LymeNet Flash: I think I need to be in a padded room

This is topic I think I need to be in a padded room in forum Medical Questions at LymeNet Flash.

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Posted by JaimieB (Member # 19076) on :

Good morning ladies and gentlemen!

I am officially going to say that I think I am going crazy!!

I have been on treatment for a month now (400 mg doxy) daily. I actually thought I was feeling ok. My sharp pains in my head lessend and I had some energy.

Now, Good Lord! ITS BACK!! Stiff neck, shaking, jerking, sharp pains in head, chest pain. I also am having alot of tingling in both hands that I never had before. (It feels like its raining on my hands). My daily fever is back.

So heres the scary part, everything seems like a dream. My memory is so bad now. I get in the car and start driving and then forget where I was going. I wake up in the morning and feel like I got really intoxicated and everything is a blue, does that make sense?

I am VERY irritable! I am biting peoples heads off and get all worked up for nothing.

I am so scared that I am losing my mind. I am crying just thinking about it.

I am getting tested today for Bart,babs,and ech.

Posted by shelly23 (Member # 16124) on :

Hey Jaimie ,
We all have along joruney ahead your not crazy.. Although i think we could be fixed faster/better if we all were [Smile]

At least doctors care about crazy ppl...

Posted by JaimieB (Member # 19076) on :

Thank you, Shelly!! I just havent felt this out of place. I guess I thought I would not have any new and/or worse symptoms since I was on abx.

Posted by ticked-offinNc (Member # 15420) on :

Heh Jaimie,

You are more than welcome to come use my padded room. [Smile]

IT is like a dream. I felt like a ghost, not alive, not dead,just around.

Do you run to write something down so you dont forget it, but forget it before you can get to the paper and pen?

The good part is that it is that cooking becomes impossible, so someone else has to volunteer, or no one eats.

I dont know how treatment affected everyone else,

but for a long time, I got used to being this way.

Some days you can laugh, other days cry from frustration, and when you are tired, you can warn others to watch out!

I am reminded of how you feel everyday when I try to make the bed. I cant figure out which way the comforter goes.

Before long you may notice that you wake up from your dream in the evening some days.

Then you will notice you have an ok day.

Just try to get through today.Dont look any further.

You are not alone.

Posted by JaimieB (Member # 19076) on :

Thank you, Ticked! What you just said is what I am going through along with others more than likely. I feel like I am just hanging out.

YES, I will either forget what I was going to write down. If I do write it down, I misplace it.

So is this the treatment or just my lyme playing with me?

Posted by TerryK (Member # 8552) on :

Sorry you are feeling so badly.

Sounds like die-off symptoms or what is often called a herx. Detoxification strategies can be very helpful. Lots of posts on this site about detox.

Hope you feel better soon.
Terry

Posted by JaimieB (Member # 19076) on :

I guess I need to read on herxing again. I was under the impression that I would be puking my brains out not feeling like this.

Posted by lymeHerx001 (Member # 6215) on :

doxy makes my psychotic. Still cant take it.

Posted by Tincup (Member # 5829) on :

Sounds like a herx to me.

Timing is right too.

Hope it clears soon!

[Big Grin]

Posted by JaimieB (Member # 19076) on :

Maybe thats why I am totally out of my mind. I def feel phsycotic!

Posted by jt345 (Member # 19638) on :

Hi Jaimie

I know it won't help but I was right were You are at when I first came to this board. I think in 2000.

Doxy will get in your brain. I think all in all that was the worst for me and still is. Please don't go away like I did.Stick around ,vent rant,rave,cry,it is so much easier too have the help here than go it alone.

If You ever get short with people here don't think twice of it,it is part of the illness.

Feel free too look me up anytime,I know how You feel.
appleseed

Posted by seekhelp (Member # 15067) on :

Doxy did some very bad things to me. THe head pressure, anxiety, and most of all darkness it gave me was unbearable. I was not liking how I was feeling on it. I knew something was wrong.

Posted by unshakeable333 (Member # 19614) on :

Don't worry, my padded room is well worn in at this point myself.

On doxy for two months now, hit the second monthly major mental herx last week, only lost one friend so that's progress!! haaa... Okay, so I'm a sarcastic *******, sue me.

I also at the same time started levaquin for bart that did not go well... at all. I told a friend something while going through that and now she's not talking to me anymore, ooops... I think I begged her to kill me or something along those lines. [loco]

I've been wanting to post more here, but my brain is seriously such a mess from the Bart and Lyme, I've felt it better to not open my mouth and show how I'm really doing.

I'm better in this moment, but wait 5 mins, then I'll be sobbing, wait 5 more, and then I'll bite your leg.

Posted by bettyg (Member # 6147) on :

jaime, [group hug]

sorry you're going thru a severe herx from the sounds of it.

have you been keeping track on days like this what specific symptoms START and when they STOP so you have some background of the time issues.

definitely the NEURO lyme acting up for you. if it were the other way around, we'd have to have our own PADDED ROOM FACTORY because we couldn't keep up with the demand for them! [lol]

just remember going thru this is the start of your lyme journey to REMISSION; your and our mutual goal!! [Smile]

hang in there, and rant anytime you need to ok.

Posted by Erica741 (Member # 15186) on :

Welcome to the club Jaimie! [Big Grin]

Hopefully this herx will pass quickly and you'll feel more like yourself soon.

Posted by JaimieB (Member # 19076) on :

Thank you all for your encouraging words!! I do feel a little better. Yesterday was AWFUL!!(totally OT) And to add fuel to the fire, I had to end contact with my ex boyfriend. That was really upsetting me as well. It had to be done though. The less stress, the better.

So, and update....I went to my pcp yesterday to get a coninfections test. The lab they use is covered under my plan. I was trying to save the 700.00. Well, he wouldnt draw my blood for it because he said that the tests arent that reliable and they are treated with Doxy which I am on now.

He then decided to do another WB at LabCorp. He said I would be better after a month of Doxy (Yea, I got to tell him that was BS) and he didnt think its lyme. So, I let him do the test. I know LC isnt as good as Igenx but whatever.

So, I left there crying. My question is what is everyone on for their co-inf? Are you all on Doxy them something else for the Lyme?

I am so glad I dont drink anymore!!