First, has anyone gotten any new news on what is happening with the case in Connecticut against the IDSA? I saw a brief write up on the LymeDoctor site. ANYONE????
Anyway, I ran into a friend the other day who is a nurse. It turns out she is working for the Infectious Disease Specialist who told me I do not have Lyme even without a full exam. The doctor told me I needed to stretch more. I was ****ed! Anyway, I told my nurse friend I thought this doctor was clueless.
Anyway, I was talking to my friend, the nurse and was explaining my case. She asked why they didn't just give me abx for three weeks to see if I responded. I tried to explain that may not be enough. She never even heard of co-infections.
So, I have been trying to gather info. to send her to give her a little education since she seems willing.
Anyone have any good links?
Thanks!
[ 05. October 2008, 06:24 PM: Message edited by: richedie ]
Posted by adamm (Member # 11910) on :
Sweet!
lymeinfo.net lymecryme.com ilads.org
Posted by Keebler (Member # 12673) on :
CONTROVERSY CONTINUES TO FUEL THE "LYME WAR" By Virginia Savely, RN, FNP-C
*****
As two medical societies battle over its diagnosis and treatment, Lyme disease remains a frequently missed illness. Here is how to spot and treat it.
Excerpts:
" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."
`` . . .Patients with Lyme disease almost always have negative results on standard blood screening tests and have no remarkable findings on physical exam, so they are frequently referred to mental-health professionals for evaluation.
"...If all cases were detected and treated in the early stages of Lyme disease, the debate over the diagnosis and treatment of late-stage disease would not be an issue, and devastating rheumatologic, neurologic, and cardiac complications could be avoided..."
. . . * Clinicians do not realize that the CDC has gone on record as saying the commercial Lyme tests are designed for epidemiologic rather than diagnostic purposes, and a diagnosis should be based on clinical presentation rather than serologic results.
- FULL ARTICLE AT LINK ABOVE.
Co-infections (other tick-borne infections or TBD - tick-borne disease) are not discussed in the Savely article due to space limits. Still, any LLMD you would see would know how to assess/treat if others are present.
===================== =====================
`` . . . the immune system does not begin to repair itself until the beginning of the fourth month of antibiotic treatment. . . . ``
Attorney General Richard Blumenthal today announced that his antitrust investigation has uncovered serious flaws in the Infectious Diseases Society of America's (IDSA) process for writing its 2006 Lyme disease guidelines and the IDSA has agreed to reassess them with the assistance of an outside arbiter.
You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. One of the top labs is:
The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.
- 2/3 down the page, you can download Guidelines for the management of Lyme disease
This excellent article explains a lot about what chronic neuroborreliosis can do. It also details other chronic stealth infections, such as Cpn - and others:
- see top tabs all across the top for research, handbook, etc.
-=
Posted by richedie (Member # 14689) on :
Wow, thanks. Where do you find so much info?
I was looking for something that talks about the life of borrelia bacteria and how from a scientific basis that based on science, this bacteria needs to be treated long term. I have this in writing, written by a local Lyme doc but nothing on the net.
Posted by bettyg (Member # 6147) on :
look for dr. brian fallon's work published in 2007.
do a search for it using the top and his name in subject line; check medical!!
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by adamm: Sweet!
lymeinfo.net lymecryme.com ilads.org
Hey adam... people are inherently "lazy"... if you'll type your info as links, they will be much more likely to actually check out the sites.
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