Does anyone get weird tingling/neuropathy in patches on their face, hands, legs, or fingers? This is so weird, comes and goes.
Posted by BlueCheetah (Member # 18626) on :
I do CD57.
When I first got sick last April, my entire left side of my face would tingle. No one could explain what it was to me. One ER duck told me it was "hyperventilation." I have never hyperventilated in my life.
The tingling went on for months and months. Xanax did help it some.
I still get it from time to time. Sometimes it will be my entire face or just one side. It does come and go for me too. I will not have it for months and then it comes back again.
Posted by nenet (Member # 13174) on :
It's most likely part of your Neuroborreliosis/Neuro-Lyme. Other co-infections or opportunistic infections can cause these symptoms as well. The Lyme can cause inflammation and damage to the brain and/or nerves, which will cause things like peripheral neuropathy, which is like what you are experiencing, from the set of symptoms you describe.
I also get this. Back before treatment, I would have a whole leg go numb and tingly suddenly while walking, to where I would collapse to the floor. Or my tongue will tingle or get numb at the tip, or part of my face, or just about anywhere.
One of the first things to start happening in this set of symptoms was my last two fingers on each hand being numb andsometimes stiff whe I would wake up every morning. Back then I had the misdiagnosis of RA, so I just thought it was joint swelling cutting off some circulation. But then the neuropathy started popping up elsewhere.
The scalp tingling and tongue are a couple of the scarier ones for me, but I kow I am treating the Lyme, so the inflammation will keep going down with time, and I will hopefully be able to heal from any damage.
I am not a doctor, just passing along information I have read, and my own experiences.
Posted by Starfall1969 (Member # 17353) on :
Yes, this went along with my first set of symptoms when I started this lovely journey last year.
I still get occasional tingling/numbness along the side of my face and sometimes in my legs.
Posted by lea (Member # 15593) on :
I still get weird patches of numbness on the tip of my nose and around my mouth. It's better with treatment, but I still get it.
Posted by suel (Member # 8198) on :
Having this with you at the same time. I have had this sympton now for 6 weeks and on my third abx.I am just waiting for it to subside.
Posted by CD57 (Member # 11749) on :
is it inflammation or what?
Posted by glm1111 (Member # 16556) on :
Tingling and numbness are symptoms of parasites. PLEASE everybody if you want to get well you have to treat for parasites and worms. Lyme disease has a MAJOR parasite/worm connection.
Check the parasite & lyme thread Sparklke posted. Also check the symptom list at
Thanks Gael. Was Humaworm effective for you?
Posted by glm1111 (Member # 16556) on :
I am just taking humaworm for the first time. 3 yrs ago when I realized the parasite/worm connection I took strong antiparasitic herbs from the Monastery of Herbs for 6 mos. (your dr has to order these)
Then I did the salt/c protocol and all hell broke loose. I decided to try the humaworm and plan on continuing with the inbetween herbs to push things along. Check out