Ill bet cha
Posted by shelly23 (Member # 16124) on :
how sad but i never heard of the program he applied for that is interesting information
Posted by bettyg (Member # 6147) on :
posted 28-01-2009 03:13 PM -------------------------------------------------------------------------------- tree, thanks for that; i just emailed billy's wife with lyme blood testing info.
it's also SAME program that iowa's alex hermstad, 15, is signed up for ... she's been paralyzed and ventilator for last year plus.
she does have babs/bart.
Posted by Lymetoo (Member # 743) on :
Betty, be sure to let the lady know that the test for Lyme is likely to come back negative due to the use of immunosuppressants.
He probably does have babs and/or bart.
Posted by Keebler (Member # 12673) on :
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TuTu,
Great point.
And if they did the ole CSF (lumbar puncture), it won't be so accurate, either.
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Posted by treepatrol (Member # 4117) on :
quote:Originally posted by Lymetoo: Betty, be sure to let the lady know that the test for Lyme is likely to come back negative due to the use of immunosuppressants.
He probably does have babs and/or bart.
Yes betty
Posted by disturbedme (Member # 12346) on :
Glad you e-mailed his wife Betty!
I hope she takes it seriously and looks into it and doesn't believe the doctors when they most likely tell her that he's negative and that they tested him and that that CAN'T be it and to 'not talk about lyme again!'. Posted by tainabell (Member # 18270) on :
Scary! Billy's initial symptoms were the exact same as mine - fever, hives, swollen joints. Glad I'm being treated. I feel so sorry for these people...hope they get the help they need.
Posted by bettyg (Member # 6147) on :
i just emailed billy's wife your comments tutu, and a reference about that from my newbie package.
keebler...i missed your lumber comment; darn!
Posted by Geneal (Member # 10375) on :
Scary!
I hope his wife pursues a possible diagnosis for Lyme disease.
![[Frown]](frown.gif)
but i never heard of the program he applied for that is interesting information