I've been seeing an LLMD since August of 2008. Treatment includes abx (Zith & Mino on alternating days) plus Mepron. I was on Plaquenil but had to stop due to blurry vision and other side effects (as directed by my doc).
So far I've only noticed a bit more energy. No other symptoms (mainly CNS) have been touched. I thought there was some improvement in my ability to think, for lack of a better description, but it took me five minutes to find and then figure out what the "Post a new topic" icon" at the top of the page meant!
Plus I continue to have migraines, which one would think the Mepron would address.
I've been ill since 1990, came down with what I thought was the flu one day and have never been the same.
My most troubling symptoms are information processing, memory problems, photosensitivity, sensory overload, and motion sickness.
I did test positive for Bb at Igenex. My doc suspects Babesia based on symptoms, and he is now testing me for Bart at Fry Labs.
I have been disabled by this since 1991 and just barely manage to take care of my needs. Even then, I have someone come in and clean and send out my laundry.
My doc claims he can get me back to 80% of normal function in two years. It's been nine months and so far I've seen a 5% improvement.
I suspect other pathogens, and may go on an antiviral as well (based on EBV results).
Is this Lyme? I seriously wonder. If it is Lyme, is my response in line with other peoples?
[ 04-20-2009, 05:17 PM: Message edited by: lassie ]
Posted by jbiology (Member # 15839) on :
I saw very little improvement in the first year... actually, many of my symptoms got much worse before they got better. The second year was much better... and after the third year I was symptom free for two months and finally stopped my antibiotics.
Unfortunately, six months later my symptoms are coming back :-(
Posted by feelfit (Member # 12770) on :
In answer to your subject topic, I hope so! I was undiagnosed for 18 years. Saw resolution of joint sx in first 2 months of treatment.
So far, nothing has touched my neuro symptoms...
I have been treating since NOV 2007.
Hang in there, otheres here were undiagnosed a lot longer and are doing well today.
Feelfit
Posted by sixgoofykids (Member # 11141) on :
I was undiagnosed for 30 years and am very, very close to remission now. It's not too late to treat, and treatment is very slow, especially in the beginning.
Posted by Need Lots of Help (Member # 18603) on :
Lassie,
Sorry you are having trouble, but I am glad you asked the question you did. Some of the answers from the other contributers made me feel a little better.
I have been sick for 20 years. Unfortunately, I do not know the exact date and time of bite like some do, but I know how long I have felt like crap.
My fatigue is my worst problem, with pain coming in second. I actually just began getting the neuro symptoms (or at least I think I have) maybe some of my troubles in school were neuro.
I have been treating since November 2008. And, I too feel like I am getting worse. I had to go to file for disability today, I have been fighting it for years, and I finally had no choice. We are broke.
My LLMD did not give me a timeframe as to when I might feel better. He said some folks take longer than others. And, it is not always based on how long you have been sick. It is also based on how healthy you were, co-infections, and other viruses you have going on. Also make sure your thyroid, adrenal, hormonal deficiencies are met.
I hope you the best, and I hope you get better. Hang in there and keep us posted, as you may be the hope for someone else.....like me!!
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