I started seeing my LLMD on April 1st. After a couple of weeks I was feeling awesome. Even when I went to see him - feelng awesome. I was a few days before my period so I knew what to expect. The one main thing that came backwas fatigue. I am assuming this is the Lyme cycling? I have also been SO moody and sad. I think part of it is that I was feeling so great and now I am feeling yucky again. I am still on my drugs (Ceftin 7 days, Doxy 5 days and Tindamax on weekends). My doc told me that once I get through a menstrual cycle relatively (Lyme) symptom free then we will start to taper off. I am just feeling hopeless today. Trying to keep up with my lite girls and the house and all that is involved in life is making me sad. There are so many beautiful things in the world and I hate feeling sad. Should I try SAM-e or something? Will that help with my moodiness? Thanks so much for reading. Counting my blessings, Sam
Posted by Tiramisu (Member # 15082) on :
That's interesting what your llmd said about getting through a period relatively symptom-free.
Keep your chin up. You may have many ups and downs, unfortunately. When you are feeling improvement, it is exciting. Then it's quite a let down to feel worse again, even if it's just your mood.
Try not to be too hard on yourself. Tell yourself better days are ahead.
Posted by baileygirl (Member # 19658) on :
Thank you. It has been a rough couple of days.
Posted by Tincup (Member # 5829) on :
If you weren't moody I would be shocked!
BTW- do you know what a herx is? You didn't mention that so I just have to ask.
And Tira is right.. very accurate!
You will have ups and downs. Some mild.. and some that make you want to step back and say .. HUMPF!
So hang in there... ok?
It WILL get better!!! I promise. And I rarely promise anything.
Posted by sixgoofykids (Member # 11141) on :
Lyme has its ups and downs. Be patient with it. Enjoy your good days and take care of yourself on your bad days. Don't worry about all you are missing as there are even lessons in having Lyme .... I was very, very sick for years and felt I missed so much with my kids.
Now that I am better, I see the tender, hard working, compassionate people they are becoming and know that taking care of me and seeing me suffer with dignity helped to shape them into these wonderful people.
Be easier on yourself. Enjoy what you have .... don't fret over what you don't. It's hard when you feel horrible, especially after having some good days.
If you're feeling depressed, it can be a symptom of Lyme, talk to your LLMD about it. He may want you to take something for it.
Posted by disturbedme (Member # 12346) on :
I agree with everyone else, Lyme has its ups and downs. It's like literally being on a roller coaster, but not a fun one and definitely not one any of us would have wanted to wait in line for.
I am not sure I agree totally with your doctor on tapering off when you start feeling more normal during your menstrual cycle. Since the time I've had lyme, I've had HORRIBLE menstrual cycles where I felt like I was dying not just from really bad cramps but from Lyme flare-ups, but there have been a few in there that were relatively normal and I felt fine during them... because, once again, Lyme is a roller coaster. and it seems to love to confuse us and keep us guessing.
Posted by baileygirl (Member # 19658) on :
Thanks everyone. I had anxiety problems long before Lyme and it has all been so much worse lately. I am going to try an Rx. It is time.
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