I am thinking it is taking longer than a year to put me into remission is because I have had this since childhood. I have had the weird eye problems, dry cough and sinus issues for many years! None of this came to light until my tingling symtoms started so I am starting to think this has been in me for years.
Let me ask, can Lyme cause Tentinitis or a compressed nerve symptom? Basically if it is causing severe inflamation in your elbow can it appear as a compressed ulnar nerve or entrapment? That is what was the staert of my decline. After that surgery, tingling was in other body parts and the hell began.
I am not sure how much longer I can do this life. I am serious, can't take it much longer. Posted by bwillis (Member # 18811) on :
I have often said those words both to my self and out loud. I'm not sure I can do this much longer. I wish there was an answer. I know people get well. I know a larger percentage do than don't and that's the basis of my hope.
I can hear the anguish in your message. This thing has taken away your life, like it has mine. I want very badly to be better. Each day I wake up disappointed that today wasn't the day of the break through but I still hope every day that tomorrow will bring a change.
I don't know why bad things happen to good people. I do know that there are many who care, many who suffer like you and are frustrated. I know God cares too, when it gets really bad, you can tell Him your feelings, He listens.
Posted by sixgoofykids (Member # 11141) on :
I've said that so many times. You CAN do it. You HAVE to do it. The choice comes down to treat or get worse.
Hang in there. I've had it for 35 years. You can do it.
Posted by Leelee (Member # 19112) on :
I have often thought of giving up too, just passively letting myself die. I don't know what happens but those feelings fade away. Then they come back.
I think this happens because of the disease itself and because of the uncertainties that go along with Lyme. We don't when or if we will return to our prior good health. We also have had to fight our way through many doctors and some of us have had to fight our way to get acknowledgement from our families, even.
All these things make for a long, hard road.
My sister told me yesterday that she did not know how I found the strength to pull myself up out of my darkest hours and find help. That was the first time I ever looked at it from that perspective. I decided right then if I could do it before I even had a doctor, diagnosis or treatment plan, I could continue to do it now with all those pieces in place.
I also think it is possible you have had this disease since childhood. I don't know your age, but I agree with you that the longer one is sick the longer it takes to get well.
Please keep trying. Have you seen Under Our Skin? All of the people that were profiled in the movie showed positive, promising results from their treatments.
Sending you healing thoughts,
Leelee
Posted by kellyjk4 (Member # 19731) on :
I too have been ill since childhood (about 30 yrs).
My first LLMD appt was just two weeks ago, so I'm barely into my treatment plan.
While I know that I have a long, hard road ahead of me, I also know that I have no choice.
I'm not trying to brush off your feelings. I've wondered many times if I have the strength to go on.
One thing I've noticed all of us have in common is an uncommon strength. Most people never have to deal with what we handle on a daily basis.
Please don't give up. Don't let this terrible disease take away any more from you than it already has.
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