My husband died Thursday night in his sleep. I would like to set up a fund for people to make donations to. Can someone please tell me the best organization for this - Lyme Disease Assocation? And how I need to do this?
Thank you for your help. I'm sure I could find this, but I'm a mess right now.
Thank you.
Posted by Dekrator48 (Member # 18239) on :
Hi smjkoj,
I am so very sorry for the loss of your husband. You must be so overwhelmed right now.
I think the lyme disease association is one of the best from what I can see.
It is very kind of you to think of this at such a difficult time.
God Bless, you will be in my thoughts and prayers.
Take care.
Posted by scared08 (Member # 14695) on :
Oh bless your heart, I can't tell you how sorry I am. I know that doesn't make it any easier for you, but please know that we are all here for you. Please use us to lean on and talk too---oh honey I'm sorry.
God bless you for wanting to do this! My guess is this is exactly what he would want and is smiling with pride upon you. May God be with you and yours always, but especially in your time of need.
My response I guess would be the same as Dekrater. I have wanted to start something like this for years, but like you; I'm not sure how to start it also. Ya know, if I remember right and I could be totally mistaken--------but Dr. Jones in CT. started a fund for children with Lyme. The whole office is very sweet and maybe helpful with some suggestions???
I don't know and I'm sorry, but I think these 2 places would be a good place to start. If we can help in anyway, PLEASE let us know by posting of PMing us.
God bless you dear. You and yours will certainly be in my prayers.
Posted by Tracy9 (Member # 7521) on :
How horrible for you, I am so very sorry.
I think Dr. Jones Legal Fund and Turn the Corner Foundation are excellent possibilities as well. I believe the Turn the Corner Foundation funds the Lyme Aid for Kids.
Posted by imagine2 (Member # 3136) on :
Oh, smijkog, My family and I join together in sending you our deepest sympathies in the loss of your husband. Our hearts are with you and wish you comfort and support in every way possible.
God Bless.
Posted by seekhelp (Member # 15067) on :
I am so sorry about this and offer my deepest condolensces.
Posted by randibear (Member # 11290) on :
i will grieve with you. i am so very sorry for your loss.
if there's anything we can do here, i am sure all of us will be willing to help.
Posted by cactus (Member # 7347) on :
I am so, so sorry for the loss of your husband. There are just no words to express the sympathy and concern we're all feeling for you.
Please do come here to talk, and lean on us.
My husband and I have discussed making donations to LDA and to ILADS. ILADS is the first choice.
If you need assistance with any of the specifics, many here will be honored to help you in any way we can.
Posted by Vermont_Lymie (Member # 9780) on :
My deepest sympathy for your loss of your husband. It is very kind of you to think of helping others at this time.
Posted by sunshinyday (Member # 14337) on :
I'm so very sorry for your tremendous loss. It is so good of you to think of others today.
My sincere condolences and prayers are with you.
Gail
Posted by TerryK (Member # 8552) on :
smj, My deepest sympathies to you and your family. I'm so sorry that your husband has lost his life and that you are without him.
Here are some links that should help you with your question about donations.
Please consider sending an e-mail to Melanie with information so that your husband can be put on the Lyme memorial pages. Melanie's e-mail address [email protected]
Please let us know if there is anything we can do for you.
Terry
Posted by kelmo (Member # 8797) on :
How hard. So sorry for your loss. May God protect and provide.
Kelmo
Posted by feelfit (Member # 12770) on :
I sit here with tears rolling down my face at your loss. My sincerest sympathies to you and your family.
When will it end?
Please do consider adding your husbands name to the Lyme Memorial. And from all of us in the Lyme Community, sincerest thanks for the thought of donations at this difficult time.
God Bless, Feelfit
Posted by Peedie (Member # 15355) on :
I'm so sorry for your loss. May God be with you now and always. -peedie
Posted by dmc (Member # 5102) on :
My condolences for your loss. May you find strength through your faith, family & friends.
Posted by Starfall1969 (Member # 17353) on :
I am so sorry for your loss.
As others have said, please come and lean on us as much as you need to.
May God bless you and comfort you now and always.
Posted by tdtid (Member # 10276) on :
smjkoj,
I am so very sorry to hear about your loss.
Others have given you links to the very best options.
My thoughts and prayers go out to you.
Cathy
Posted by sixgoofykids (Member # 11141) on :
I am so sorry for your loss. I'm beyond words .....
Posted by johnnylight (Member # 18518) on :
Me too! i am very sorry for your loss, i will keep fighting for all future and past Lymies, that this doesn't have to happen to others.
Posted by glm1111 (Member # 16556) on :
May you find peace through this difficult time.
I am so sorry that you are having to endure the tragic loss of your husband,
Gael
Posted by Kreynolds (Member # 15117) on :
I am so sorry for your loss.... My thoughts and prayers are with you and your family...
Posted by hcconn22 (Member # 5263) on :
We are all very sorry to hear of your loss.
Just curious will there be any autopsy and if so will that look at infectious diseases such as Lyme, Babesia etc.
In the end this may be your greatest contribution-- is the truth of why your husband died.
It is well known that people have had strokes and heart failure from Lyme and Babesia.
God Bless you and your family.
Posted by bettyg (Member # 6147) on :
i'll enclose my sympathy poem collection to help you thru your deep loss, sorrow, and grieving period; may you find some that really touch your heart as they have me.
i think the I'M FREE AT LAST would be so appropriate for a chronic lyme death for all we've been thru over the years.
May God comfort you now and in the days, months, and years ahead.
When you are really missing your husband, play a tape, cd/dvd of him in to hear their voices, laughter, and watching their gestures and mannerisms.
BUT 1ST MAKE COPIES OF ORIGINAL when the other one gets worn out so you don't lose everything.
Posted by Lymetoo (Member # 743) on :
My condolences in your terrible loss. Thank you for thinking of others at this time. The donations will be well received and much needed.
Prayers and love for you and your family.
Posted by Geneal (Member # 10375) on :
Sending prayers and Angels to hold and comfort you.
So sorry.
Hugs,
Geneal
Posted by Ocean (Member # 3496) on :
I'm so sorry... I am also sending healing prayers for you.
God bless you,
Ocean
Posted by lymednva (Member # 9098) on :
So sorry to hear of your loss. Another group to consider in the DC area is NatCapLyme. www.natcaplyme.org. Posted by lymielauren28 (Member # 13742) on :
I'm so sorry for the loss of your husband...sending love and prayers for you and your family during this difficult time.
Lauren
Posted by lakes592 (Member # 18905) on :
So sorry to hear this and so saddened for your loss. I will keep you and your family in my thoughts and prayers.
Posted by Radha (Member # 8464) on :
even though i dont know you, i am so sorry you are going thru such pain now and i hope you have support during this terrible time, Radha
Posted by Lyra (Member # 16706) on :
I am so sorry for your loss. My thoughts are with you!
Posted by 1Bitten2XShy (Member # 12280) on :
I too am deeply sorry for your loss. I pray for you to have the strength you need.
Posted by KS (Member # 12549) on :
I too am so sorry for your loss and the pain you are feeling. You are in my thoughts and prayers.
Posted by karatelady (Member # 7854) on :
Been thinking of you a lot! So sorry you are going through this.
Posted by jlc (Member # 18061) on :
I am so sorry for your loss... my prayers are with you and your family during this extremely difficult time.
Posted by JKMMC09 (Member # 15795) on :
I am deeply sorry for the loss of your beloved husband. You are in my thoughts and prayers. God Bless!
Posted by lymeinhell (Member # 4622) on :
My deepest sympathy for your loss. Thank you for thinking of others at this time.
Keep him in your heart and he will be with you always.
We're all here for you.
Posted by dontlikeliver (Member # 4749) on :
I don't come to Lymenet much, but logged on and first post I saw was yours.......... I'm so very sorry for your loss. Tragic.
Take care of yourself.
Posted by SuZ-Q (Member # 5903) on :
I am so sorry for your loss. Please accept my deepest sympathies and know that you will remain in my thoughts and prayers.
The flowers cut and brought inside Black cars in a single line Your family in suits and ties And you're free
The ache I feel inside Is where the life has left your eyes I'm alone for our last goodbye But you're free
I remember you like yesterday Yesterday I still can't believe you're gone Oh I remember you like yesterday Yesterday And until I'm with you, I carry on
Adrift on your ocean floor I feel weightless numb and sore A part of you and me is torn You're free
I woke from a dream last night I dreamt that you were by my side Reminding me I still had life In me
I remember you like yesterday Yesterday I still can't believe you're gone Oh I remember you like yesterday Yesterday And until I'm with you, I carry on
I'll carry on, I'll carry on
Every lament is a love song Yesterday, yesterday I still can't believe you're gone
Every lament is a love song Yesterday, yesterday So long my friend, so long
Posted by map1131 (Member # 2022) on :
I'm so sorry for your loss. May you find the strength needed to get you and yours through the next several days.
May this be a foot prints in the sand experience.
Pam
Posted by mtree (Member # 14305) on :
..I am so sorry for your loss..
my thoughts and prayers to you and your family...
mtree
Posted by kam (Member # 3410) on :
Ouch
Posted by lymephobic (Member # 17556) on :
So very sorry for your loss...
Sending prayers your way...
Posted by Melanie Reber (Member # 3707) on :
My most sincere and heartfelt condolences on your loss SMJ. My God's love surround and blanket you during this most difficult time.
My very best, Melanie
Posted by Geet3721 (Member # 15751) on :
I am so sorry for your loss. Bless you and your family!
Posted by adamm (Member # 11910) on :
I am so sorry to hear this. You have my best wishes.
Posted by Julie F. (Member # 15956) on :
I am so sorry to hear about the loss of your husband. I will be keeping you and your family in my thoughts.
Posted by steve1906 (Member # 16206) on :
My condolences! Sorry for your loss.
Take care of yourself; and if you need to talk to someone don't forget, were always here for you!!!
You can PM me anytime if you'd like too.
Take Care, Steve
Posted by kbridal (Member # 15828) on :
I'm so terribly sorry for your loss on your husband. We will keep you in our prayers and thoughts daily. God's Blessings!
Posted by tickssuck (Member # 15388) on :
I just don't have any words to convey my deepest sympathies. I'm so terribly sorry. TS
Posted by beths (Member # 18864) on :
So sorry for your loss at this time. We'll keep you in our prayers
Posted by pab (Member # 904) on :
I'm so sorry to hear of the loss of your husband. I will keep you in my thoughts and prayers.
Posted by Tincup (Member # 5829) on :
My most sincere and heartfelt condolences dear one.
May God be with you during this most difficult time.
Prayers going your way!
Posted by sparkle7 (Member # 10397) on :
I hope in time your heart will heal. I'm so sorry for your loss. My condolences...
Posted by bettyg (Member # 6147) on :
mike, those were beautiful words in the song above you posted. xox
Posted by 2roads (Member # 4409) on :
So sorry to hear this.
We prey for your peace and strength at this trying time.
Thank-you for thinking of our Lyme community in honor and remembrance of your husband.
God Bless You-
Greta
Posted by rmruss (Member # 11409) on :
Sorry to hear of your loss.
You may want to consider donating to:
John Drulle, M.D. Memorial Lyme Fund, Inc. 702 Brewers Bridge Road, Suite 2 Jackson, New Jersey 08527-2343
The John Drulle, M.D. Memorial Lyme Fund, Inc. (JDMLF) is:
A non-profit 501(c)3 organization, established in late 2005.
An organization consisting entirely of volunteers who have experienced first-hand the suffering and life-altering effects of Lyme disease.
An organization whose mission is to reduce the incidence of tick-borne disease through grassroots outreach in New Jersey and the surrounding area.
Dedicated solely to education, prevention and research of tick-borne illnesses.
Committed to raising funds, with all proceeds going towards our purpose.
Always grateful for your support of time, talent and donations.
So sorry to hear of your loss.
Posted by peacemama (Member # 17666) on :
So, so sorry. My thoughts are with you, and will continue to be.
Posted by lymeladyinNY (Member # 10235) on :
I'm so, so sorry to learn of your loss. My heart grieves for you. God bless you and your family as you deal with this.
- Lymelady
Posted by njgirl14 (Member # 14174) on :
I am so sorry for your loss of your husband. This disease is terrible. You are courageous to want to do something positive so soon to honor him. You are in my thoughts and prayers.
Posted by disturbedme (Member # 12346) on :
I'm so, so sorry. :-( This breaks my heart. You and your family will be in my prayers.
I would like to post this. It's beautiful and reading it made me tear up:
You can shed tears that he is gone, or you can smile because he has lived. You can close your eyes and pray that he'll come back, or you can open your eyes and see all he's left. Your heart can be empty because you can't see him, or you can be full of the love you shared. You can turn your back on tomorrow and live yesterday, or you can be happy for tomorrow because of yesterday. You can remember him, only that he is gone, or you can cherish his memory and let it live on. You can cry and close your mind, be empty and turn your back Or you can do what he'd want: smile, open your eyes, love, and go on. ~ David Harkins
Posted by Boomerang (Member # 7979) on :
So sorry to hear of your loss. May God Bless you and your family.
Posted by scared08 (Member # 14695) on :
Has anyone heard from SMJ???? I have come back to this tread at least 10 times since last night. It is really worring me and I don't know why (other than the obvious)???!!!!
Mettalic Blue----beautiful!!!!!
Disturbedme---very nice.
If anyone has had contact with her, please PM me or post it??? If anyone hears about a fund, or if the is a memorial site posted for him; would you mind PMing me please????
I just remembered that this is my last night on my week break from tx and have to start all abx. back tomorrow. So I'm afraid of not be able to look at the comp. for a while, but I can see PM's from my phone as it is not as bright.
God Bless
Posted by bettyg (Member # 6147) on :
i figure tonight was perhaps visitation and tomorrow funeral, etc.
i'm sure she will post as soon as she feels up to it unloading all the grief/stress she has been going thru since this happened suddenly.
come back when YOU FEEL UP TO IT; we're always here for you. Posted by scared08 (Member # 14695) on :
Thank you Bettyg!!!!
It's been about two hours since I posted and I can't sleep. I keep getting angry, then crying. I then go to all of the sites posted to reads about yhe IDSA guidelines and all suggestions on how and what to address in a letter.
Them I try to compswe a letter and I CAN'T!!!!!!!!! I can't seem to put my thoghts, my words,-----can't even strat it!!!!!!!!!!! WHY???!!!
I'm sorry its just that I;m so upset right now, but i know complaining doesn't help any. It's just that there was a time that I cuold write a porfessional letter, abfter staying up all night doing research to back the letter. Now----I'ts hard to post right now.
I hate waht is happening to people. And most want to uren their heads to it all untill they have a faimly member orf them themselves are infected. Why!!!!??????? I honestly don't understa nd!
Some say money-----------sorry, cant' except that one. There is no amount of mon ey can replace a lost life ofr quility of life.
Polotics-----Nope, I can't except that either!!! Bavere has there been a time when all agree on any one issuse.
Oh I'm sorry, i can see all of the mistakes im making but i can't correct them right now.
Betty----Please pray that the Lord will opens the eves of so many woh are responsa ble or have a pert in patients not being diagnosed right, having correct treatment,---yhou know.
God bless you all
Posted by Robin123 (Member # 9197) on :
Sorry for your great loss. Wishing you lots of support in the days to come.
Posted by njlymemom (Member # 15088) on :
I am so very sorry, what a tragic loss. Please accept my heartfelt condolences.
How kind of you to think of others at this time. You are in our prayers.
Posted by Cockapoo1996 (Member # 14238) on :
So sorry for you and your family.
Posted by nenet (Member # 13174) on :
I'm so sorry smjkoj.
I wish you and your loved ones warmth, comfort, and peace.
Posted by nomoremuscles (Member # 9560) on :
I'm very for your loss. This illness steals everything piece by piece till there there's nothing left. Then it takes the rest.
My best to you and your family in this awful time.
Posted by liesandmorelies (Member # 15323) on :
I am thinking of you and your family. This is just so very sad and we are all thinking of you and lifting you up in prayer.
I pray your pain will ease with time and you will forever be filled with only the good memories of you and your husbands life together.
Posted by sutherngrl (Member # 16270) on :
So sorry for your lose. I am praying for you and your family during this very hard time.
Posted by smjkoj (Member # 15241) on :
To my friends,
You all are such a blessing. Thank you for these words. I will read them again later on because everything is just a haze for me. I'm still in disbelief and the heartache is unimaginable. You know what Karl was going through, though. I know he is free of his messed up body and is healthy and whole again.
Karl was only 34. Way to young to die. He started with this in January 2008. Never did we think he would be dead a year later.
I'm going to keep fighting this fight for him because no one deserves this. They did an autopsy and found no cause. They are now doing toxicology. It's such a nightmare because I want to scream at them what the cause is, but they will never listen.
I will post the obituary notice. His funeral is scheduled for this Saturday. His parents were on vacation and I had to wait until they could get flights back to plan anything.
Peace be with you.
In Memory of Karl Joedicke July 30, 1974 - February 20, 2009
Posted by Ocean (Member # 3496) on :
Smjkoj,
Wow, he was so young, too young. I have read of Lyme disease victims whom they found the spirochete in the heart or brain. I don't know if they would routinely test for that.
I am 30 and have told my husband many times that if I should die to make sure they check for Lyme Disease. The word needs to be out there that this diesase does kill.
You are right in that he is free now. Out of the misery that is Lyme. You seem like such a courageous, strong woman and you took such good care of him.
Please feel free to write anytime.
May peace be with you,
Ocean
Posted by lymielauren28 (Member # 13742) on :
Smj,
I cannot even begin to express in words how sorry I am for your loss. I hope you will take great comfort in the fact that you were all you could be for him while he was here on earth.
Your love, care and concern for him and his health were obvious in all of your posts. He was lucky to have such a strong soul supporting and loving him throughout his journey with Lyme.
God bless you and may angels hold you tight in there arms while you deal with the loss of your beloved husband.
Lauren
Posted by seibertneurolyme (Member # 6416) on :
Other than stroke or heart attack one other possibility would be sleep apnea. This is a common problem Lymies have and it can kill in some cases.
So sorry for your loss.
It really makes me mad every time I read of another death from Lyme or another tick-borne illness.
Stay strong.
Bea Seibert
Posted by FuzzySlippers (Member # 13658) on :
Dear Smj,
I am so very sorry to hear about the loss of your Karl. I can't begin to imagine what you must be going through. But please remember that we are here for you and will support you in whatever way we can during this difficult time.
May God bless you and keep you. And may you be surrounded by much love and comfort.
Fuzzy
Posted by barbarame (Member # 16423) on :
I am so sorry for your loss. My prayers are with you and your family.
Kindly, Barb
Posted by Brussels (Member # 13480) on :
This is soo sad, such a young man.
I hope these guys will find the right cause of death. It's important to know, for his peace and yours.
Bless you and your family. Selma
Posted by blaze (Member # 16838) on :
You're in my thoughts and prayers <3
Posted by bettyg (Member # 6147) on :
smj,
THANK YOU for coming back and updating us about karl! wow, 34 !!! healthy 1 year ago.
this damn disease that takes so many young people who have not begun to enjoy life as i have; i'm 59, and i'm so glad i have treasured what i have to date.
thank you for giving karl's name also so we can be on alert for local newspapers in your state.
wow, your inlaws on vacation and the drive/flight back knowing their son has died.
best wishes; we are praying for you and karl! he's NOW HEALTHY and will come and visit you constantly. LOOK FOR THE PENNIES HE WILL BE DROPPING!! Posted by eric555 (Member # 18343) on :
Very sorry for your loss...
I prey for you and your family.
Posted by Parisa (Member # 10526) on :
I am glad your husband is no longer suffering and angry that the doctors ignored you. He was too young to die. I'm very sorry for your loss.
Posted by METALLlC BLUE (Member # 6628) on :
I've written you a song. Music is included. It titled it "Living Is Dying"
I provided the lyrics alone near the bottom.
Acoustic Guitar, Strummed
Fmin-----------Fmin alt E--0----------------0-------- B--1----------------1-------- G--2----------------0-------- D--3----------------3-------- A---------------------------- E----------------------------
Fmin----------------Fmin alt I wish, things were different Fmin----------------Fmin alt I wish, that things wouldn change
Fmin --------------- Fmin alt Like all of the seasons
C Spring welcomes rains
F Summers heat on the pavement
C Falls colors change
First line of second verse Fmin ---------Fmin alt E--0----------------0-------- B--1----------------1-------- G--2----------------0-------- D--3----------------3-------- A---------------------------- E----------------------------
I wish, that I was flying Fmin --------Am7 E--0------------0------------ B--1------------1------------ G--2------------0------------ D--3------------2------------ A---------------------------- E----------------------------
I was free like a dove
C Peaceful and silent Am No suffering anymore F These dreams aren't sufficient
Cadd9 Grace G Won't you visit Am Strengh C--------------F Don't fail me now
Repeat first verse
Fmin------ Fmin Alt If living, is dying Fmin-------Fmin Alt All lovers, loving together
C ------------------------- Fmin Some suffer, their cross hard to bare F Dry your eyes, remember the good times
Cadd9 Faith G Won't you visit Am Love C I'll carry on
Bridge:
None yet.
Strum first two lines
Fmin ----------------Fmin alt I wish, things were different
Fmin-----------------------Am7 I wish, that things would change
Fmin---------------Fmin alt Like all of the seasons
C Spring welcomes rains
F Summers heat on the pavement
C Falls colors change
Conclusion
Fmin--------------------Fmin alt Your memory, you're dark Winter waters. Fmin -----------------------------Fmin alt It's a bitter end, like salt of the ocean
F It's this bitter end where the sweet begins. C-------------------F Once an illusion, we're one once again.
Am With love lives our purpose,
C I'll carry on, Because love is the motion, the movement is change
------At the word "movement" above pick notes as follows for outro:
----Fmin-C---F--Am--Am7-Cadd9------G------Fmin alt E--0----0----1---0------0----0---------3--------0-------- B--1----1----1---1------1----3---------3--------1-------- G--2----0----2---2------0----0---------0--------0-------- D--3----2----3---2------2----2---------0--------3-------- A-------3-----3----------0----3---------2------------------ E-------0-----0----------0----0---------3------------------
Lyrics Alone:
I wish, things were different I wish, that things would change Like all of the seasons Spring welcomes rains Summers heat on the pavement Falls colors change
I wish, that I was flying I was free like a dove Peaceful and silent No suffering anymore These dreams aren't sufficient
Grace Won't you visit Strengh Don't fail me now
If living, is dying All lovers, loving together Some suffer, their cross hard to bare I dry my eyes, remember the good times
Faith Won't you visit Love I'll carry on
I wish, things were different I wish, that things wouldn't change Like all of the seasons Spring welcomes rains Summers heat on the pavement Falls colors change
Your memory, you're dark Winter waters. It's a bitter end, like salt of the ocean It's this bitter end where the sweet begins. Once an illusion, we're one once again. With love lives our purpose, I'll carry on, because love is the motion, The movement is change.
Posted by bettyg (Member # 6147) on :
MICHAEL, that was beautiful; so creative! Posted by ElaineC (Member # 9857) on :
So sorry for your loss...and such a young life...I am stuck for words.
May you find the comfort and strength you need.
Posted by Bugg (Member # 8095) on :
My heart goes out to you....I wish you peace of mind...
Posted by SoSublyme (Member # 15185) on :
I am so very sorry to hear of the death of your beloved husband, Karl, at such a heart-breakingly young age.
And so very sorry that you as a young wife have to experience this overwhelming grief.
My thoughts and prayers are with you and your family.
Posted by cottonbrain (Member # 13769) on :
hang in there during this terrible time. I'll light a candle for you. I am so deeply sorry for you and your husband.
Posted by aiden424 (Member # 7633) on :
So very sorry for your loss. My thoughts and prayers are with you.
Kathy
Posted by Geneal (Member # 10375) on :
Still praying for you and the tragic loss of your husband.
I just don't have the words to express myself adequately.
Wish I could be there to hold and comfort you.
Sending Angels of Peace and Comfort during this most difficult time.
Hugs,
Geneal
Posted by Cass A (Member # 11134) on :
Dear SMJ,
I'm so very saddened to learn of your terrible loss.
I truly appreciate the musical tributes that have been posted here--they reminded me of someone I knew and cared about deeply who was killed in an accident when he was about 23.
Thank you for taking care of his parents.
Thank you for caring.
Love,
Cass A
Posted by shelly23 (Member # 16124) on :
Does anyone have an update on how she is doing or what the obtoposy said
Posted by maureen2174 (Member # 11471) on :
So sorry for your loss. No words for something like this. We are all here for you.
Posted by mazou (Member # 15319) on :
You are in my heart and in my prayers.
Posted by map1131 (Member # 2022) on :
Words cannot express how we feel for you and yours during this time. The why's to it all have to be overwhelming.
May God give you strength and peace soon.
Pam
Posted by bettyg (Member # 6147) on :
she will post when things calm down. i'm guessing tonight is visitation; FUNERAL IS SAT.
her earlier post showed on autopsy but perhaps there was something else STILL TO COME, and she will post that whenever she hears and is up to it.
thoughts and healing prayers continue going your way during this stressful time! Posted by sonee123 (Member # 18632) on :
I am so sorry! This must be so hard for you and your family. May God rest his soul. Amen.
Posted by sparkle7 (Member # 10397) on :
My continuing condolences....
Posted by tainabell (Member # 18270) on :
I am so so sorry for your loss. Too young to die and too horrible a disease for all of us to comprehend. The love of everyone here is with you.
Posted by LymeCFIDSMCS (Member # 13573) on :
Please accept my sincere condolences and my wish for you to have the strength to get through these new few days and weeks I hope you do take some comfort in knowing your beloved husband is free of disease and whole again and at peace. Bless you and your family.
Posted by Tracy9 (Member # 7521) on :
Karl O. Joedicke POSTED: February 27, 2009
Karl Owen Joedicke, 34, died Friday, Feb. 20, 2009, at his residence in Centreville, Va.
He was raised in Falling Waters and attended high school in Hedgesville and attended Shepherd College.
He also had worked for ATF in Martinsburg and was currently employed with the Department of Treasury in Washington, D.C.
He is survived by his loving and devoted wife, Stacey M. Joedicke; his parents, Ingo and Donna Joedicke, of Falling Waters; his sister, Jenine Gardner and Doug, of Hedgesville; his grandparents, Esther and Robert McCarthy and Gisela and Erwin Joedicke; and several nieces.
Funeral services will be held at noon Saturday, Feb. 28, at Church of the Holy Comforter, Vienna, Va.
The family will receive friends one hour prior to the service at the church.
Entombment will follow at Stonewall Memory Gardens in Manassas, Va.
In lieu of flowers, donations may be made in his memory to the Lyme Disease Association Inc., P.O. Box 1438, Jackson, NJ 08527 or Church of the Holy Comforter, 543 Beulah Road, Vienna, VA 22180.
Please view and sign the guestbook at www.moneyandking.com. Posted by bettyg (Member # 6147) on :
thanks tracy for posting his obituary.
now we have a chance to go online and send stacey our condolences, etc.
LDA, NJ ... great; i wandered who in lyme community she would have memorials to go to!
Posted by Tracy9 (Member # 7521) on :
I just signed the guestbook. I agree Betty, I think it will be a nice gesture for us all to do that.
Posted by bettyg (Member # 6147) on :
tracy, saw yours there; i could NOT get mine down to 1000 characters!! worked 20 minutes on that.
yes, then she can print out or even have BOOK BOUND all comments on karl! Posted by Tracy9 (Member # 7521) on :
Just beautiful, Betty.
I didnt' want to seem like we are using this for a "soap box" but I do think it's incredibly important that we are, in addition to leaving our caring messages of sympathy, also bringing light to the fact that this poor man died of Lyme Disease.
It isn't mentioned anywhere else except in the donations area.
I think we can both offer some support and spread some awareness; this guy worked for the US Treasury Dept in Washington, DC!
Posted by cbb (Member # 788) on :
My heartfelt sympathy to you in the loss of your husband.
I understand because I lost my husband four years ago. My LymeNet friends were so supportive and helped me through the difficult days. We are here for you, too.
It's wonderful that memorials will be given to help others with this dreadful disease.
May you be blessed with peace and be surrounded by love and support.
Posted by bettyg (Member # 6147) on :
tracy,
i read many of the posts left by co-workers! he had 2 different jobs, and i'm forgotten what they were but important since he also was a SUPERVISOR!
i'm going to copy karl's obituary and post it on DR. OZ/OPRAH request for LYME SHOW in MEMORY OF KARL!
IN MEMORY OF KARL Joedicke
Wife Stacy wrote, "Karl was only 34. Way to young to die. He started with this in January 2008. Never did we think he would be dead a year later.
I'm going to keep fighting this fight for him because no one deserves this. They did an autopsy and found no cause. They are now doing toxicology. It's such a nightmare because I want to scream at them what the cause is, but they will never listen.
Karl O. Joedicke POSTED: February 27, 2009
Karl Owen Joedicke, 34, died Friday, Feb. 20, 2009, at his residence in Centreville, Va.
He was raised in Falling Waters and attended high school in Hedgesville and attended Shepherd College.
He also had worked for ATF in Martinsburg and was currently employed with the Department of Treasury in Washington, D.C.
He is survived by his loving and devoted wife, Stacey M. Joedicke; his parents, Ingo and Donna Joedicke, of Falling Waters; his sister, Jenine Gardner and Doug, of Hedgesville; his grandparents, Esther and Robert McCarthy and Gisela and Erwin Joedicke; and several nieces.
Funeral services will be held at noon Saturday, Feb. 28, at Church of the Holy Comforter, Vienna, Va.
The family will receive friends one hour prior to the service at the church.
Entombment will follow at Stonewall Memory Gardens in Manassas, Va.
In lieu of flowers, donations may be made in his memory to the Lyme Disease Association Inc., P.O. Box 1438, Jackson, NJ 08527 or Church of the Holy Comforter, 543 Beulah Road, Vienna, VA 22180.
Please view and sign the guestbook at www.moneyandking.com. Posted by bettyg (Member # 6147) on :
I was just on memory book, and 2 others w/lyme commented also including robin123 and another one!! very nicely done ladies! Posted by Tracy9 (Member # 7521) on :
Yes, I see Lymie Lauren commented too. I think we need to support Stacey by showing her our support coming from the Lyme community on his memorial page.
Wonderful idea Betty to send this to Oprah/Oz. Way to go!!!
Posted by heiwalove (Member # 6467) on :
i am so very sorry to hear this. my love and thoughts are with you and your family.
Posted by bettyg (Member # 6147) on :
tracy, i don't know if oprah's moderators approved it or not. i checked several times, and it had not showed up then.
when i get done here, i'm going back to oprah's site to read folks comments to see IF it does appear or not.
that's telling it like it is; if it does show up, i'll look for the other 2 people, 47, who committed suicide also and post there obits as well in MEMORY OF THEM.
Posted by brite7 (Member # 16245) on :
I had tears when I read this. Im so very sorry for your loss (((Stacy))). My heart is with you and your family.
Posted by Wildthing (Member # 6791) on :
Stacy,
I am so sorry about your husband. Both of you have been in my prayers. Stay strong and know that we are here if you need to vent or talk. I hope you can find some peace.
Teresa
Posted by bettyg (Member # 6147) on :
i'm going to post this again, and hopefully, it will be POSTED without the link to memory book since NO WEB SITES CAN BE MENTIONED! I forgot 1st time!
tracy,
i read many of the posts left by co-workers! he had 2 different jobs, and i'm forgotten what they were but important since he also was a SUPERVISOR!
i'm going to copy karl's obituary and post it on DR. OZ/OPRAH request for LYME SHOW in MEMORY OF KARL!
this would be post 725 **************************
IN MEMORY OF KARL Joedicke
Wife Stacy wrote, "Karl was only 34. Way to young to die. He started with this in January 2008. Never did we think he would be dead a year later.
I'm going to keep fighting this fight for him because no one deserves this. They did an autopsy and found no cause. They are now doing toxicology. It's such a nightmare because I want to scream at them what the cause is, but they will never listen.
Karl O. Joedicke POSTED: February 27, 2009
Karl Owen Joedicke, 34, died Friday, Feb. 20, 2009, at his residence in Centreville, Va.
He was raised in Falling Waters and attended high school in Hedgesville and attended Shepherd College.
He also had worked for ATF in Martinsburg and was currently employed with the Department of Treasury in Washington, D.C.
He is survived by his loving and devoted wife, Stacey M. Joedicke; his parents, Ingo and Donna Joedicke, of Falling Waters; his sister, Jenine Gardner and Doug, of Hedgesville; his grandparents, Esther and Robert McCarthy and Gisela and Erwin Joedicke; and several nieces.
Funeral services will be held at noon Saturday, Feb. 28, at Church of the Holy Comforter, Vienna, Va.
The family will receive friends one hour prior to the service at the church.
Entombment will follow at Stonewall Memory Gardens in Manassas, Va.
In lieu of flowers, donations may be made in his memory to the Lyme Disease Association Inc., P.O. Box 1438, Jackson, NJ 08527 or Church of the Holy Comforter, 543 Beulah Road, Vienna, VA 22180.
Posted by smjkoj (Member # 15241) on :
Thank you for posting the obituary notice for me.
Someone asked about the autopsy. From what I've been told the autopsy didn't reveal anything and the toxicology is still pending (that will takes months to get).
Bea - it's funny (in the ironic way) that you bring up sleep apnea. He just had the sleep study done the night before and did have it. His shortness of breath was worse that day, so it may have been a combination of factors.
I'm going to speak with the medical examiner to review Karl's illness over the past year. This is a sensitive subject, but if the examiner still has tissue/organ samples (I have no idea if they would or not), I would like for them to be sent to a lab for lyme testing. Do you know a lab I can contact about this?
Again, I really appreciate all the kind words on here.
Peace,
Stacey
Posted by bettyg (Member # 6147) on :
STACEY, so good to see you post again, and i'm glad i had your blessings to post karl's obituary!
i haven't been to oprah's site this afternoon yet to see if they allowed it this time w/out memory book link!!
fyi, i recently had colonoscopy done, and 3 polyps were removed. i wanted to know if hospital lab still had them; took me 7-10 days. no one would outright say, YES OR NO, WE HAVE THEM!
i was going to have 1 sent somewhere for testing of something i learned about here, but my new PCP DECLINED to have it done! what will you learn, etc. so i gave up.
so based upon my conversation w/women in lab who finally said, WE KEEP ALL TISSUE SAMPLES! my guess is yes.
yes, i'd want them sent somewhere; sorry i have NO KNOWLEDGE WHERE! others will come on like TINCUP.
or send a note to ILADS contact me!! www.ilads.org ... i received an email back same day from executive elizabeth there! SHE WOULD KNOW!!
stacey, you and karl have been in our thoughts and prayers daily; now karl is looking down on you and thanking you for being an OUTSTANDING, SUPPORTIVE, AND LOVING WIFE who took on his lyme journey as a companion!
god bless you stacey and family! Posted by TerryK (Member # 8552) on :
I think IgeneX would be the best place to get testing. I called them to see if I could get info and they wondered if he had been tested before and were asking me questions that I didn't know the answers for. They said it would be good if you could call them.
800.832.3200
There was a post somewhere on lymenet about this kind of situation. I'll look for it and post it if I can find it.
Yes, I also thought of sleep apnea because I have it and I know it can be deadly.
Terry
Posted by elle (Member # 7721) on :
I am very sorry for your loss and the tragedies that LD has brought into your life
My husband and I have both sent tissue cultures to MDL. You may want to call and talk to someone in the lab.
Bea Seibert
Posted by LymeCFIDSMCS (Member # 13573) on :
Stacey, I would use both Igenex and Clongen -- Clongen has a much more thorough panel for babesia and bartonella than Igenex, but Igenex does seem the gold standard for Lyme.
You mentioned shortness of breath -- that could certainly be a cardiac issue. It could point to myocarditis or microvascular cardiac dysfunction. I hope you are able to get some answers and I hope they give some peace.
Posted by TerryK (Member # 8552) on :
From a message in October of 2007
"Dr. Paul Duray will still examine tissues for Lyme spirochetes free of charge if your family can get slices to him!!! Phyllis- pmerv- has the info on it!!!!!!!!"
i was posting on our oprah thread about a dr. oz, oprah, and under our skin andy wilson show, and when i went to private message someone whose comments were outstanding; something blinked there showing I HAD PMS ON OPRAH SITE!
i never see this type of thing; invisible to me.
bottom line: i submitted karl's obituary twice; BOTH WERE REJECTED!
1st had the memorybook link on; a NO NO!
i remembered that later, so reposted it again with NO LINKS ON; again it was rejected ... protecting privacy.
so since this did not say what violation i made, i wrote harpo board, and awaiting their comments.
if you feel like it or have the time, would you write your feelings to oprah about a LYME TV SHOW since you've gone the entire route: it being diagnosed, treated, going downhill, and the sudden death.
big thanks; but DO NOT FEEL OBLIGATED ok! -----------------------------------------
you do have to join, and they send you a return email to validate it. their board closes at midnight EASTERN time daily.
Posted by bettyg (Member # 6147) on :
oprah's moderator just got back to me what i did wrong when posting karl's obituary on her board.
1. at tail end, i addressed it from lymenet.org friends.
LINKS ARE NOT PERMITTED !!
2. LDA and church are considered organizations and can NOT be mentioned according to oprah's house rules! Memorial money to be given to them...
well, at least i finally know what i did wrong and why they would not print it either time i posted the 2 posts! Posted by kojmom (Member # 19548) on :
It has been one month since my precious son died. I am so grateful for all your support to my dearest daughter-in-law. It is only through your prayers that we can survive this tragedy. My husband and I loved the peom by David Harkins and have posted at work. I would like to share another peom written by my very dear friend:
O shattered heart, Let time and tears become the glue of mending, Let jagged fragments once again become the shape of love.
O injured mind, Sweet memories bind the open wounds of loss, Let fine recall become the salve to heal.
O battered soul, Dwell shortly in the darkness of the night, Be not tempted by the promise of its friendship.
O valiant heart, Defend your grief with honor, Let life's joy be monument to your loss.
O weakened stride, Regain your strength to walk anew with wisdom The trodden path awaits the journey of the traveler.
C.M. HIXON 3/2/09
Posted by bettyg (Member # 6147) on :
to karl's mom,
thank you for joining our board today in memory of your beloved son, karl, who was taken way too early in life by chronic lyme disease!
our hearts go out to each of you during your deep loss, sorrow, grieving, and resentment that a dr. did NOT correctly diagnose and treat him promptly.
i'm pretty sure i attached my link to my online sympathy collection, and may you find comfort in those there!!
i'm sorry i/we didn't know him personally, but we got to know him thru stacey.
we each share your deep loss; the world is better for karl's having been here on earth. he leaves a big step for others to step into.
if you would feel like doing some active lyme activism in what lyme disease has taken from you, please do these current things going on IF you are up to it in memory of karl
calling congress; your house reps and your 2 senators about our lyme disease bills being HELD up by the awful IDSA, infectious disease society aka infectious drs. who want to KILL OUR BILLS AGAIN!!
writing oprah asking for a lyme disease show in regards to UNDER OUR SKIN lyme dvd documentary and other shows bringing out more of this huge lyme war controversy and in your case ... the loss of one so young in life and many others who commit suicide since nothing is left; they have lost everything!
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xox