Can others tell me if they experience this? I'm not sure if this is part of Lyme or something else going on.
I have days (more so recently) where it seems my eyes and brain aren't in sync. It feels almost like how you feel when you've been drinking and your eyes lag behind your brain or vise versa, if that makes sense.
Along with this, I also feel a pressure, almost like an imaginary band wrapped tightly around my head.
It scares me and wondering if others experience with as a result of Lyme too.
Any input would be appreciated. Thanks!
Rachellemarie
Posted by disturbedme (Member # 12346) on :
That's a very common symptom, the head pressure. I have head pressure a lot and it causes a lot of my other symptoms too. What I mean by that is, whenever I have head pressure I also have very sensitive hearing. Whenever I don't have the head pressure, I usually don't have the sensitive hearing that day either. So it seems connected in some way... at least for me. May not be that way for everyone, of course.
I haven't had the eye-brain symptom before, until yesterday!!! I felt like I couldn't keep my eyes on one thing, they felt like they were all over the place. It was hard to focus on someone I was speaking to. Very weird and scary.
Posted by rachellemarie (Member # 16419) on :
Yes, I agree. When I have the head pressure, my eye symptoms/sensitivity is also worse. I don't have hearing sensitivity, mine seems to be mostly with my eyes.
Wow, that is strange I brought this topic up about the eye-brain coordination, and you just happened to experience it yesterday for the first time. I've noticed that if I lie down and keep my eyes closed for 20+ min., it helps. When I keep focusing/doing computer work etc, it makes it worse and then can turn into a headache.
Posted by sutherngrl (Member # 16270) on :
I have this same thing lately, but mine is worse when I am tired. Really noticable at night. My eyes actually hurt like the eyeballs are swollen. It also happens first thing in the morning along with an awful headache that gets better once I get up and moving.
Posted by lovingattitude (Member # 17569) on :
I have been struggling with eye-brain coordination for two years.
I have lyme/babs and had hallucinations/cognitive symptoms 1 week following the tick bite and "flu".
A vision therapy specialist has diagnosed me with visual midline shift syndrome and post trauma vision syndrome.
My vision often remind me of being drunk. Objects appear to be moving slowly.
My brain thinks the center of my body is lined up with my left eye.
It is worse when I am tired.
My brain is telling both my eyes to look outward. This makes it hard to focus. My eyes bounce around and it is very hard to read.
My eye doc says he is seeing this in patients with neuro/chronic lyme.
My LLND also says that neuro toxins can cause visual symptoms.
I take chlorella to eliminate neurotoxins. I wear prism glasses for the midline shift. I do eye exercises for eye control/convergence.
Hope that helps!
Posted by lovingattitude (Member # 17569) on :
oh yeah,
I also get really bad headaches, especially if I try to focus too much....
like trying to read, work on the computer...
My eyeballs will also hurt. Like the muscles that control them.
My vision is worse when I have the pressure headaches as well.
Posted by rachellemarie (Member # 16419) on :
Thanks all...you've described it too exactly how I feel it. Glad to know I'm not going crazy!
I'm going to Germany in February for photon treatment and hope this helps this along with my other symptoms.
Is there anything (detoxing??) others are doing that helps with the eye/brain disconnect feeling?
Thanks! Rachellemarie
Posted by lovingattitude (Member # 17569) on :
I was originally given Questran (cholestyramine)to help detox but my gut couldn't handle it.
I know Dr. Shoemakers website has some info about detox and the visual contrast sensitivity test.