I was wondering if the herxing goes away after a while with treatment or does it last for the whole treatment?
I just started my treatment, second week. We traced my symptoms to childhood and I am 45 now.
I am very afraid that I will not get better from this, because so far every doctor I have seen has made things worse.
They gave me cortisone , when I told them it was making my pain worse they told me I needed more treatments of cortisone. That was when I trusted doctors.
They made me almost bed bound. If I walk or sit I pay for it with severe burning in waist and legs.
Recently it has started in my shoulders also. We travel in a van with a mattress in the back.
That way I can lay flat and then sit or walk once we get to wherever we are going.
It is sooo hard to trust ANY doctor even my LLMD now. So I am asking you.
Thanks in advance, Conny
__________________________________________ EXTRA
If you have a mouse with a wheel there is a setting in the control panel under mouse.
There you can have it scroll 1 line at a time. Default is 3 lines. It helps me with reading long stuff.
Because I can keep the line I am on at the top of the page and simply scroll to keep up with my reading.
Hope this helps.
Posted by Tincup (Member # 5829) on :
Hey there.. thanks for the tip about the mouse!
Herxing is different for everyone.
I hope yours clears up soon. Be sure to tell your doctor if it doesn't. OK?
Posted by kellyjk4 (Member # 19731) on :
Hi Conny,
I've had the same concern.
My first LLMD appt is in May, and I'm afraid of feeling worse than I already to and having it last for a long time.
The path that most of us have taken does make it hard to trust drs, but I think if you don't trust your LLMD, then you need another one.
This dr is going to be the most important person in your life (besides family) for a while, and if you don't trust him, your recovery will be even more stressful.
I hope you feel better soon.
Make sure you come back and post how you are doing.
Posted by catnippy (Member # 18641) on :
Thanks guys for your responses. If I have a choice I would love a second opinion.
Does anyone know of a LLMD in SC or Georgia other than dr J?
Thanks, Conny
Posted by dguy (Member # 8979) on :
I had similar concerns. The treatment protocol I'm following allows for gradual increases in pulsed doses of abx. It also provides benicar, a med that helps reduce the inflammation/herx without shutting down the immune system like steroids do. Both the benicar and the gradual abx dose increases help me proceed at a pace that is tolerable for me. Yes, it's still years of treatment and herxing, but at least it's tolerable.
![[Big Grin]](biggrin.gif)