood is now in our legs rather than being pumped around our body. Our heart is trying very hard to get the blood to circulate and it speeds up in order to help.
There can be other reasons too. Some of us cannot sweat which makes controlling body temperature (another autonomic nervous system function) problematic. Inability to sweat can be caused by neuropathy which can be caused by lyme or co-infections or blood sugar problems or thyroid problems or autoimmune problems and the list goes on.
If you sweat too much you can become dehydrated and your blood pressure will drop and your body will have problems controlling your body temperature etc..
Lyme and co-infections mess with the autonomic nervous system. We need the autonomic nervous system to work properly in order to control body temp, blood pressure and to handle stress including the stress of being out in the heat.
Terry I'm not a doctor
[ 09. June 2008, 01:59 PM: Message edited by: TerryK ]
Posted by janis1023 (Member # 15942) on :
lymednva, Did a doctor tell you you had dysautonomia? I don't think any doctor I have seen could spell it, much less diagnose it. I absolutely cannot stand heat. I sweat profusely and am totally zapped of energy (like that is new).
Jan
Posted by Hoosiers51 (Member # 15759) on :
I have been diagnosed with dysautonomia, but I am okay with heat. Though, it is a very common symptom of dysautonomia.
I have the blue-ish hands and feet, high pulse, low blood pressure (lower upon standing), etc. Does anyone else here just RANDOMLY get a hot neck or face though? (but not correlating to hot temps in the air at all). It is weird. Oh, also, sometimes, I try to tell my brain to swallow, but my throat and mouth won't do it. It is scary, and I think it is dysautonomia. Anyone?
I started taking the beta-blocker Pindolol for the dysautonomia though and I feel like it helped.
Posted by James Marschner (Member # 13073) on :
The problem w/ dysautonomia is that it is NOT a diagnosis. I hate when Dr's do that.
They simply describe the symptom(s) you're having and put a suffix or prefix on the term. In this case the prefix "dys-" which means abnormally regulated function either up or down regulated, and autonomia refers to the autonomic branch of the CNS that is affected.
Dysautonomia can be caused by lots of things including lyme.
Posted by ldsucs (Member # 16142) on :
It's 110 degrees today in Dallas area....
HOT AS HE**
Lyme or no lymes that is hot enough to hurt anyone!!!!
Posted by BugBit (Member # 7829) on :
This AZ Lymie is TOTALLY HEAT INTOLERANT. Always sweated - all my life I wrecked clothes. I have also probably had Bb all my life, too.
However, I love my Ozone Jacuzzi-type spa and in fact, I remember learning somewhere that spas, sauna and these types of sweat-machines actually raise the core body temp and kills bugs by making antibiotics 17 times more effective. I think it was a PubMed that I read that statistic... anyway, I feel better when I can spa regularly and I don't suffer so much during the hot season here in the desert.
I also suspect that Bb and friends in a way, take over our brain regulators and make us miserable when we get hot because it does kill them. Same with those of us that put on weight... Klinghardt said in 2006 that Bb LOVES carbs and they always get fed first. He also said that a protein diet would kill a Lymie and feed a Molder, where a high-carb diet is necessary for a Lymie and would kill a molder. I don't know - so what do we crave, and in fact need because they are being taken? Carbs. What puts on weight faster than protein? Carbs. It is an out-of-balance experience, this Lyme Disease.
Then some get skinny when they get Bb. Go figure. *BugBit*
Posted by nwisser (Member # 15682) on :
I'm another who suffers in the heat--severe brain fog to the point where it becomes difficult to walk or create a coherent sentence. Is this because it's killing the Bbugs?
Reading your posts made me wonder: is this is why native Americans did sweat lodges--to kill off the germs or keep them at bay?
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