Just diagnosed with Lyme's through the Elisa test by my primary, all physical symptoms of Lyme's, some have come and gone. I started last night with Dox, 2x 100mg for 20 days. I believe I have had Lyme's since April or May or so, he says since I came back from a long bike ride on June 22, I was so tired and exhausted, good barely make it home, and that night I was so stiff, he says I must have gotten bit only 7 days before because that's all it takes to show symptoms. Is 2x 100mg for 20 days of Dox sufficient to wipe this out or do I need to find a LLMD?
Posted by tonyp (Member # 14960) on :
If got early, you have an excellent chance of getting rid of the disease.
My reading is that the dosage is 200 mg, twice a day for 4 to 6 weeks. '
I would suggest that you get yourself an LLMD as you have a window of opportunity that you do not want to lose.
In the meantime, it is comforting to know that you are treatment. You want to kill every last bacteria. So the abx has to be strong enough and long enough
I am not a medical doctor, but suggest that you get a LLMD quickly
Tony
Posted by Clint31 (Member # 16420) on :
You sound similar to me lawrence. I been sick since march/april. I got the same exact dosage but had mine re-filled to last another 2 weeks for a total of 4 weeks.
My doc will give me whatever ABx i want. I plan to be aggressive and continue picking his pockets for it.
Posted by bettyg (Member # 6147) on :
welcome lawrence; glad you found us.
please break up your posts into short paragraphs please for many of us with neuro lyme! big thanks!
we have LYME no s on end named after lyme, conn. so removing them as i come across them!
quote:Originally posted by Lawrence:
Just diagnosed with Lyme through the Elisa test by my primary, all physical symptoms of Lyme, some have come and gone.
I started last night with Dox, 2x 100mg for 20 days.
I believe I have had Lyme since April or May or so,
he says since I came back from a long bike ride on June 22, I was so tired and exhausted, good barely make it home, and that night I was so stiff, he says I must have gotten bit only 7 days before because that's all it takes to show symptoms.
Is 2x 100mg for 20 days of Dox sufficient to wipe this out or do I need to find a LLMD?
lawrence, you need more doxy; we recommend 6-12 weeks; 2 months showing NO SYMPTOMS BEFORE YOU DISCONTINUE IT!
if it's recent, YOU CAN BE CURED WITH LONG ENOUGH AND STRONG ENOUGH DOSAGES; you don't want to become one of us, CHRONIC LYME!
yes, copy my broken up psot here and paste to a NEW ONE IN SEEKING DR.
show the largest city closest to you and your state in SUBJECT LINE.
paste broken up post there....
go to lower left corner and mark box for all replies to come to you. click edit send; done!
we're here to help you find good llmds, lyme literate mds.
check out my newbie package; click link at end for help ok.
Posted by pamoisondelune (Member # 11846) on :
The last time i checked, the ILADS recommended dose is 200mg dose twice a day of Doxyxcycline for 4 to 6 weeks. The dose you are on is too weak to help.
Last time i checked was several years ago. Check the ILADS or Dr Burrascano guidelines. ILADS has a website.
My impression is that you may not be early enough.
Posted by tailz (Member # 10014) on :
Have IGeneX test you for coinfections (babesia, bartonella, ehrlichia, mycoplasma, etc...) Most of us have more than just Lyme.
To answer your question though - you need to be on antibiotics longer than that, especially since you don't know the exact moment you were infected.
Posted by adamm (Member # 11910) on :
It's failed thousands, including me. It's
got to be 400/day for at least 2 months.
Please find an ILADS LLMD.
Posted by Nessa1815 (Member # 15697) on :
Knowing what I know now, and what this has done to my physical health, my relationships, my mental health, I would NEVER just rely on 20 or 30 days of Doxy.
I would make absolutely positively sure it was gone, even if I went overboard trying to do so.
I now live in hell and I wouldn't wish this on anyone.
Posted by METALLlC BLUE (Member # 6628) on :
Sorry chief, but it's got to be 400mg per day and a lot longer. If you need a local LLMD, e-mail me. [email protected]
-- MIke
Posted by tonyg (Member # 16223) on :
You sound just like me. Same time frame as me as
well and same dosage!!! You need stronger dosage.
Trust me, I have not been better and then I was
on IV rocephin for 14 days... help a little bit,
but not longer enough. You are lucky you found this
forum, i wish i did when i was diagnosed. Boost your
dosage, you still have time
Posted by bettyg (Member # 6147) on :
lawrence,
breaking this up for us neuro patients; please do this in future since we can not comprehend or read...thx!
you have LYME NO S on end; named after lyme, conn....i removed all s!
quote:Originally posted by Lawrence:
Just diagnosed with Lyme through the Elisa test by my primary, all physical symptoms of Lyme, some have come and gone.
I started last night with Dox, 2x 100mg for 20 days.
I believe I have had Lyme since April or May or so,
he says since I came back from a long bike ride on June 22, I was so tired and exhausted, good barely make it home,
and that night I was so stiff, he says I must have gotten bit only 7 days before because that's all it takes to show symptoms.
Is 2x 100mg for 20 days of Dox sufficient to wipe this out or do I need to find a LLMD?
Posted by Keebler (Member # 12673) on :
-
Co-infections (other tick-borne infections or TBD - tick-borne disease) are not discussed here do to space limits. Still, any LLMD you would see would know how to assess/treat if others are present.
CONTROVERSY CONTINUES TO FUEL THE "LYME WAR" By Virginia Savely, RN, FNP-C
***** As two medical societies battle over its diagnosis and treatment, Lyme disease remains a frequently missed illness. Here is how to spot and treat it.
Excerpts:
" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."
`` . . .Patients with Lyme disease almost always have negative results on standard blood screening tests and have no remarkable findings on physical exam, so they are frequently referred to mental-health professionals for evaluation.
"...If all cases were detected and treated in the early stages of Lyme disease, the debate over the diagnosis and treatment of late-stage disease would not be an issue, and devastating rheumatologic, neurologic, and cardiac complications could be avoided..."
. . . * Clinicians do not realize that the CDC has gone on record as saying the commercial Lyme tests are designed for epidemiologic rather than diagnostic purposes, and a diagnosis should be based on clinical presentation rather than serologic results.
Attorney General Richard Blumenthal today announced that his antitrust investigation has uncovered serious flaws in the Infectious Diseases Society of America's (IDSA) process for writing its 2006 Lyme disease guidelines and the IDSA has agreed to reassess them with the assistance of an outside arbiter.
And here are some reasons that educated doctors what to be sure patients get early and adequate care when possible and treatment, still, for chronic stealth infections:
This excellent article explains a lot about what chronic neuroborreliosis can do. It also details other chronic stealth infections, such as Cpn - and others - that should also be assessed in all chronic patients, especially those with neurological symptoms.
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