I'm on Malarone, Zithro, and Flagyl. I have felt better in the last month than I ever have.
I've had almost zero fatigue and pain - even the brain fog is gone, but I can't get rid of the twitching and the feeling of something crawling under my skin. I also have biting and stinging sensations everywhere.
I've noticed that it really gets bad at night (when I'm trying to fall asleep, of course! )
This isn't the worst symptom I've ever had - it's more annoying than anything, but I'm curious as to what you all think it could be.
Babs? Bart? Lyme?
Posted by swedish lyme sufferer (Member # 14579) on :
Bumping this !
I also wonder, have exactly this.
When I feel good, the twitching and crawling goes mad!
Posted by lpkayak (Member # 5230) on :
have yo searched morgellons
Posted by lymielauren28 (Member # 13742) on :
I'm 110 percent positive that I don't have Morgellans! I've had all three of these sensations on and off throughout my three year battle with Lyme but have never had any fibers or sores.
But - thanks for the suggestion!
Posted by sammy (Member # 13952) on :
I know that this is going to sound strange but have you tried an antihistamine like Benadryl?
You are not describing classic allergy symptoms but sometimes antihistamines do help relieve itching, crawling, stinging, sensations when nothing else helps. Doctors typically prescribe Atarax for this kind of stuff but you might be able to get by with Benadryl.
And Benadryl might help relax you so that you can sleep better. Those kinds of sensations would be very annoying especially when trying to fall asleep.
On the bright side you are getting better! Congratulations Fatigue, pain, and brain fog all gone, how awesome is that!
Posted by Gert (Member # 13584) on :
I had twitching and crawling & itchy skin that it drove me nuts. I carried around with me a wooden ruler to get to the spots on my back but at night it was the worst in my legs, especially on the insides of my thighs/knees.
Every time I changed ABX it would be so bad in my legs I jumped in bed. It didn't last long (maybe a week) but it was always bad in the beginning.
I ended one year of treatment this past January and felt fantastic until a few weeks ago where I developed severe headaches again (with a few other nagging symptoms).
I just started back on ABX 4 days ago and guess what? Major twitching in my legs. I "think" I could be infected with Bart because of the sores that caused scars all over my legs.
Posted by glm1111 (Member # 16556) on :
Parasites and Worms play a MAJOR role in Lyme disease.
Crawling and biting and itching are all indicative of this. Check out
lymielauren28 your mailbox is full. i wanted to PM you a question. thanks!
Posted by sick (Member # 9143) on :
I have had the crawling feeling on my legs and arms. It was worst at night when I was in bed. I had to get up and walk to releive it. Finally a doctor told me it was restless leg syndrome. I take Mirapax for it. It helps so much!
sick
Posted by TerryK (Member # 8552) on :
I had the constant crawling and biting sensation. Used to drive me nuts!! The first year in treatment I was on doxy and the red streaks showed up on my side. 4 long red streaks that I was told were bartonella.
The doxy got rid of the horrible crawling and biting sensations. I had twitching but not too bad. I've been on magnesium for years at fairly high doses.
It took a long time of levaquin before the red streaks went away but the crawling and biting were long gone - thank god. Those are really awful symptoms in my opinion.
At the end of the first year I figured if those were the only symptoms that I got rid of it would have been worth it. Of course I had other improvements but none that I valued as much.
I think that some of the crawling and stinging sensations are related to neuropathy - damage to the nerves. I also had a lot of burning in my feet and hands which got a lot better. That is also neuropathy. I never had fibers of any kind come out although I half expected to see something.
Terry
Posted by lymeparfait (Member # 14268) on :
Try a dose of humaworm, and see what comes out!
You have parasites along with bart and lyme!
Antibiotics push all things deeper...so of course your crawling has subsided for now. The crawling and itchng at night are the parasites.
Twitches are low magnesium
Neuropathy does give a numb type of skin crawling...but parasites also do this...you should see before you let parasites continue to inhabit your organs. They live undetected! And wreck you body!
You will imporve immune function by ridding your body of parasites. They do not show up in stool tests when they are healthy and pushed deep.
I know.
Posted by nenet (Member # 13174) on :
My nerve and circulation problems used to get much worse at night. Sharp biting sensations, stabbing pains, tingling, numbness, crawling, muscle tics and limb jerks, etc. It has almost gone away with continued antibiotic treatment.
As someone else mentioned, sometimes magnesium can help, but it just made me worse, personally (oddly, it increased my anxiety and agitation).
They can be caused by nerve damage and inflammation, and/or by poor circulation due to inflammation, vasculitis, or other causes.
Lyme Disease and Bartonella can both cause these symptoms, but probably other tick-borne infections can as well. I have really only researched Lyme and Bart for these symptoms, since I know I have Lyme, and likely have Bart.
If they have gotten worse during treatment, it is possible they are being brought out due to an increase in the Lyme disease state, aka the "Herxheimer reaction", caused by borreliacidal activity (antibiotics, etc.).
Posted by glm1111 (Member # 16556) on :
Lymeparfait is on the money. It's the parasites that are causing the nerve damage along with the bb. Lymedocs that are aware treat their patients for worms and parasites and they say it is then easier to get rid of the other infections.
It has been documented that doxy can get rid of the babies but not the adults. (filarial worms) There was a post a while back discussing this along with very professional photos. Some people were using Ivermectin along with doxy.
Gael
Posted by Aniek (Member # 5374) on :
B-12 and folic acid according to my doctor. It helped before when I had twitching, and I'm about to start again because the twitching and motor tics are getting really bad.
Posted by TF (Member # 14183) on :
My now famous lyme doc had me take sublingual B12 for these types of symptoms--the strange sensations that is. They are neuropathies (nerves not functioning properly).
You let the pill dissolve under your tongue. Do NOT swallow it.
I bought it at a health food store. Brand is not important. Follow dosage on bottle.
Posted by Melanie Reber (Member # 3707) on :
Hey Lauren,
Since you are getting all kinds of suggestions... let me throw one more your way. When my Candida load is up, this is one of the first symptoms to emerge. It is maddening, hope you can get it figured out soon.
Posted by TO LIFE (Member # 12371) on :
Dear Lymelauren,
These are the SX I have at times. It was not mold, yeast etc... Please do an anti parasite med.
Posted by nessa143143 (Member # 20340) on :
I had this when I felt we were hitting it hard with Rocephin, for the Oh Short period of time of 30 days.
It almost felt like maybe toxins were coming out....or like bugs were coming out. I know exactly what you are talking about. I would feel like a small bug was biting me but there was no bug. It stopped after treatment. I don't know about the whole "toxins are leaving your body and that's why you feel that" theory because I'm a cynic but that's sure what it felt like. Hope you feel better.
It was annoying but NOTHIN' compared to my real pain. I almost liked it because I told myself "they" where leaving my body.
Posted by lymeparfait (Member # 14268) on :
I also agree with Melanie...the candida is tied into all this! Candida/parasites and metals reside together. When the balance in changed and we kill something, we create an imbalance and new symptoms arise. WE need to also remember to balance our bodies as we use killing agents.
For example, when killing candida, we need to add good bacteria...
I am now removing mercury metals, and low and behold, Candida is coming out in every part of my body! NOt working on Candida...it is just releasing. Also parasites are also releasing as the metals are moved.
so you are killing the lyme and co...then expect movement from the three musketeers...candida/parasites and metals! The live together and will repopulate any vacancies left!
It's a balancing act. Those who improve into remission, work on these.
Your odd feeling are a sign to begin balancing.
Posted by TerryK (Member # 8552) on :
The responses in this thread illustrate what we see here so often. Damage to the nerves for many different reasons.
Anything that is neurotoxic is capable of causing neuropathy. The key is finding whatever it is that is causing yours and fixing it.
I agree with parfait too, balancing is important. In addition to candida, parasites and metals being on the mmove when one infection is being killed, I find that other infections that were not very active, suddenly become active, including viruses.
Terry I'm not a doctor.
Posted by laceyj (Member # 13862) on :
i have those symptoms at times not severe i try infrared sauna at bed helps that is probably the best
also dont know why but tumeric and co q10 premier research i like
and standard process antronex helps with the antihistamine effect
and if all else fails i take some sort of charcoal
i have no idea what these symptoms are from though!
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Fatigue, pain, and brain fog all gone, how awesome is that!