looking for some insight here..going to where the expreience seems to be..this site!!
first appt with LLMD is next week. i see my nero this friday for f/u. he is one who dx. lyme and started me on doxy.
his nurse says more people have this than you would think and can be chronic (learning that)
i started doing my on research when got dx. and am very grateful to have found this site..so much good info..even answered one quest. NO doc could about severe pain in my head during MRI..im not alone..
so..if neuro is kinda aware of lyme what would be my chances of getting him to work with LLMD to
coordinate care?? will LLMD do this??
have many neuro issues ..matter of fact they were sure was MS at first...nope is lyme
any suggestions would help. dont know if going in there with books, other docs research and my own research would help or just think im crazy..
thanks to all who read and offer any advise..this site has really helped me to find LLMD as well as finally make "sense" of the different things that have been going on medically for years now..now it all makes sense and i am hopeful...god bless you and yours
Posted by seekhelp (Member # 15067) on :
You may get lucky and have an understanding, willing neuro. However, most regular neuros despise LLMDs and have no respect for them. In fact, most general doctors look down on LLMDs and consider them to be quacks. That's my experience with the 20+ docs I've seen. It's a taboo topic.
They have the impression these LLMDs are all in it for the big $$$ and treat irresponsibly. I was told that on several occasions. I was told they prey on the sickest. I hope you have better luck than me.
Posted by Wimenin (Member # 15294) on :
Ive experienced this first hand, and the answer isnt good. The odds of your neuro, hmo dr working together with a llmd is pretty rare. Its like kids who wont play nice together. If the neuro hmo drs disagree with the llmd finding adn treatment methods, youre on your own. Most neuros and hmo drs stick to cdc standards, and sicne those standards are wrong, they wont support the llmd wanting more aggressive treatment.
If youre lucky enough that theyll work together, consider yourself blessed. But the reality is that its like oil and water...it doesnt mix.
Posted by MY3BOYS (Member # 17830) on :
thanks for the insight...ill just say a prayer, be cautious in what i say and see what happens i guess... thanx
Posted by tracisuzanne (Member # 14105) on :
Just wondering what "tipped the scale" so to speak and got the neuro to definitely diagnose lyme?
Many people on this forum refer to MS as the same as lyme, or just one of the symptoms of lyme.
For your neuro to diagnose lyme, not MS, he/she must believe that your MS is being caused by lyme, so the official diagnosis is lyme, right?
I've been to 2 neuros, who I didn't like at all. 1 says "probable MS, but it really doesn't look classic" and the other says "yes MS"....both say lyme doesn't exist in N. Carolina or it's bulls**t.
I would love to link up w/ a neuro who is open to the possibility of lyme. Then, it's more likely my insurance will cover some of it.
Right now, my LLMD is based out of an Integrative Medicine office, and insurance does not recognize them.
Posted by MY3BOYS (Member # 17830) on :
thanks to all...went to appt and is open to me going to LLMD !!!