I had lyme disease/babeois for about 9 years. In 2007 I got a negative test from Igenex. After that I developed Hashamoto disease, which in turn I have also developed Aerial Fibration(?) I was wondering if anyone else has had trouble with heart papulations? When my lyme dr. said I would never be the same, what did he mean? There is nothing I can find that tells you what does occur after you are told you no longer have lyme disease. Please help if anyone else is having these same problems...Thanks lam :confused:
Posted by eric555 (Member # 18343) on :
sorry you are going through this,
in my opinion when a doctor says that nothing can be done,
run out of his office and go see another doc...
just my view.
oh and unfortunately i have to come to learn that there are plenty of False Negative results.
If you're in ill health and your doctor is telling you there's nothing he can do for you, you should find a different doc.
Best of luck,
Adam
Posted by Lymeorsomething (Member # 16359) on :
Plenty of lymies get heart palps that are often benign and transient. So make sure you have the correct diagnosis of your heart issues.
I know my heart issues sent me to the ER once and then they later just disappeared. I'm still running too.
Bottom line--make sure you get more opinions if you have significant doubts.
Some lyme docs believe in a post lyme syndrome in which the immune system mistakes the body's own cells for Bb or something along those lines. Perhaps that is what your doc is talking about but I know my doc treats that as well.
Posted by Topper (Member # 18568) on :
I have hashimotos disease- basically hypothyroidism. I take synthroid for it. I don't know if it was from the Lyme Disease or not.
My LLMD does not treat the Hashimotos-my endocrinologist does. I will never be the same- my thyroid will be monitored and medicine adjusted as necessary.
I also have SVT-supra ventricular tachycardia-and I take atenolol for that. Again, my LLMD did /does not treat me for that - my primary care doctor does. I don't have heart palps anymore like I used to-wound up in ER couple of times. Now it's just minor-and I take the atenolol every morning.
I can live quite easily with both of these.
BTW- I am no longer in treatment for Lyme Disease, although my LLMD told me upon discharge that he doesn't think Lyme ever goes away really.And if I relapse then I will just go back on antibiotics again.
Posted by bettyg (Member # 6147) on :
welcome! many here do have heart problems.
i have hashomoto too or did when 1 of my many tests was done; have had thyroid problems 25 yrs. plus.
what symptoms do you STILL have besides your thyroid problems? see the long lists in my newbie package link ok! ************************
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
DebAZ's 12.08 comparison of 05 to 08 new guidelines:
Differences in newest Guidelines compared to 2005 Guidelines
Page 25 26 and 27 Added section "Sorting out the co infections"
Page 28 New info given to get supplements from additional places
In all areas of Supplements there has been various changes and additions to each description and i advice people to re read the full supplement section as well the following additions to the whole supplement section:
Basic Daily Regimin NT Factor Added
Alternative Treatments CITICHOLINE Added
Immune Support Transfor factor Added
For Fatigue Took out "For Fatiuge" section
Other Optional Vitamin D Added
Page 31 "Lyme Disease Rehabilitaion" is rewitten and added to
He mentions Flexcreme (Flex Cream) by Pharmanex as great for body pain
. suggests that you discuss with your doctor continuing treatment until you are symptom free for 2 months.
please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you! @ http://tinyurl.com/58eyou
sorry, link takes you to END vs. beginning, so just use UP ARROW and go to the TOP for detailed info! thanks!
Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying; so specific titles get our time/replies. non-specific ones, i sob, scroll on by!
Also, please be very specific in the subject line what you will be discussing so more people will be able to assist you.
***************
please go to my newbie links, copy the entire thing, and then print this off....
financial burdens compiled by melanie reber pages 74 - 92; outstanding info there.
also in my table of contents, for FINANCIAL BURDENS, i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences. thoughts and prayers headed your way..
Betty's POSTING GUIDELINES
When you post or reply, please break up your solid, continuous block text welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.
specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.
LYMETOO'S DR. C'S EXPLANATION OF WESTERN BLOT TESTING!
PRINT THIS OFF the full explanation, and then CIRCLE the numbers that coincide with your positives, IND! That will explain your no. results!
Posted by TO LIFE (Member # 12371) on :
Hi Their,
I am from CA too. But on a serious not, were you treated for BART..
![[Wink]](wink.gif)
![[Smile]](smile.gif)
welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.