This symptom seems to be hanging on. I can sleep 12, 14, 18 hours a day. And then for a few days I'm fine. And then BAM back to the "hit over the head I'm so tired" type fatigue.
I'm going to see my LLMDs. A product that worked to improve mitochrondrial function helped before but is not now working. I am in Argentina for a while and my friends are appalled at how much I sleep. The doctors here know nothing.
What do you all think? Any tx that have worked? My LLMDs want more antibiotics, I'm not sure thats the answer.
Posted by lymeparfait (Member # 14268) on :
Do you tst pos. for EBV?
Most of my fatigue is from that...I take lauradicin. It helps if taken long term. (coconut)
Also any antivirals....
Do a detox as well!
LP
Posted by Getting Better (Member # 8919) on :
Thanks. I've done the detoxes, regularly. I treated the co-infections, never had any of the symptoms for Bart.
All I want is to try to get back to some kind of predictable functioning and not feel so catastrophically tired.
Some of you asked what product I used before that helped. It was Total Mitochondria, by Nutri-West, but was "prescribed" by a chrio. I also used CoQ10 and Alpha Lipoic Acid.
Posted by Need Lots of Help (Member # 18603) on :
Have you been tested for "thick blood".
I am also incrediably tired. I do not have EBV, but I do have the cyclomeglovirus and HHV6, along with Lyme and Ehrlichia. I am not sure which makes me tired.
I think it is just the body's response to fighting all of the bacteria and viruses off for so long. It just can't keep up.
I heard from another lady that treating her "thick blood" really helped her. I will talk to my LLMD about that in March.
Posted by 22dreams (Member # 17846) on :
I'd also suggest having your B-12 level checked.
Posted by Keebler (Member # 12673) on :
-
Please take a look at this current thread about CFS.
I just posted a lot of research there regarding fatigue and some connections to various chronic stealth infections such as lyme, etc.
Specifically, I hope you see the information on what can happen to the heart as a result of mitochrondrial failure from infection - AND what can help in this very complex process.
In addition to treating specific infections - endocrine support, liver support and cardiac support is all detailed in the links.
I suspect I have some viral issues along with my Lyme that are causing fatigue. My LLMD really encourages me to take Lauricidin pellets. I'm very sensitive and can only get up to 8 pellets before I herx.
How often do you take lauricidin and at what dosage? Did you pulse? Do you herx? How much did it help you? Is it worth it for me to continue?
Thanks for you input.
CherylSue
Posted by Michael_Venice (Member # 17254) on :
It seems like you improved greatly over time....
Can you mark what helped with the fatigue in the past? Maybe antibiotics?
Also, I would say, Argentines don't seem to sleep at all, so maybe that is exacerbating their response to your sleeping now.
I have friends there--one friend's mother is a doctor. I even talked to her about my 'mystery' illness before i got diagnosed. I had the impression that the docs are pretty good there, but they don't know anything about lyme. It isn't really found there, but has been showing up in Brazil.
Posted by WildCondor (Member # 434) on :
Wildcondor: Which supplements are you referring to? Or do all of them together help with energy?
Where does everyone buy the Life Pak and other Pharmanex products? Is everyone using Dr. B's account #?
Posted by lymie68 (Member # 18442) on :
I would suggest a good vitamin/mjneral supplement to start. Often people are tired because they aren't getting the required nutrients. Lyme compounds our problem, so we are probably more needy than most.
Posted by Getting Better (Member # 8919) on :
I had exhaustive panels done, I am not deficient in anything.
Thus, the mystery of the fatigue.
I have re-started the mitochrondrial supplements, and they are helping intermittently, which is strange.
I wish this were not such a hit and miss process.
A few years ago when I was still with Kaiser, and they never tested for Lyme, and they told me I had fibromyalgia, and to take prozac, they got fed up with my complaints and also presribed provigil. I have taken then when i HAD to be alert, so I can complete some of my projects I will resort to it, but I want to hit the cause(s) and not just jack me up on provigil.
Posted by lymeparfait (Member # 14268) on :
Cheryl Sue...
Laurasine ...by Ecological Formulas, is a combo of monolaurin in a base of Lysine. Monolaurin is from coconuts. My LLMD and many others prescribe this supplement (or coconut oil products) for all viral infections and feel they get great results for most of their patients if they take it daily, usually taking two capsules, 2 to three times a day. I take it along with my protocol...and I do feel better over time. It's not a miricle cure...it just helps fight the viruses, and get them in remission. There are no side effects. It's very safe with everything.