thank you, barb
Posted by feelfit (Member # 12770) on :
Barb,
I did IV doxy for a short while. I was rx'ed 200mg w/ an IV run time of one hour. I think that the IV is more potent than the 200mg oral form.
feelfit
Posted by lightfoot (Member # 2536) on :
Hi Barb
I started with 100 mg IV twice a day and then graduated to 200 mg IV twice a day with a one hour run time.
I never decided which of the severe symptoms were a herx or side effects but after about three months I emerged with positive benefits.
About midway through the doxy.....I went to pulsing as a means to better tolerate the effects. I finally had to give it up.
Since I tried oral doxy several times and could not tolerate it, I thought the IV route would be a breeze. It didn't turn out that way......I had some of the same side effects.
BUT I am very glad I did persevered as it did help.
Good luck!!!
Posted by barbarame (Member # 16423) on :
thank you,
I infuse 100mg in am and 100mg in the evening.
Did it cause stomach issues for anyone?
barb
Posted by lightfoot (Member # 2536) on :
I did have some stomach Issues. Are you having them??
Posted by barbarame (Member # 16423) on :
Yes indeed. I have been on it for 14 days along with zithro and mepron.
I was told from my LLMD that they could prescribe something for me.
barb
Posted by lightfoot (Member # 2536) on :
I was on zith and plaquenil at the same time.
I used Malox with some relief.
Hope you can get some relief!!!
Posted by jocus20 (Member # 11576) on :
Im about to start IV doxy 100 mg 2x a day. Right now im on mepron and biaxin. Hopefully this is a good combo.
Posted by fatigued15 (Member # 6437) on :
My daughter is on IV Doxy 200mg once a day. It infuses over 2 hours. She has had dramatic improvements with this.
Posted by njgirl14 (Member # 14174) on :
you can get iv doxy? there is a shortage and my iv co told me today they still can't get it.
where is it available?
Posted by barbarame (Member # 16423) on :
THe company that I use has said the same thing so I am not sure after the one month what I will be using.
There is a private pay company that is not having a problem with getting IV doxy. That is with Dr. R in NYC office.
barb
Posted by lymecaregiverNY (Member # 13287) on :
FYI
Be very,very careful using I.V. doxycyline.
IV. doxycyline is known to be caustic.
My wife was treated with I.V. doxycyline for Lyme meningitis.
During the course of the therapy the medication caused severe burns and inflammation in some of the veins in her body.
The highly experienced LLMD, that prescribed the medication, refused to admit that the I.V. doxycyline caused the problem.
We knew better.
The hospital ran an ultrasound scan and that scan did show major inflammation in her veins, but only near where the I.V. was flowing into her body.
The pain from this injury looked like a major heart attack and that is how she was treated when the ambulance came to the house.
In addition she developed a blood clot that necessitated she stop therapy and start a blood thining medicine called coumadin.
For many weeks thereafter we were fearful that the blood clot could break loose and cause sudden death.
The coumadin did eventually clear the blood clot.
All of this was roughly one year ago this month.
The I.V. doxycycline medication did suppress the disease for a time but the meningitis symptoms are coming back now.
This is the kind of dangerous side effects that the infectious disease ducks talk about with long term antibiotic use, and why they do not want to treat in this way.
However, when you've got a serious life threatening disease like Lyme or any of its co-infections, you have no easy options.
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