I have been battling this for 4 months now. I started with low dose doxy 200 mg a day for 2 1/2 months. Ramping up to 400 doxt a day for the last month.
When I took doxy 200 a day I had little problems but fully functional. Than when I started 400 a day 1 month ago, this is what happened.
First few days fealt great. Slowly knees started to bother me, than week 3 wham fatigue. Profound fatigue even closer to week 4. I feel like I can not take it anymore.
I have to take care of a 4 year old and I just want to give up. I never fealt this bad.
I feel like I am going to die. Thanks for listening Teresa BTW- I have had lyme alleesat 6 years +
Posted by webmeg (Member # 13647) on :
Perhaps try going to 300mg of Doxy? If you are that sick you should back off a bit.
Take 100mg in the morning, and 200mg at bed time.
Sounds like you're probably killing a LOT of Lyme and your immune system is going bonkers. Cut back a bit so you can take care of your little one!
Just a thought...webmeg
Posted by teresambear (Member # 15061) on :
I did not take my med this morning. But I will take 2 tonight. I was never plagued by fatigue as my symptoms. Also yesterday right bottom of foot was buzzing all day.
Thank you for your reply. It is such a crazy disease. I do not know if I am herxing, yeast, lyme acting up co's, the abx bothering me, or some virus my kids brought home or I picked up.
Posted by Clarissa (Member # 4715) on :
Hi there,
Please try and hang in for the fight!! Unfortunately, 4 mos is just a blip on the screen of this fight, especially if you've been infected for at least six years.
(I was infected for 30 some odd years before I was diagnosed and am now in remission).
Do you have an LLMD? Have you been tested for coinfections? All of these factors are important to your recovery.
I was given a clinical diagnoses for Chronic Lyme in my early 30's. I had IV abx for 6 mos and then orals for another year or so.
It went into remission but then I got sick again 3 years later (NOT a relapse) but a MISSING of a coinfection, Bartonella. I would have MUCH preferred to have done it all at once, but alas, I was a newbie and hadn't even heard of Lyme Disease, much less Bartonella.
Feel free to ask any and all questions as it's SO overwhelming with the abx, herxes, yeast, etc. I FEEL your pain. It will sort itself out as you move along each day.
My best advice is to take it ONE DAY AT A TIME and to try and be patient. You WILL get better and you are blessed to have a diagnoses.
I truly believe MOST of the general population is infected with these disease and many are walking around suffering blindly and will never know what is happening to them.
You're on the right path and you found the right support group here at Lymenet. These are wonderful people full of knowledge, kindness and empathy.
Best,
Posted by Geneal (Member # 10375) on :
Sounds like you are having a major herx!
I had one with minocycline that had me crawling on the floor.
Of great amusement to my then 5 and 4 year old.
I simply could not walk.
I always tell my LLMD that I have to be able to function for my children.
So, he allows me to back off as needed or call and get meds changed.
Hang in there.
Hugs,
Geneal
Posted by teresambear (Member # 15061) on :
I tried backing off for 24 hours. Than this morning I started to get some neuro stuff that scared me. Can that be possible ?
You know I would rather deal with the fatigue. I am taking meds Right Now !!!!!! Symptoms never before came back that fast. What is going on ? Teresa
Posted by feelfit (Member # 12770) on :
probably a co-infection. been tested for them?
Feelfit
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by feelfit: probably a co-infection. been tested for them?
Yes, they say if you have severe symptoms coming back that fast, you are most likely dealing with a coinfection.
Plus... Major herxes occur every 3-5 wks. Sounds like you're right on schedule!
I do hope you feel much better SOON! Posted by njlymemom (Member # 15088) on :
Teresa, so sorry to hear that you are still not feeling well. Let me know if there is anything I can do.
The buzzing on the bottom of the feet could be Bart. Is it mostly in the am? Did you say your llmd tested for bart?
Maybe you should call him and see if you can drop down to 300mg a day. What were the neuro symtoms?
Posted by teresambear (Member # 15061) on :
Thanks everyone . I was tested for co-infections by Quest initially of course all negative.
He said if I was not getting better he would pursue co's further. Well just got the call from my LLMD for 4 year old son . Quest shows Igm band 41 positive.
That did not even show on my Quest very worried.
Posted by teresambear (Member # 15061) on :
quote:Originally posted by njlymemom: Teresa, so sorry to hear that you are still not feeling well. Let me know if there is anything I can do.
The buzzing on the bottom of the feet could be Bart. Is it mostly in the am? Did you say your llmd tested for bart?
Maybe you should call him and see if you can drop down to 300mg a day. /What were the neuro/ symtoms?
Posted by teresambear (Member # 15061) on :
My neuro symptoms are buzzing and pain on bottom of foot, Tingling lip, RLS, feet tingling. I suspect Bart always did
Posted by teresambear (Member # 15061) on :
BTW- My son's Igenex results will be coming soon. I will post the resuts.But in my heart I know the results. Thank you all for thinking about us.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by teresambear: BTW- My son's Igenex results will be coming soon.
Thank goodness! I'm so sorry to hear about your son. Let's hope he can beat this thing before you!! I know that would make you happy!
Posted by teresambear (Member # 15061) on :
Thank you all for giving me the hope to pull through this. It will just be hard to take care of him if he has to go through what I am.
Especially when I am not well. I know you all will be there for me with your experience and knowledge. Thanks Teresa
Posted by tailz (Member # 10014) on :
Maybe you could try rifampin with something like metronidazole?
I was on minocycline, a relative of doxy, and recently I could not tolerate this antibiotic for even ONE day - my tongue would turn this strange shade of grey-green-white, and my stomach would hurt. I had a few vomiting episodes on this one, too, and nausea and vomiting are new symptoms for me.
So maybe try rifampin with metronidazole to prevent resistance. Don't assume it is always a herx.
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