I went to a neurologist and wants to start me on copaxone to stop lesions on brain.
I did some research and this particular med does not have a steriod in it, so it won't suppress immune system.
does anyone know any info or personal experiences with any of this?
any info would be great.
does everyone have MS?
Does anyone anything about Epstein barr virus???????
Studies say that it brings out other things in ones body,like MS
Anyone else heard this?
Posted by SForsgren (Member # 7686) on :
Sounds like the neuro is treating you as if you have MS and not Lyme. I hope you have a good Lyme doctor if you have Lyme as well.
Posted by lymeherx (Member # 17182) on :
How do I get good LLMD? Site is always down. I don't like DR.currently treating me
Posted by lymeherx (Member # 17182) on :
the neuro said even if I have Lyme (
which I do) the spots will stop. that I can be on the shots and antibiotics. the shots create a barrier so nothing can attack brain further
Posted by njlymemom (Member # 15088) on :
I will share my experience with you. Was msdx with MS for over 10 yrs, and on copaxone for 8. Brain lesions did not disappear or shrink with copaxone. When I started abx brain lesions became smaller.
Copaxone seemed to protect my peripheral nervous system. Less numbness and heaviness in arms and legs.
However, it did not protect my brain. By 2001 I was living with (and did not know at the time) severe encephalitis. I almost died, and was dx with Lyme and coinfections at the eleventh hour.Neuro wanted me on pain meds and said that "MS sometimes takes this course", she had given up on me.
Run, run as fast as you can away from the neuro, and find a llmd.