My labs are wishy washy. I'm having this insurance problem and the Infectious Disease Dr.'s insist I have no infection.
I thought if I could find a Dark-Field microscope, I might be able to find someone to look at my blood for the Spriochete. This would certainly confirm an infection, and then I could go from there.
Why isn't this done anyway ?
I've checked with JHH and I can't find one anywhere on the entire campus. I find that bizarre.
If anyone knows where I could have this done, please let me know.
Shannon
Posted by sutherngrl (Member # 16270) on :
Only my opinion, but it's probably not done because the spirochetes don't hang around in our blood.
They drill into our tissues, muscles, brains and hearts.
Posted by sutherngrl (Member # 16270) on :
You need a LLMD(Lyme literate Medical Doctor). Not likely you will find that in an infectious disease doctor. They are the ones that don't believe in Chronic Lyme Disease. They are the ones that have made our lives miserable.
Of course your labs are wishy washy. The test for LD are very inaccurate and many of us with LD have negative test. This is why you need a LLMD. Lyme Disease should be diagosed clinically.
Posted by jamescase20 (Member # 14124) on :
DONT waste money on darkfeild get a PHASE CONTRAST 2500X scope on ebay...or min. of 1600X train using youtube videos...consider seeing a natpath and watch her do this to your blood and copy there moves.
Posted by Keebler (Member # 12673) on :
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Drop the Infectious Disease doctor. Even with a positive test, they will treat for a very short time with one medicine (when a longer time with combined tx - and liver support - is required).
ID Doctors who are connected with the IDSA simply do not treat lyme nor understand it. (There is the rare exception, however.)
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I had several photos taken from my blood smears with a Dark-Field microscope - the ND who did them was alarmed (I was asked: "WHERE have you BEEN?"
But there were no spirochetes (although I had positive lyme and 2 other TBD from Igenex).
I took those photos to my GP and, I gotta warn you, most doctors' eyes will just swirl if you present such a photo to them - even if it had a "Spiro-Gryo" character waving at them.
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Were your tests done at IGENEX? Or Fry, Clognen or Focus? These are the best labs.
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The spirochete is too tiny to see on commercial scopes - and, as mentioned above, spirochetes does not generally hang around in our blood.
Even the best tests are tricky.
It is best to be fully assessed by a LLMD (and some good ones ar near you) or a LL ND (naturopathic doctor) who is also extremely well educated with ILADS' research or even an ILADS member. There are a few NDs in the country who are ILADS members.
There is an excellent LL ND within driving distance to you. You can read some about that at this site:
It's also important that you be assessed by a LLMD or LL ND with experience as this may not be lyme. (If you had a bulls eye rash, lyme is sure, though.)
There are also many other chronic stealth infections that might need to be considered.
But, sadly, the ID doctors are out to lunch on all this (again, there is the rare exception).
A good LLMD is your best chance at figuring out if this is lyme and, if not, might it be another tick-borne infection or something like chronic Cpn or HHV-6.
If you have been ill with various multi-systemic symptoms and the doctors have run many tests on you and cannot figure out what is wrong, then consider getting these tests done.
40678 Lyme C6 peptide 2034 Lyme IgG and IgM western blot
Tick borne disease tests (Q-Fever through Lyme tests) can also be run at Igenex: www.igenex.com
Getting tested at Focus Diagnostics Lab can be a bit of a problem, unless your doctor has signed up for an account with them. Here's some links as to how to get the testing done. These links are at the HHV-6 website, and you must sign in to view the posts.
And may I add to the list of things to test for: enteroviruses. Using Arup lab. The enterovirus website is not quite operational yet, but it will have loads of info on it soon.
A friend of mine is now 95% well after being sick for several years (very sick). She has been on antibiotics for lyme/coxiella, valcyte for high EBV and HHV-6.
She saw improvements from both treatments. She is now almost well by treating the enterovirus with oxymatrine. She had multiple pathogens making her ill.