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Posted by joey20021714 (Member # 20113) on :
 
'
Hi...I recently received a positive Lyme test from Igenex, and my primary doctor wants me to start taking Amoxicillin - 500 MG - 3 times a day.

I have pretty severe Dysautonomia and am EXTREMELY SENSITIVE to meds.

I've taken Ceftin before, but had to start at 250 MG twice a day and work up to 500 MG.


My main questions are:

1) What do you all think about taking Amoxicillin for Lyme?

2) What is the lowest dose that I could start on?


From what I've heard, It is stronger than Ceftin, but easier than Doxy.

Do you think I could start out at 250 MG - 3 times a day, and then work up to 500 MG?

I'm just worried that It will be too much of a stimulant for my body, as I am super sensitive.


Thank you so much, I really appreciate the help and advice!!! [Smile]
'

[ 05-15-2009, 02:07 PM: Message edited by: joey20021714 ]
 
Posted by Geneal (Member # 10375) on :
 
Unless your doc prescribes it as 250mg then how can you "break" the dosage?

My husband did 3000mg of amoxi a day.

My neighbor's Dad (Lyme also) takes the same.

He has Insulin Dependent Diabetes and everything else

Makes his creatine levels go up.

So, ask your doc to Rx you 250mg at 6 pills per day.

That way you can ramp up slowly.

Hugs,

Geneal
 
Posted by dmc (Member # 5102) on :
 
I'm on 3000mg a day w/ probenecid 1500mg a day.

Probenecid is to help keep the amoxi in your system longer.
 
Posted by migs (Member # 16496) on :
 
I didn't get anything from it until I went up to 4500mg a day with 1500mg Probenecid a day.

Then I herxed and it really helped me.
 
Posted by njlymemom (Member # 15088) on :
 
amox works at the right levels

blood work can monitor the level you have, should be done 2 hours after dosage
 
Posted by Abxnomore (Member # 18936) on :
 
Amoxi does work but as stated at very high levels. At one point I was taking 18,000mg daily (that's not a typo) with a cyst buster and a macrolide ABX.

The only way for orals to have half a chance of passing the BBB is at super high doses.
 
Posted by joey20021714 (Member # 20113) on :
 
Wow, 18,000 mg a day?

My doctor is nice and basically leaving it up to me as to whether I start at 250 mg or 500 mg 3x a day, so I just have to decide I guess.

Do you know if Amoxi would have stimulant type effects at all? (not good for me)

Is it generally less mild than Ceftin?

Thanks so much everyone!!!!!! [Smile]
 
Posted by NMN (Member # 11007) on :
 
I don't believe anything less than 3000 mg is worth taking for lyme. Thats from one of the most conservative of LLMD's I was under.
 
Posted by mom of boys (Member # 17629) on :
 
If your sensitive then start slow and work your

way up. I'm on 1000mg 2x a day for 2 months. I

have an appointment Monday and then we'll go up

to 3000mg a day. I have alot of trouble

tolerating meds. Doxy was working and then had

terrible gi problems and now I'm back to the

start again. This disease is so frustrating.

Every time I get ahead I have a reaction. Good

luck.
 
Posted by joey20021714 (Member # 20113) on :
 
Yeah, I'm really sensitive, so we decided to start out really low and hope to work up.

Yesterday was my first dose, and i'm taking a total of 750 mg / day.

Is it true that taking yogurt and/or probiotics within 2 hours of a dose will weaken the effect of the anti-biotic?

Also, what about taking dairy with ammoxicillin?

Thanks so much for the help everyone!!!
 
Posted by sixgoofykids (Member # 11141) on :
 
Yes, work up. When you get to full dose get a peak level test.

I weighed under 130 when I took it and took 7500 mg per day with probenecid. You want the probenecid because it keeps the amoxy in the blood stream longer.
 
Posted by joey20021714 (Member # 20113) on :
 
wow, 7500 mg per day?

I'm now up to taking 1500 mg a day (500 mg 3 times a day).

Is this enough ammoxicillin, or should i be taking more?

Thanks!!!
 
Posted by Jill E. (Member # 9121) on :
 
I'm super sensitive to everything. Amoxicillin made me profoundly fatigued the entire time I was on it. My LLMD said that was unusual, probably just my own individual reaction to it.

I found it much easier to tolerate than Ceftin, because Ceftin made me spacey and headachy. Amox made me really tired but not bad otherwise.

Jill
 


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