LymeNet Flash: NEWBIE FROM LONG ISLAND

This is topic NEWBIE FROM LONG ISLAND in forum Medical Questions at LymeNet Flash.

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Posted by drewby (Member # 15253) on :

Hey all,

About 5 years ago, I noticed my chin, left cheek, gums and left shoulder becoming numb and tingling. I visited 2 neurologists had MRIs, blood work(including a negative Lyme test)etc. Nothing was found wrong with me.
I began to feel weakness in my hands and legs and got tired very quickly. I could sleep all day if nobody woke me up. I became depressed, had frequent headaches behind my left eye, sinus problems, constant clenching of teeth and a general feeling of fogginess constantly.
More recently I had about 8 seperate episodes when I felt like I was going to pass out which has never happened in my entire life. I actually had to tell a coworker to hold me up because I was going to hit the ground. I went to see a cardiologist who told me I wasn't drinking enough water and was dehydrated.
I began to suspect that my negative Lyme test was wrong and I had to have something wrong with me. I got a Dr Name from this site(THANK YOU)and have now been diagnosed with Lyme, Bartonella, Rocky Mountain, Epstein Bar and High Cholesterol. The Dr Belives I have had it for quite some time.
I am on a low dose of Doxy for starters and feel WORSE(Herx) but am now hopeful.

Posted by cjnelson (Member # 12928) on :

Hey all,

About 5 years ago, I noticed my chin, left cheek, gums and left shoulder becoming numb and tingling.

I visited 2 neurologists had MRIs, blood work(including a negative Lyme test)etc. Nothing was found wrong with me.

I began to feel weakness in my hands and legs and got tired very quickly.

I could sleep all day if nobody woke me up.

I became depressed, had frequent headaches behind my left eye, sinus problems, constant clenching of teeth and a general feeling of fogginess constantly.

More recently I had about 8 seperate episodes when I felt like I was going to pass out which has never happened in my entire life.

I actually had to tell a coworker to hold me up because I was going to hit the ground.

I went to see a cardiologist who told me I wasn't drinking enough water and was dehydrated.

I began to suspect that my negative Lyme test was wrong and I had to have something wrong with me.

I got a Dr Name from this site(THANK YOU)and have now been diagnosed with Lyme, Bartonella, Rocky Mountain, Epstein Bar and High Cholesterol.

The Dr Belives I have had it for quite some time.

I am on a low dose of Doxy for starters and feel WORSE(Herx) but am now hopeful.

Posted by cjnelson (Member # 12928) on :

Hi drewby

I broke up your post so others could read it better!

Welcome to the board! I am sorry it has to be but glad you found the site.

It will be a long road but keep on keeping on and over time, much time, it will get better.

Baby steps!!!

Posted by bettyg (Member # 6147) on :

cj,

god bless you for breaking up newbie's post; i would have SOB, SCROLLED ON BY, otherwise...

wow, you have many things wrong, so it's going to take a long time to get them all under control; it won't be overnight; so learn patience!

best wishes; and welcome to lyme land! [group hug]

Posted by AZURE WISH (Member # 804) on :

Welcome [hi]

Glad to hear you found out what was causing your symptoms and that you are now being treated for it. [Smile]