I think a large component of neurologic lyme disease reflects the inflamatory response of the immune system trying to fight off the bacteria. The inflamation (via cytokines and interleukins) then leads to the majority of the neurologic symptoms. Is there anything that you've tried to reduce the overall inflamatory response that has been effective?
Posted by oxygenbabe (Member # 5831) on :
Car T-Cell from Douglass Labs.
Posted by Vermont_Lymie (Member # 9780) on :
I just recently started taking Wobenzym N tablets. Working my way up slowly from a couple each day to more.
Wobenzym N claims to have an anti-inflammatory effect through its enzymes. So far, it does seems to be having a pretty good effect for me, and I am still at a fairly low dose.
I have been wondering recently if the neurological effects of lyme are mainly from the Bb invading and damaging brain cells (of all types); or rather if the neurological symptoms are caused by the reduced blood flow to parts of the brain, secondary to the Bb's effect on capillaries.
If the neuro symptoms are caused more by the lack of blood flow than through other mechanisms, that might explain why enzymes like Wobenzym might be helpful. I don't know, and am interested in what others think about this.
Posted by luvs2ride (Member # 8090) on :
Dr Blaylock says inflammation is at the core of almost all illness.
Increasing your glutathione levels is one good way to detox which eliminates inflammation. Eating cruciferous vegetables like brocolli, brussel sprouts, cabbage, cauliflower, asparagus, garlic, onion all increase the glutathione in your body. NAC supplementation also increases glutathione as does whey powder. I also take glutathione suppositories which work wonders for me. I am genetically deficient in glutathione.
Wobenzyme is supposed to be very good at clearing immunocomplexes from our joints thereby decreasing inflammation.
Tumeric, Quercitin, garlic, Vit C, Vit D3, Magnesium supplements help. Rebounding is a great way to move the lymphatic system.
I had horrific inflammation in all my joints when I first fell ill and detoxing through the above methods all gave me back my life.
The things I could feel helped the most were #1-diet #2-glutathione (first IVs now suppositories) #3-Vit D3 #4-Magnesium
Of course drink lots of water and avoid foods that cause flare ups. When we are sick, we develop food sensitivities to the foods we eat most. No way to know for sure except by bloodtest or elimination diet. Bloodtest is quicker and easier.
Getting rid of inflammation should get rid of most of your symptoms. It sure did for me.
Inflammation in your brain will cause the brain fog of lyme. Inflammation around your heart causes the palpatations of babesia. Inflammation around your organs like your liver causes liver enzymes to rise, etc.
Posted by minimonkey (Member # 8693) on :
A very, very low carb diet works wonders for me with inflammation
Posted by yanivnaced (Member # 13212) on :
niacin seems to work for me. I take some every time I get a tension headache, and feel like my head is inflamed. Works as well as tylenol for me.
niacin dilates capillaries, increases blood flow, and therefore probably reduces inflammation.
Posted by seibertneurolyme (Member # 6416) on :
If you are talking about brain inflammation then I think there are 2 approaches and both are necessary.
As someone else said -- increase bloodflow to the brain. Prickly ash extract can help with this. Also heparin. Herbs such as gingko or vinpocetine (periwinkle). Systemic enzymes (wobenzyme, Vitalzyme or lumbokinase or nattokinase etc) will help with peripheral circulation -- which indirectly would probably benefit the brain.
2nd strategy is antioxidants which cross the blood - brain barrier. Vitamins C and E and especially CoQ10. Also don't forget the good fats.
Luvs is also correct in that a leaky gut must be addressed or any allergies or food intolerances. Brain lesions can even be caused by celiac disease.
Also if brain inflammation is severe then quinolinic acid which is a neurotoxin could be a factor. Per the Healing Lyme book resveratrol blocks this alternative pathway which converts serotonin precursors to quinolinic acid.
There are many things which are toxic to the brain such as elevated homocysteine that need to be addressed.
This is not medical advice, just my opinion based on hubby's experiences.
Bea Seibert
P.S. In my opinion heart palps from Babs are more likely a result of a disturbed nervous system than actual inflammation around the heart. For hubby this symptom is tied into disturbances of the vagus nerve.
Posted by Lauralyme (Member # 15021) on :
This is a great thread. I've been on treatment for a year and only now learning that the degree of inflammation determines the severity of the herx. Bumping up for more
Posted by Lauralyme (Member # 15021) on :
Luvs where do you buy glutathione suppositories?
Posted by 'Kete-tracker (Member # 17189) on :
I think you hit the nail on the head; the immune system's inflamatory response... "Get those buggers Push that blood (with killer cells) IN there.. Attack!"
I HAVE found 1 curious & somewhat pricey non-steroidal anti-inflamatory that works pretty well to combat internal inflaming... DayPro (oxaprozin)
A neurologist, of all people, recommended it & wrote a script. Great for inflammation from tumble injuries, too. But U need food w/ it as it does upset the tummy Some. 1 pill lasts 4-6 hours.
Posted by luvs2ride (Member # 8090) on :
Lauralyme,
I get mine from my doctor, but here is a website someone posted awhile back that sells them.
I have no idea how they compare. Mine have no information on them whatsoever.
Luvs
Posted by paulieinct (Member # 17514) on :
MY LLMD suggested Wobenzyme, not for inflammation, but to dissolve the biofilm surroundin Bb colonies, making them impervious to attack by abx and immune system.
I am taking 5 or 6 capsules a day. After a week, I experienced severe joint pain all over. Could be herx, but I also had stopped Celebrex at about the same time, so hard to say what caused what. I certainly didn't feel any anti-inflammatory effect from Wobenzym.