A muscle in my forearm has been twitching every single day, off and on, for the last month or so, since I started Levaquin.
The arm twitching was one of my first symptoms, and was what brought me into the doctor in the first place in the spring, eventually leading to a lyme and bart diagnosis (after all hell broke loose elsewhere in my body). It went away, for the most part, while I was on Doxy/Flagyl.
Now it's back. While not painful, it's driving me insane.
Could this be a herx-like reaction? Any other thoughts? Thanks.
Posted by webmeg (Member # 13647) on :
Hi Julie,
Twitching is my thing with Lyme (never have tested positive for Bart but I always wonder...). I get little twitches throughout the day. Usually in my left hand, or my legs. Big muscles and small muscles will twitch. Annoying!
I twitch in spurts even on abx. Right now I'm only on Diflucan and today I had a noticeable twitch in my left hand.
Hopefully it's a brief Herx thing for you and it will pass.
webmeg
Posted by Just Julie (Member # 1119) on :
Hello, Julie. I'm a Julie too. In the same area you are! Wow. Only, I've been reading/posting on this board for 8 years now . . . I do have a question for you, though.
Do you see the LLMD in this area? I ask, because we have something else in common, besides our first names . . . just a heads up--sorry to sound obtuse, you can private message me (PM) if you wish, and I will elaborate about our "in common" thing. It's not inconsequential, my asking this question . . . let me know.
I'm also a twitcher, it was my first symptom in May 2000 . . . Julie
Posted by Dawnee (Member # 15089) on :
Twitcher here as well. I defintely get MORE twitching when I'm herxing. But so far, they don't go away... only decrease significantly at times. Dawnee
Posted by swedish lyme sufferer (Member # 14579) on :
yes, twitching here too. I get more twitching when herxing, so that might be what you are experiencing! Hopefully it will go away. Posted by Clint31 (Member # 16420) on :
Twitching was my first symptom and it was widespread.
Now it's much different and I still have it. When I started ABx I twitched constantly under the skin in my left calf. It was for 2 straight days and not visible but I could feel my left calf going nuts inside.... it was every 2 seconds for 2 straight days. I figured it was the ABx hitting the bacteria.
Now for the last two days in my right leg under my theigh its been twitching a lot. I also think I've gone back into a herx for the last two days, or at least I hope thats why I'm feeling worse.
Posted by CraigC (Member # 13732) on :
Twitching is also one of my major symptoms. I've been treating for about 8 months now, with such things as Biaxin, Doxy, and now Rifampin. I've never really had what I'd term a herx, unless the twitching can be deemed such. My symptoms have neither worsened, or gotten better. I'm about at the same point I was 8 months ago.
I also use such supplements as B-12, Magnesium, etc. Nothing seems to make the twitching subside. Frustrating, to say the least.
Posted by cjnelson (Member # 12928) on :
Craig
magnesium is great for muscular issues but recently there was some info that bart/blo uses magnesium and may need to be curtailed during tx bc we may be feeding it!
Double check this as it may be wrong LOL!!!
Posted by CraigC (Member # 13732) on :
Hi CJ. I too, heard that very thing about Magnesium. I polled members here about it, and while some said they'd stop taking it, others said you need to replenish the supply that the Lyme has depleted. I made the decision to continue it, but you do bring up a valid point.
Once again, we're all left to guess...
Posted by Julie F. (Member # 15956) on :
I had read that thread on magnesium and bart, and decided to take a few days off my magnesium supplements a couple of days ago. Lo and behold, today has been my first twitch-free day in a month!
It very may well be a coincidence. Or the end of some kind of herx.
Either way, I'll take it. I'm keeping my fingers crossed that it lasts...
Posted by teresambear (Member # 15061) on :
I too am a twitcher. everywhere. Worse during herxing. As far as magnesium goes I take it because I think if Bart feeds on it it will still deplete the body of it in other ways.
Who knows maybe it will bring the little guys out to play. I sure have enough ABX in me to give them a good time.
Posted by cjnelson (Member # 12928) on :
quote: Once again, we're all left to guess...
Often becoming our own guinny pigs (is that spelled right!?!? )
Posted by Julie F. (Member # 15956) on :
Funny. I just happen to be pet-sitting for a friend's guinea pig this week...
Anyways, I have stayed off my magnesium supplements for the past week, just to see what would happen, and I have barely twitched at all since stopping them.
Of course, now I'm worried about starting them again, but also worried about not starting them again (because of Levaquin, general immunity, etc.).
Damned if you do, damned if you don't...
Posted by Pauline (Member # 10000) on :
Twitching like crazy too ever since starting abx, all over... have been twitching on and off for three years since the Lyme started. It's nothing... do yourself a favor and forget about it. Very common with Lyme.
Posted by amyleland (Member # 16178) on :
In the first week of treatment with clarithromycin my arm was twitching like crazy. It's calmed down now (2 wks. later). Before treatment I had frequent twitching of my left eye but that's gone now too. Hope yours goes away soon, I know how annoying it can be!
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webmeg
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