really shaky, spacey and feel like your floating in a cloud? Its horrible. I feel like my heart is racing but it isn't. Is that weird or what? Is it just from neuro lyme?
Nancy
[ 01. January 2009, 06:11 PM: Message edited by: Nal ]
Posted by janis1023 (Member # 15942) on :
It sounds horrible!
A dear friend of mine with Lyme has fallen twice and broken bones due to exactly thay kind of feeling.
Please be careful!
Fortunately I have not.
Jan
Posted by Nal (Member # 6801) on :
Its like brain fog. Thats the only way I can describe it. I also have a horrible cold right now and thats not helping. Sometimes I just want to give up. Last week I actualy prayed to God to just end it here and now so I wouldn't have to suffer anymore. I cant take it.
Posted by bettyg (Member # 6147) on :
nancy,
so sorry to read this...
also, you'll get more readers if you make it a COMPLETE subject line and add your comments ...
"shaky, spacey & like your floating in a cloud?
just edit by clicking on pencil to right on your TOP post, and you can add more comments to subject line.
then you've hooked those with identical problems who can their experiences and suggestions for you. best wishes. Posted by AZURE WISH (Member # 804) on :
Sorry I dont know what is causing it...maybe cuz you have a cold allowed the lyme to flare more...
If i catch anything my lyme always gets worse. I hope your cold and these sensations go away soon. Posted by Nal (Member # 6801) on :
Thank you BettyG. I re-edited it.
Nancy
Posted by Bobidor (Member # 14453) on :
Nancy,
Those sound like babesia symptoms. Have you been tested?
Julie
Posted by Nal (Member # 6801) on :
Yes I have-negative. that doesn't mean they wont treat for it anyway. However, I can't take antibiotics so I am hoping the colidal silver will help.
Posted by Nal (Member # 6801) on :
I see my LMD again today. Could the cold be adding to it? Does anyone else get brain fog feelings??
Posted by TerryK (Member # 8552) on :
Brain fog is common with lyme disease.
I'm not a doctor but your symptoms sound like blood sugar issues to me.
Lyme seems to bring that on for some of us. One can develop reactive hypoglycemia, hypoglycemia or hyperglycemia.
Cutting down on carbs can be very helpful and can alleviate these symptoms in people who have this problem.
It can be very hard to catch reactive hypoglycemia and hypoglycemia via lab tests, especially the A1C (an average of blood sugars over a period of months).
Eat something when you feel that way and see if that makes a difference. Uttimately, cutting down on carbs and eating foods with a low glycemic index is needed if you have reactive hypoglycemia.
Hope you get it figured out.
Terry
Posted by Nal (Member # 6801) on :
Its funny you mention that because my dr feels the same way. I have a glucose monitor at home. Sometimes it comes up low and others it will be high!
He tells me to match a carb with a good protein (like toast with an egg). Sometimes it helps and sometimes it doesn't. Its weird.
Nancy
Posted by BlueCheetah (Member # 18626) on :
I get very shaky with brain fog at times while on Babesia treatment. I never had the shaky feeling until I started treatment.
My glucose levels are always normal every month on my labs but I am very shaky while on treatment, especially during a herx. I hate it so much.
The brain fog and a feeling of my head just feeling weird happens as well too. Diflucan helps me the most with the brain fog feeling as well as cutting out sugars and carbs.
Posted by TerryK (Member # 8552) on :
Low blood sugars can be very hard to catch and also hard to manage.
When I had reactive hypoglycemia I found it very helpful to use a low carb diet.
I also think inflammation plays a role in our ability to utilize glucose properly thus it may help you to work on inflammation issues.
Blue- Inflammation always seems to get worse for me during a herx and this may be why the shakes get worse during a herx. Herxing = inflammation = inefficient glucose control.
Terry I'm not a doctor
Posted by sutherngrl (Member # 16270) on :
I was very shaky while taking Malarone. It is a side effect from the med.
The brain fog is definetly a symptom of the illness. Could be Lyme or Babesia.
Posted by Starfall1969 (Member # 17353) on :
I get that feeling occasionally as well. I've wondered about blood sugar issues, although they've always tested fine.
You're right, though, it is a horrible feeling!
Posted by Nal (Member # 6801) on :
Well my LMD says the sugar levels can definately play a part. I am to monitor my levels 1 hour before eating and then 1 hour after eating (switch of every other day) at the same times and see what happens. He may order a longer glucose test too-we'll have to see.
Ill definately watch my diet. More proteins and less carbs. I am a carbaholic so I know thats contributing to the problem in some way I am sure.
Nancy
Posted by jamescase20 (Member # 14124) on :
You dont drink river or lake water do you from the water supply?
Posted by Nal (Member # 6801) on :
I still feel like Im dying. Im shaky all over, light headed, brain fog.. LMD says its definately toxins and he does energy treatments to detox me. I don't know what else to try?
![[group hug]](graemlins/grouphug.gif)
![[kiss]](graemlins/kissing.gif)