Does anyone have this with their lyme disease? I was diagnosed with it last week after a xray.
Does this get better with treatment for you? Is there anything to help the symptoms of it until the lyme goes away? They gave me reglan and it made me feel really bad.
Posted by JKMMC09 (Member # 15795) on :
My daughter has severe GP, it has not gotten better for w/ Lyme treatment (in our case), but I know of MANY people who have had it improve w/ treatment.
Best of luck to you!
Posted by kgg (Member # 5867) on :
I am sorry Buster that you are dealing with this. Not fun... Have you read the article about Lyme and the gut? Here is the link to it.
It is from the website The Human Side of Lyme. Very good!
Best, Karen
Posted by Buster (Member # 19472) on :
Yes I have read that article. It is a very good article but doesn't offer much insight for making digestion better.
I have a lot of nausea, stomach spasms, and stomach soreness. I wonder if hydrochloric acid helps this.
Posted by zombie_mummy (Member # 17402) on :
I have it too. It is getting better with photon treatment and the Specific Carbohydrate Diet.
Posted by Buster (Member # 19472) on :
What is photon treatment Zombie?
Posted by Lymetoo (Member # 743) on :
I think I have it. I'm taking Reglan and it helps. Try taking only a few pills a day... not all day. I couldn't take it with every meal.
I was a Zombie then!
Posted by AZURE WISH (Member # 804) on :
I take reglean and it helps.
I also take digestive enzymes. You may want to ask your dr about them. Also when my gastroparesis is really flared i really have to watch what I eat.
Harder to digest foods just are not doable for me then.
Posted by Buster (Member # 19472) on :
I have tried the reglan, it didn't help even at low dose. It made me agitated like some antidepressants do.
Posted by AZURE WISH (Member # 804) on :
Are you watching what you eat? That also makes a big difference for me when it is bad.
Also have you lloked on gastroparesis message boards? I read that some of them (that cant take reglean) use something called motillium (sp?). I haven't used it so i dont know how good it is or how much side effects.
Maybe check out a gastroparesis board.
Posted by lovingattitude (Member # 17569) on :
Hi Buster,
I have gastroparesis too. I had it for about seven months, then it went away for over a year and has returned again.
I couldn't take reglan. It stimulates the central nervous system, and made my vision symptoms and other symptoms worse.
I have just started taking Iberogast (a mix of herbs) which I find works better than reglan without the side effects.
Diet is a huge thing with gastroparesis. On bad days I can barely get down broth. Pureeing meals helps me. I also eat alot of soup so any veggies are well cooked. I have to stay away from dairy, gluten, and anything with alot of fiber. No raw veggies or fruits.
Here is a good site to check out: http:www.gicare.com/diets/gastroparesis.aspx
As far as stomach soreness, is it burning? I took carafate to coat my stomach which helped with the burning.
If it's just that really full pain, maybe eating a small amount several times a day will help.
Posted by Buster (Member # 19472) on :
Some days are worse than others for me. My stomach is the sore abb region, with stomach spasms, and I am nauseated most of the time. I notice more nausea when I am lying down or reclined as well.
It's weird, the only drug that has ever helped is Ativan... none of the nausea meds seem to help me. I will check out that herb and motillum.
Posted by bettyg (Member # 6147) on :
buster,
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
please go to my newbie links, copy the entire thing, and then print this off....FINANCIAL BURDENS compiled by melanie reber print off pages 74 - 92; outstanding info there. i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
NOTE: you do NOT have to use " ", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "bold" codes so it's regular type text we read vs. the dark, harsh/painful bolding, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and bolding is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
Posted by Tracy9 (Member # 7521) on :
Join us over on www.lymefriends.com. Trish over there suffers from this as well.
Posted by zombie_mummy (Member # 17402) on :
quote:Originally posted by Buster: What is photon treatment Zombie?
I returned from Germany a month ago, where I had undergone 3.5 weeks of photon treatment with a machine called the Bionic 880. Here is the main thread where people discuss this therapy:
![[Wink]](wink.gif)
otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.