I can read it and understand, but not explain.
Posted by Marz (Member # 3446) on :
Leelee, I'm remembering after reading Crist's article that my LLMD said she would normally give me heparin, but my genetic testing results said I wouldn't tolerate it.
She said if I ever needed it in an emergency room situation, I should get only half the normal dose. My PCP laughed at this idea when I told him but I trust my LLMD here.
I can't remember if I took some kind of alternative med. or if the antibiotics just took care of it with time.
It might be something to ask your LLMD if he would bring up prescribing a blood thinner.
Posted by Cold Feet (Member # 9882) on :
This is a great site for any lab-related question:
This is one of the most important features of Bb we
have got to get across to the Doc.s. While most
Sed rates are high in infection, in Bb they are
usually low. This is because the Bb invade the
cells making them look big and juicy and full of
protein, so they look no further. If they did
look to see if they were actually full of protein
like a normal sed rate they would see it is
false. The protein is not there. So that causes
us to be sick and undiagnosed. Automated
hemoglobin levels are false too in Bb.
Posted by astriapage (Member # 17120) on :
Last year when I got deathly ill my sed rate was 80!
At this time I had a fever of 105 and an infection in my heart.
After 3 weeks in hospital, I had 6 weeks of IV abx, and every week they would monitor my sed rate to see if I was getting better.
Every week it would drop by about 10 points.
After my open heart surgery I was in hospital for 9 days, but it was not because of surgery, it was because they could not get my blood thin enough to send me home.
Now I am on 10 mg. of coumadin which is almost unheard of, and I know it is the Lyme that makes my blood so terribly thick.
I know this is confusing, I just wanted to relay my experience with Sed and hypercoagulation.
Posted by Pinelady (Member # 18524) on :
Astria, may I please ask what infection they diagnosed you with. Thanks
Posted by Leelee (Member # 19112) on :
Pinelady,
I understand what you mean, I think. I have a sedimentation rate of 1 and I have low protein, serum.
So, that means my blood cells are infected with Bb which makes them look like healthy blood cells and it also makes them fall very slowly in the sedimentation test.
Do you think I understand correctly? Thanks so much for your explanation.
Posted by kitty9309 (Member # 19945) on :
Leelee-
My Sed Rate is also a 1. CRP is low.
C4a is now triple what it was in December! My TGF B1 is sky high. Both indicate inflammation.
I plan to ask the doctor about this next week.
Will let you know what I hear.
~Kitty
(Love the MLK quote, by the way!)
Posted by TO LIFE (Member # 12371) on :
Hi Folks,
An elevated sed. rate means inflammation. Inflammation and infection go together. Pin pointing the infection is the million dollar question, don't you think?
Pinelady, alot of people with elevated sed. rate are R/A positive. R/A is linked to Lyme isn't it?
If your sed. rate is normal you are better off.
Like astriapage, my sed. rate is and has been elevated. I have been told my blood is thick as well.
Posted by Pinelady (Member # 18524) on :
I tend to think that people who have no protein
yet show no infection
are worse off than people who show positive
infection. Meaning at least you got something to
treat. LOL I suppose it might be determined by
how long you had to go with a sed rate of 1-2,
and elevated hemoglobin before someone finally
looked to see if you actually did have any
protein. You got it right Leelee. It could be
that the ones with the inflammation or elevated
sed rates have greater co infections or viral
loads. While it may be a time line in the
determining factors. I am glad we have Montagnier
working on this. He (co)-discovered the Aids virus
and his son had Lyme disease. This is so complex.
Who would not believe that a 105 temp would not
kill Bb in us cold blooded Lymies?
Posted by Leelee (Member # 19112) on :
Hi Pinelady,
Thank you for confirming my reasoning.
Your comment about a high fever not killing Bb reminded me of something. It's a little off-topic, but...
My niece put a tick in a jar and filled it up with rubbing alcohol and let it sit for four entire days. The tick did not die. That speaks to how tenacious and persistent these horrible creatures are. It makes sense their "poison" is so horribly powerful too.
Posted by Pinelady (Member # 18524) on :
I did the same thing with a Black Widow a few
years ago. I put her and her egg sack in a jar and
poured pure poison it it. My daughter was small and
we had so many of these I wanted her to see and
learn this is one that can really hurt. She died
and I thought it would take care of the
offspring too. I was shocked when a neighbor came
in a month later and asked what I was doing with
a bunch of baby spiders in a jar!
Posted by Leelee (Member # 19112) on :
Yikes! Pinelady, that is scary! I would have keeled over. Posted by Pinelady (Member # 18524) on :
12/19/07 11:32 CBCWBC: 8.4 Hemoglobin Blood: 14.9 PCV BLOOD: 44 PLATELET COUNT: 211 Red Blood Cells: 4.76 MCV: 93 MCH: 31.3* (27-31) Mean Corpuscle Hemoglobin Concentration: 33.8 Red Blood Cells Width Distribution: 13.1 Then when I begged them to find the truth. I get:
3/11/09CompMetabPROTEIN TOTAL BLOOD: 6.8(6.1-8.4) ALBUMIN BLOOD: 4.1 BILIRUBIN TOTAL BLOOD: 0.6 ALKALINE PHOSPHATASE BLD: 67 SGOT Blood: 19 SGPT BLOOD: 11 Sed rate remained 2 throughout. Now that is what I mean when I say our blood can tell lies.
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