When I went to the ER and was admitted and stuck there for 7 days with meningitis they also told me I tested positive for mono. Is that because many of us test positive for Epstein-Barr?
So if you test positive for mono and lyme is that the reason we are so fricking tired? (and crabby in my case?)
Jan
Posted by Grey Eagle (Member # 18684) on :
I am alway's so tired, I can barely put one foot in front of the other. I cannot live without energy drinks.
I recently had some blood work done by an endocrinologist and tested positive for Epstein Bar Virus. (Some count was 3000). I also tested positive in one band (41) for Lyme disease. My understanding is you have to test positive in several bands to be positive for Lyme disease, but the testing was done in a local lab. I may need to get tested by a lab that is more specialized in testing for Lyme.
Posted by Lymeorsomething (Member # 16359) on :
Mono usually refers to the acute phase of an EBV infection although it can go chronic in some unusual cases.
According to some, mono can also at times induce a prolonged post viral syndrome.
What are your symptoms?
Since EBV is extremely common and since most people are exposed to EBV and have some immunity, something like lyme may have triggered your dormant EBV to reactivate. But who knows...
Fatigue is my biggest issue. I had mono 2 years ago and have not been right since. It seems, in my case, that lyme was flying under the radar and reactivating some of these issues.
It's always good to check for other pathogens. I doubt that EBV by itself is causing all your issues.
Posted by seekhelp (Member # 15067) on :
The ER tells everyone they have mono when you go in sick. it's a complete joke.
Posted by timaca (Member # 6911) on :
If you have a high IgG titer to EBV then there is a very good chance that EBV is causing part (if not all) of your problems.
On the HHV-6 website is a video by Barbara Salvodo on EBV. I think she uses a cutoff of greater than 1:640 IgG for active chronic infection;.
Go to: www.hhv-6foundation.org and click on "view videos on the symposium of viruses in CFS" Barbara's talk is on the second page.
Grey Eagle...you likely have viruses as your issue, not lyme. Consider also getting tested for HHV-6.
Best, Timaca
Posted by tickedoffjan (Member # 15944) on :
Thanks to all of you. Why oh why, do we have to suffer brain fog and then try and figure this stuff out. Posted by PumaOfTheWest (Member # 18685) on :
Timaca what is the difference between EBV VCA and EBV nulcear antigen? I am looking at my boyfriend's latest lab work and trying to figure it out. Which of those two numbers should I be looking at?
Posted by timaca (Member # 6911) on :
![[Roll Eyes]](rolleyes.gif)