I have had every test in the world and almost all of my parts removed-
This includes Hysterectomy, gallbladder and appendix.
Multiple CAT and MRI's to no avail?
Right now I am in so much pain and it would be nice to know there is someone else that also experiences this?
Posted by sutherngrl (Member # 16270) on :
I have right upper abdominal pain that comes and goes. have had my gallbladder checked, had 2 CT scans, nothing showed up. I think mine is inflammation caused by LD.
Posted by astriapage (Member # 17120) on :
Thanks sutherngirl for your reply-It has been really bad for about 4 days now-I would give anything for it to go away!
Posted by randibear (Member # 11290) on :
i've got this too, and now it's left side.
had every test known to man, and a few that weren't, and all normal....
diagnosis -- chronic and severe ibs!!!! gave me hycosamine, which helps a little....
seems to come and go....
Posted by jamieL (Member # 16563) on :
I've a had a pain on my left side for about ten years that comes and goes. Hmmm. Always thought it was appendicitis or an ovarian cyst. I've been tetsed for both several times but the tests have always been negative.
Posted by sammy (Member # 13952) on :
I have episodes of R lower quadrant abdominal pain. It was the very first symptom I got. I thought that I was having an appendicitis but I was home alone and couldn't get to help so...
The pain is so severe, sharp, it completely immobilizes me and I pass out (literally) for a couple hours.
After the episode I feel like i've been run over by a truck so weak and tired and very sore. The soreness lasts for several days after.
Happens out of the blue with no warning about once a month.
I've had a ton of tests and seen alot of specialists, even Cleveland Clinic said that my case was "too difficult" so they referred me on to another specialist with "the most experience".
He diagnosed me with "severe gastroparesis" and "functional vagal neuropathy". Several of the test results were abnormal so they say that might be the cause of my pain but since they have no idea how to treat it at all i'm just kinda stuck with it.
So, with all that said, i'm sorry to hear that you have pain troubles too. Hopefully there is a more simple diagnosis and treatment for you.
Posted by astriapage (Member # 17120) on :
Is it possible it is from the Lyme-I often see it on the symptom list?
Posted by Parisa (Member # 10526) on :
Astria,
Someone posted a summary of all the doctors who presented on the Lyme conference. There was a doctor who was studying/treating pelvic pain and Lyme.
Posted by Parisa (Member # 10526) on :
Okay, here it is. The summary was prepared by Dr. Owen.
Deborah A Metzger PhD MD specialises in Chronic Pelvic Pain (CPP) which is an intractable and incapacitating symptom for some women. CPP is known to be associated with various inflammatory conditions and infections and Metzger considers that Lyme disease is a very important association. Her experience in treating this difficult group of patients with various types of therapy was discussed.
Posted by Connie Reese (Member # 15615) on :
Randibear....Hycosamine has helped my stomach pain also..Mine is called Hyomax-SL.0.125 mg. One under the tongue every 6 hrs. for pain. same thing..dx'd with lyme in April of this year. Just putting out lyme fires as I go along..need a dr. prescription for it..Connie Posted by cactus (Member # 7347) on :
Astria - are you me? ...I could have written that post. This has been one of my very worst symptoms.
What has helped the most - after all the surgeries, all the MRIs, all the CT scans, all the GI workups and colonoscopies, etc - was getting tested for dysbiosis of the gut.
I used Diagnos-Techs labs, but there are other places who do similar tests.
Turned out that I had an overgrowth of 7 different species of gram neg and gram pos bacteria in the gut.
Getting those treated has been a huge help.
I still have more to go, have some more parasite issues that need to be addressed... but the difference so far is astounding.
Wish I'd known this was a possibility pre-hysterectomy at age 28! [Ironic sigh] ...Regardless, it's a miracle to be mostly free of that type of pain now.
I hope you find relief soon. If you want more info about what I tried, you're welcome to ask or pm me.
Posted by gemofnj (Member # 15551) on :
At my LLMD visit this week she said that spirochetes go where there is scar tissue and previous injuries.
Could that possibly be it? If you have had surgery and there is scar tissue. Im wondering if thats what she meant.
Posted by NMN (Member # 11007) on :
I had abdominal pain and IBS for about 10 years and then quinalones completely cleared it up.
Digestion has never been better since being n treatment. My LLMD said he had a 23 year old patient with IBS and after starting doxy for lyme it totally cleared up too.
Theres a lot of talk about how bad antibiotics are for you digestion and Bowel. There are also positive effects it seems.
Posted by astriapage (Member # 17120) on :
Hey Guys!
I have had numerous surgeries here-
2 exploratory laporoscopies
1 hyserectomy
1 appendix out
1 gallbladder out
So I guess that is enough to build up scar tissue?
I also have had alot of trouble with my breastbone after my open heart-like the spiros have attacked that also-
The surgery was late May though so I guess they have just not had time to flourish?
Thank you guys so much for all of your replies-makes me feel so much better to know I am not alone?
Posted by MY3BOYS (Member # 17830) on :
had severe abd. pain too years ago, got the dont know what it is so lets call it IBS..now am sure was related to lyme- just diagnosed with lyme recently...librax helped me then.
for me personally, found that librax helped and then was able to work out on reg. basis-- found that helped SO much and got things to work better in the gut, once gut started working better pain got less then stopped--no more librax needed
now that i am sicker, not working out, GI stuff coming back, willing to bet regular doc would not coordinate the two but i know my body and know that this is way it is responding to what is going on ...dont know if that will help you mcuh
librax did help get rid of the "stabbing" pain i would have on left side mostly for me.
also went through exploritory lap as part of the work up, scans, scope, etc. no real significant findings. did have ovarian cyst at one point that ruptured on its own--pain did not stop so was not "causing" the pain
Posted by hshbmom (Member # 9478) on :
Possible ileo-cecal valve dysfunction due to nerve damage or inflammation (Lyme-induced)?
This valve should prevent back-flow from the colon in to the small intestine...big problems if it doesn't function correctly.
It sits right across from the opening of the appendix...lower right side of your abdomen.
Some folks massage this valve. Look up the valve + massage for a description of the technique.
A lady at the local health food store told me about it recently and it makes perfect sense, especially when you know that Lyme can cause nerves not to function right.
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