I was really scared that they was going to say that what I had was MS.
Nope , the DR actually said that my symptoms did seem to be lyme related .
He also said that all the joint popping that i had during my exam was not a symptom of MS .
He said he was almost certain that it was lyme , but since my test only showed 41 band that it was neg. so then he said that it wasnt lyme .
Here is the kicker ... he said that i must have some kind of bacterial infection that was affecting my joints .
But it more than likely wasnt lyme .
But he wants to do an MRI to see if there are any lyme or ms lessions on my brain.
WHAT?????????
Talk about beating around the bush . He was talking his self in circles !
My question now is should i go ahead and get a IGENX test done now that i have taken 2 months of antibiotics .
Then get a llmd appt.
I just feel better that he did rule out MS .
Posted by hurtingramma (Member # 7770) on :
Yes to both your questons. I had test after test for MS before I finally clamored enough and they sent me to a rheumy - who diagnosed me with FM. Finally, a few years later I found a LLMD and was immediately diagnosed with Lyme.
Posted by Wonko (Member # 18318) on :
I'd get to an LLMD.
Even if your MRI does show lesions, it is not always easy to tell if they are from MS or from Lyme.
I have non-specific lesions, and since my ELISA was negative, my doctors didn't think it was Lyme. But they were not all typical MS lesions, either. So the test didn't help, I was still undiagnosed.
When I had my Igenex WB, I only had IgG 39+ and 41+++, and IgM 41+. I also had 2 negative ELISAs. So I'm CDC negative. But I've had an obvious response to abx.
Lots of times you need to wait awhile to get in for an initial appt. So that's all the more reason to start searching for an LLMD and get an appt. set up soon.
You can always work in "parallel," finish getting a proper MS work-up while starting to see the LLMD.
Posted by Keebler (Member # 12673) on :
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The MRI can wait.
I would see the LLMD first. S/he can order the MRI which will be read by LL radiologists.
However, if there is a way to have the LLMD with whom you schedule to order an MRI with a particular radiologist - before your consult - then you'd have it by your first appointment.
But, if it's read by just a typical radiologist, it will not be the best diagnostic measure.
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Posted by Tincup (Member # 5829) on :
I'm with Keeb on this.
Hold off on the expense of an MRI. If a LLMD orders it, consider it.. but this duck is fishing and you don't need to waste YOUR money while he is playing games.
OR your insurance companies money.
Remember...
A negative test result (MRI or whatever) can give your insurance company more ammo to use against you.
And given the opportunity, they will use it against you.
PS. The duck thinks you have ABLS.
Anything But Lyme Syndrome.
What I want to know is...
HOW DO THEY GET SO STUPID?
Posted by lymie tony z (Member # 5130) on :
Right on Cup!!
I had an ID duck tell me "you don't have lyme disease, but I'm going to OK" -get this- "lyme arthritis, antibiotics"!
That one, has GOT to, take the CAKE!
Quit fooling around with this dumbo neuro or Rome will be burning by the time he gets you a REAL DIAGNOSIS!
zman
Posted by 'Kete-tracker (Member # 17189) on :
The neuro was "almost certain" it was Lyme, then saw some standard Western Blot results, w/ just the 41 + (indeed considered "negative"), and then said, "It isn't Lyme." ?
Sounds like another duck relying on the accurracy of these immune response tests. ANY pathologist, LLMD or Lyme researcher knows all too well the problems w/ the current tests. I just wish more PCPs would "get it".
Posted by randibear (Member # 11290) on :
what!!!! now i'm confused....first you say you will and then you won't, then you say you do and then you don't....
get another doc...
Posted by lymesc? (Member # 19564) on :
I did follow his advise and i got the mri done today.
Posted by tpap1006 (Member # 19634) on :
lymesc, as we discussed via pms, the joint popping- I have that same thing!! Trace
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