posted 14 August, 2008 10:42 AM -------------------------------------------------------------------------------- Hi I just got back test results from Igenix, my regular md said based on the results that i don't have lyme. SOme bands are positive, and I just wanted to know does this mean I do, or don't have LYme, I just found out Im pregnant, and don't want to worry about Lyme.... the following are the results : WEstern blot IGM all bands Negative EXCEPT 31 + 34 IND 41 + WEstern blot IGg all negative except 31 IND 39 IND 41 ++ I also had some serum test neg ..PLease help do these bands mean lYme or no lyme?? My symptom is muscle achiness last 6 months. thank you so much
Posted by Keebler (Member # 12673) on :
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Remember, a negative test does not mean there is no lyme. The CDC criteria can say "negative" on tests that still clearly indicate lyme is present.
ANY positive band is cause for further evaluation.
And, even with a negative test, a clinical evaluation may find evidence of lyme.
1. Have you recently had an attached tick?
2. Have you EVER had a bulls eye rash ?
3. Symptoms - you say muscle aches past 6 months. Anything else? Sound or light sensitive? Vertigo?
4. Have you been pregnant before so that you might be able to compare symptoms you are having now in regards to pregnancy?
Based upon the test results, I think it would be safest to consult a LLMD as soon as possible.
Be sure to tell them that you are pregnant and how far along so that you might get in for an immediate opening.
I can't say for sure but you should be evaluated by a true lyme expert. Tests are not everything but yours do indicate that a consultation is in order. Co-infections should also be considered.
If you do have lyme, many women have given birth to heathy babies. Of course, as you know, exact medical care is necessary.
This is surely scarey, just remember: Knowledge is power.
International Lyme and Associated Diseases Society
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Posted by Keebler (Member # 12673) on :
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Co-infections (other tick-borne infections or TBD - tick-borne disease) are not discussed here do to space limits. Still, any LLMD you would see would know how to assess/treat if others are present.
CONTROVERSY CONTINUES TO FUEL THE "LYME WAR" By Virginia Savely, RN, FNP-C
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As two medical societies battle over its diagnosis and treatment, Lyme disease remains a frequently missed illness. Here is how to spot and treat it.
Excerpts:
" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."
`` . . .Patients with Lyme disease almost always have negative results on standard blood screening tests and have no remarkable findings on physical exam, so they are frequently referred to mental-health professionals for evaluation.
"...If all cases were detected and treated in the early stages of Lyme disease, the debate over the diagnosis and treatment of late-stage disease would not be an issue, and devastating rheumatologic, neurologic, and cardiac complications could be avoided..."
. . . * Clinicians do not realize that the CDC has gone on record as saying the commercial Lyme tests are designed for epidemiologic rather than diagnostic purposes, and a diagnosis should be based on clinical presentation rather than serologic results.
- FULL ARTICLE AT LINK ABOVE.
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Posted by Keebler (Member # 12673) on :
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AFTER reading the Savely article (link above) this will make more sense - it explains why some doctors are in the dark if they just blindly follow the IDSA (but nothing explains why some choose to stay in the dark).
Attorney General Richard Blumenthal today announced that his antitrust investigation has uncovered serious flaws in the Infectious Diseases Society of America's (IDSA) process for writing its 2006 Lyme disease guidelines and the IDSA has agreed to reassess them with the assistance of an outside arbiter.
I don't know how it happened, but you have 3 nearly identical threads all current as of today.
So that you'll have all your answers in the same place and people don't unduly spend time posting answers others have already given,
Would you please delete the this thread? Just go up to the icon of the empty page and go into edit mode. Click on the Delete box and then click onto edit post.
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Thanks. this will keep it streamlined for you and everyone else.
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For doctor suggestions:
This is Moongirl's thread in the "Seeking Doctor" forum:
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