LYME, ONCE I STARTED THE ANTIBIOTICS MY SYMPTOMS GOT WORSE. I WAS ON CEFTIN FOR 18 DAYS AND THEN
THEY SWITCHED ME TO 200 MG/DAY OF DOXY WHICH I
HAVE BEEN ON FOR 8 DAYS NOW AND FEEL TERRIBLE. I HAVE OVER HALF OF THE SYMPTOMS OF LYME. MY DR RAN
MORE TESTS......CD57, C4A, C3A ON 6/30/08 AND
THEY CAME UP NEGATIVE. I STILL FEEL TERRIBLE, DO I HAVE THE LYME OR NOT? DID THEY ABX GIVE THESE
LATERS TESTS A NEG READING. SHOULD I CONTINUE MY ABX FOR THE 1 MONTH THEY PUT ME ON IT. SINCE I
ONLY HAD THE ONE BAND OF WESTERN BLOT DID THAT
MEAN I HAD SOMETHING ELSE? MY DR WANTS TO REFER ME TO INFECTIOUS DISEASE. WHERE DO I GO FROM
HERE?
Posted by sixgoofykids (Member # 11141) on :
If you had a positive WB and symptoms, you have Lyme Disease.
It sounds as if your doctor is following the IDSA guidelines. The IDSA was recently brought up on anti-trust violations for those guidelines and they have to rewrite them .... so an ID doctor will not be a help with Lyme.
I would post under seeking doctors to find a Lyme Literate physician (LLMD) near you.
You are supposed to get worse on meds ... it's called a Herxheimer Reaction. If your doctor knew about Lyme he would know that. Please find another doctor!
Posted by mamam (Member # 16246) on :
raally just wanted to be sure it wasn't something
else. Even if only one band came up positive? My
Dr didn't seem to be to sure.
Posted by SForsgren (Member # 7686) on :
CD57, C3a, C4a do not come up "Negative". Sounds like the information you have is not accurate. Do you have copies of the tests?
Posted by mamam (Member # 16246) on :
not yet, they are sending them in the mail. I
will post when i find out.
Posted by sixgoofykids (Member # 11141) on :
Sorry, the way you had it posted the first time in a block in all capitals, I misread. I thought you wrote that you had a positive Western Blot.
I agree with Scott, I'd get a copy of your test results.
Also, you might want to get retested by IGeneX. All the do is Lyme testing, so you will get more accurate results.
Posted by mamam (Member # 16246) on :
sixgoofykids - i did have one positive band of the western blot test. my dr made it sound like
you needed 2 or more positive bands.
Posted by Geneal (Member # 10375) on :
I only had one band positive via Quest Western Blot.
IgM band 23. That band and my symptoms were enough to get me diagnosed by a local doc.
Then found a LLMD through this site and Lymetoo.
My LLMD added in the diagnosis' of babesia and bartonella to the Lyme.
Sounds like you are herxing which is another indicator of Lyme.
Please find yourself a LLMD. Your health depends on it.
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