There is a local alternative clinic that offers them, as well as Vit IV's, but they won't let me just come in and pay to get the IV Glutathione.
I would have to have an initial consult with the doctor, which costs $550. I don't think so!
I just want to "try them" to see if they even help me detox and get through these herxes. Not worth a $550 consult with a Naturopath just to try these things.
My local GP is really really nice. Can doctors just "order" these, and then I could maybe go to the hospital to get the infusion once she orders it? Because I'm sure she wouldn't do that sort of thing in her office....she is a GP but also an OB/GYN. So then where do I go to get them?
Or can my LLMD (who is a plane ride away) order these, then I get the infusions at a local hospital or something?
Are there alternatives? I just think I need to do something drastic to help my body detox if I have any prayer of handling some of the meds I might be scheduled to start soon. Not to mention how horrible I already feel on my current meds. Something like this is worth a shot I think.
Posted by Tonglen (Member # 18472) on :
Any md can prescribe them. If the md is affiliated w/a hospital, you may be able to have the infusions done there. You will also need a source of glutathione as I don't think they are standard in hospitals. A compound pharmacy can make up the ivs for you (500-2000 mg glu in normal saline, preservative free if you have mcs).
Posted by Rianna (Member # 11038) on :
I am on IV 1200mg every other day and 2 months supply is $194.89
It is a liquid Glutathione that you keep dark and in the fridge and you mix it with equal parts saline.
If you do not have a PICC in then they also do a nebulised glutathione that is excellent
Rianna
Posted by Hoosiers51 (Member # 15759) on :
Thanks for the info Rianna. I hope my local doc and/or my LLMD would not be opposed to trying this. If they are, because they might be.... (i don't have a picc)........
I have had really bad experiences breathing in oxygen from masks (old LLMD had me doing it)........it made me really really sick. Wonder if the nebulizers would have this effect too (i.e., if they use oxygen to push the glutathione out).
So if I don't do IV, anyone have an opinion on if natural forms of increasing glutathione, such as consuming whey protein, are just as good for detox as the IVs?
Posted by jen30 (Member # 17745) on :
Hoosiers,
If you actually do research on glutathione the undenatured whey protein isolate is the only way that helps your cells make the glutathione naturally. There is research that states that if you just take glutathione it doesn't do very much good. Your cells need the precursors to make it naturally. The cysteine in the undenatured whey is what the cells need to produce more gluathione. Do some research on Immunocal. It has like 7 patents and I do believe it boosts intracellular glutathione by like 30 %.
Posted by djf2005 (Member # 11449) on :
honestly the best form of glut is IV.
do some searches i have posted this info many times before.
from drs offices and any other clinic, a glut push (2g) is 50-60$.
i got my drs nurse to sneak me the info so here it is.
infuserve america.
they will give you 2g pushes with the butterfly you need to infuse for 12$ per push.
thats 36$ a week, 150$ approx a month.
the other forms are NOT utilized nearly as well as IV and research will show this.
i have been using infuserve's glut for 8 months now and its a great herx reducer/blood cleanser/detoxifier.
i would recommend you pursue this.
you will need a rx from your dr, they will then send the products to you.
you will need someone (yourself if you are knowledgeable) to infuse the product.
good luck. oral and nebulized are maybe 25% efficient compared to this.
infuserve can be reached at 800-886-9222
derek
Posted by Tincup (Member # 5829) on :
Quick note- You said..
"I have had really bad experiences breathing in oxygen from masks (old LLMD had me doing it)........it made me really really sick. Wonder if the nebulizers would have this effect too (i.e., if they use oxygen to push the glutathione out)."
PLEASE don't do nebulizer then!!!! Some folks DO have problems.. especially if they have breathing problems.
Otay?
PS...
They can also be made into suppositories. Have IV at your docs office.. then use them in between visits. Need to be made by a compounding pharmacy.
Posted by Rianna (Member # 11038) on :
quote:Originally posted by djf2005: honestly the best form of glut is IV.
.
I Totally Agree
Rianna
Posted by Hoosiers51 (Member # 15759) on :
Thanks for the info.
Is it hard to learn to infuse myself (I don't have a picc, so I guess I would have to inject myself, or my husband would? I'm assuming that is hard)?
So if I can't do it myself, I'm assuming I would have to take the prescription to the hospital, and if insurance doesn't cover this "service", I would have to pay not only for the medicine itself, but to actually have the nurse infuse me?
Wonder how expensive that is......
There is a guy that lives in my apartment building that works on an ambulance (EMT?).....wonder if I could pay him to come over and do it for me every other day if I order the supplies?
Posted by jen30 (Member # 17745) on :
Hope I didn't offend any IV glut users! :-0. Maybe the article I read was referring to oral glutathione. Anyway, best of luck.
Posted by Hoosiers51 (Member # 15759) on :
Hi jen....actually i didn't even notice your post when I scanned this earlier...i must have been really tired! Thanks for the info.....I will do a little research.
Posted by djf2005 (Member # 11449) on :
i would not suggest you do it yourself at least not at first until you get the proper training.
being careful not to inject air into your vein is crucial. the idea is relief, not instant death
get a friend who is a nurse or find a friend who knows one and get them to do it for you.
every nurse has been trained in fleubotamy (sp) and will know a bit better how to do it than you.
take the push, pull the cap off, hold it upright, and push the little bit of air out of it.
take the butterfly, connect to the push, and then push the glut (syringe facing up still) out of the end of the butterfly needle.
inspect the syringe. no air bubble, and glut all the way thru the butterfly line, good to go.
pop a vein, inject over 5 min.
again, get someone trained to do this. the hospital will not accomodate, a lyme compassionate dr may. best bet find someone who is trained and will help you out.
paying a nurse 10$ 3x week is a much better alternative than a picc line.
good luck, it is a great means of detox
derek
Posted by Hoosiers51 (Member # 15759) on :
I have a sympathetic local doctor who has offered to give me B-12 shots in her office. From what you describe, this sounds like something that could be performed relatively easily, in a similar manner (though this goes into a vein, not muscle, etc). So maybe this MD's nurses could do this for me a couple times a week if I roll by their office?
It sounds like it takes 5 minutes. Would the nurse have to stand there with me for the whole 5 minutes to "push" the syringe? I am thinking if they get it started for me (get it set up, find the vein, and stick the butterfly in), maybe I can do the rest so they don't have to stand there the whole 5 minutes?
I didn't realize this was something that did not require a pole and an IV bag, etc.
So maybe this IS do-able, if i print up tons of research and take it in to her, along with a letter from my LLMD, maybe she'll agree.
Thanks for helping me think this through...I just didn't realize what it entailed.
If anyone has a good article on hand, feel free to send it my way.
Posted by luvs2ride (Member # 8090) on :
Hoosier,
Glutathione IVs saved my life and I highly recommend glutathione. Lucky for me, both doctors I have worked with do IV glutathione.
The doctor I am currently working with has recently started me on suppository glutathione. She told me direct that it is as good as IV because you absorb so well through the rectum.
You can get these without a prescription. I buy mine from her office and it may be possible you could order them from her as well. I don't know about that.
Here is a website that someone else posted. I have not used their suppository and because my doctor's come in a plain white casing with no mfgr or ingredient information, I have no way of comparing the two.
The ones on the web are $30 cheaper than my doctor. It would be worth a try. My doctor recommended 1 a day but said lots of her patients only do 1 every 3 days because of cost.
I am doing 1 every other day and really feel it helps.
IV is the best but I am about to try rectal--Designs for Health pure glutathione powder in distilled water, rectal administration (10 cc water) and hold. I've been told it absorbs well that way, for in between trips to the doc's. I am going to try it once I get the syringes (I bought the glutathione).
Posted by mandy614 (Member # 16524) on :
Derek or anyone else around...can you please help?
I ordered the IV glutathione from infuserveamerica. Now what do I need?
Needles what size? Syringes what size? Butterfly line?
I'm planning on getting a nurse but I have to provide all supplies?
I have no clue what I'm supposed to get!
Thanks mandy
Posted by tdtid (Member # 10276) on :
Mandy,
I too use InfuserveAmerica, but I already have a port in.
But I do know that we get ALL of our supplies from Infuserve as well, so if you are unable to locate everything you need, you should be able to go back to the company and get it from them.
We get a monthly supply sent from them with all IV meds AND supplies.
Good luck in finding what you need and let us know how it goes.
Cathy
Posted by feelfit (Member # 12770) on :
Mandy and Hoosiers,
Some answers for you.
Mandy, I get my Glutathione from Infuserve as well (thank you Derek). You need to call them and tell them that you need the butterflies. These are very inexpensive like .12-25cents apiece. Then you are good to go. You will need alchohol wipes too, but you can get them at Wal-Mart.
Hoosiers, I would definately get the push done by someone experienced. My local PCP allows me to bring in my Glutathione and butterfly and the Nurse infuses me...The drawback? they charge 25 dollars per push.
On the other hand a IV push from a doc who supplies everything is usually 80-120 dollars per push. So you can save some bucks arranging things yourself.
An IV push is WAY different than giving an IM B-12 shot....that is fairly easy to do and can easily be self administered.
Hope that this helps you guys!
Feelfit
Posted by feelfit (Member # 12770) on :
Mandy,
Did you glutathione come already mixed and in a very large syringe? If so, all you need is the butterfly. It comes with the needle attached to it.
Feelfit
Posted by mandy614 (Member # 16524) on :
Thanks feelfit and Cathy,
I just called and ordered all the supplies. Now I just need to find someone to give them to me!!
Thank you mandy
Posted by feelfit (Member # 12770) on :
it should make you feel better if anything. I have not had any adverse reaction after 3 pushes.
You don't herx from them as far as I know.
Feelfit
Posted by mandy614 (Member # 16524) on :
I'm really frustrated! Since my LLMD is in CA, no home care agencies will come in and do the IV Glutathione for me. I have a dr order they just wouln't accept out of state.
Also, just moved back here to MD so I saw the PCP once, do not have medicaid yet and he basically told me to go see an infectious disease dr for this. He's not a believer and doesn't want the hassle.
I've tried friends of family who are nurses and all are concerned of liability.
I was told by a home health care nurse I'd have a hard time getting someone to do it. She also said the bubbles in the vein a myth so I'm thinking I could get a family member to do it?
Does anyone do them themselves or with help from someone not qualified?
I'm desperate. I'm on so many drugs that I'm tempted to stop everything. Any suggestions on how to get this done?
Thanks Mandy
Posted by springshowers (Member # 19863) on :
Hi.
I realize you need a script for the IV Gluth. I was wondering has anyone run that script through insurance or would it be for sure rejected?
From what dj says here it is not that expensive.
Looks like InfusaAmerica is where alot of you get supplies as well.
Are there any other places that anyone recommends?
I started a new thread asking this too so i apologize for the redundance. But maybe it would be good to have a thread dedicated to it because upon my search I really did not find any thread like that.
Thanks
Posted by springshowers (Member # 19863) on :
Also.. Are there any other suggestions of things you can put into your IV that supports Detoxification.
I want to ask my doctor about the Gluth for sure and was wondering if there might some something else that might help.
Since I have a port and treating direct that way seems very advantagous i would like to get this support now.
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