Really hard for me to choose as there are so many awful ones...but,
wired, overly-hyped nervous system
...if I could get rid of that...it would be heaven.
Posted by adamm (Member # 11910) on :
Cognitive impairment!
Posted by sixgoofykids (Member # 11141) on :
Well, now that I'm almost better, I'd have to say insomnia.
If you asked when I was really, really sick, I would have said fatigue.
Posted by LittleLymie19 (Member # 15610) on :
My "heart attack" symptoms, as I like to call them. Chest pain, shortness of breath, left arm pain, dizziness.
Posted by Lymetoo (Member # 743) on :
Sciatic nerve pain .. though I should list atrial fibrillation as first!! The pain is unbearable when it hits.
Posted by METALLlC BLUE (Member # 6628) on :
Sleep Disorder
Posted by bwillis (Member # 18811) on :
Pain
Posted by Amy C (Member # 19297) on :
Fatigue for sure!!
Then pain that comes from doing things when you are not fatigue.
Since I am fatigue so much I don't do alot. So when I do get some energy then I get the pain part.
Posted by disturbedme (Member # 12346) on :
Hard to choose just one. I don't know which to choose from. Either the extreme neck stiffness and back pain, feeling like I'm going to lose consciousness any moment, or where I feel like I've been poisoned and every part of my being just aches and feels very 'off' and weird.
But then of course I'd also love to get rid of the chronic tachycardia I have and get off beta blockers for it... but I don't see that happening any time soon. I'd also like to get rid of palpitations for good.
Posted by feelfit (Member # 12770) on :
head sensations
Posted by kitty9309 (Member # 19945) on :
My weird dizziness. Have had it off and on for 15 years following bulls-eye rash. It has been 3 years straight after steroids for 1 month for a mis-diagnosis of Meneire's Disease.
It is like getting off a treadmill and still feeling like I am in motion. Motion sickness without the vomiting. It really s***. Posted by seekhelp (Member # 15067) on :
w/o a doubt muscle tightness/neck stiffness.
Posted by mina222 (Member # 19825) on :
Dizziness/ pulsating in head/eyes. (they go together).
Posted by electrolite (Member # 16404) on :
quote:Originally posted by mina222: Dizziness/pulsating in head/eyes (they go together).
Ditto.
Posted by Amanda (Member # 14107) on :
neck pain! Insomnia!
Wait, I was only supposed to pick one, ok...
neck pain!
Posted by xoxoxox (Member # 18778) on :
Currently, it would be the joint pain/stiffness. Ask me again next month & it's likely to be something else Posted by Need Lots of Help (Member # 18603) on :
That is easy for me to answer!!!
FATIGUE!!! NO DOUBT!!!
Shalome
Posted by joalo (Member # 12752) on :
Fatigue!!
Posted by Snailhead (Member # 18091) on :
The feeling of being poisoned, or what I call "toxic blood".
Posted by Snailhead (Member # 18091) on :
Great question, by the way. It's interesting to hear what others have "the worst".
Posted by abbyjo (Member # 16073) on :
Air hunger.
Posted by Hoosiers51 (Member # 15759) on :
Fatigue.
My brain is doing a lot better, so if I could just get rid of the fatigue, it would completely change my life. I would actually have one!
Posted by lymeHerx001 (Member # 6215) on :
VERTIGO!!!!!!!!!!!!!!!!!
Posted by Dawnee (Member # 15089) on :
Well my first thought would have been the heart symptoms. But those are gone with treatment.
Now I have to say "Hyped up nervous system" MOST DEFINITELY!
Posted by Pinelady (Member # 18524) on :
Bone Pain.
Posted by bettyg (Member # 6147) on :
these go together: extreme sensitivty of eyes to lights, glare, reflection and NOISE/SOUNDS! ************************************************
cause me so much pain on top of 18 pressure point pain
Posted by aiden424 (Member # 7633) on :
Extreme exercise intolerance. Which sets off all my other symptoms.
Posted by Elizabeth Erin (Member # 13866) on :
TINGLING ON TONGUE
Posted by dguy (Member # 8979) on :
dizziness
Posted by John S (Member # 19756) on :
My mind. As someone who likes to think this is almost like some biblical curse.
The brain fog as it is so aptly called really makes you feel like you are no longer you.
I can take the pain and all the other weirdness, but having my mind impaired really blows.
Posted by Ocean (Member # 3496) on :
Hmmmm, that's a tough one, either anxiety/panic attacks (which have gotten much better) or fatigue. today I am so tired, I've been in bed most of the day, although at least my 5 and 2 year old will let me lay in bed while we play 'barbies' together =)
What sweet babies I have, they are my reason for living every day =)
Take care, Ocean
Posted by Dekrator48 (Member # 18239) on :
I'd have to say pain...especially in my neck.....insomnia is a close 2nd though.
Posted by hurtingramma (Member # 7770) on :
I'm with Dekrator48 - exactly what I would say
Posted by Larkspur (Member # 5131) on :
Definitely the fatigue
Posted by Al (Member # 9420) on :
. Dizziness,with faint feeling,Disautonomias.
-----------------------------
Looks like the top three are,
1)Fatigue 2)neck pain 3)Dizziness
Posted by tickssuck (Member # 15388) on :
Yes AL...I think you're right on your 1-3. I too hate the neck pain, my fatigue is manageable however, dizziness is also a bummer for me.
I believe I have dyautonomias as well...will any of this ever improve?
I apologize, as I think I am at a low point right now; but, the thought of living another 30-40 years in this state - status quo - is really more frightening than it actually just killing me.
I am feeling frustrated with my poor response to tx. 13 months into tx with very little improvement. Sick for 4 years with Lyme and all co-infections prior to diagnosis.
Anyway, started this thread just to see what ails others the most. Wishing everybody improvement. Thanks for input and keep it coming! TS
Posted by Starfall1969 (Member # 17353) on :
My visual symptoms--I hate this fearing that I'm going blind, but the eye docs can't find anything wrong.
Posted by sammy (Member # 13952) on :
Fatigue, it makes everything worse.
Posted by opus2828 (Member # 15407) on :
Neuro symptoms with brain fog although heart symptoms come a close second.
Posted by jt345 (Member # 19638) on :
I want my brain back, I can take meds that allow me to play an insturment,but I need my brain too put it togeather. appleseed
Posted by hshbmom (Member # 9478) on :
![[dizzy]](graemlins/dizzy.gif)
![[Smile]](smile.gif)