Let me start by saying I am REALLY mad! I have been complaining about "bone pain" for 4 years. With really, no help from my doctors. I have been sent to ID doctors, neurologists, hemotologists, and absolutely NOTHING from them at all.
So, all weekend I had stomach pains and fever. My family doctor sent me to the ER. Long story short, they tell me I have diverticulitis.
So, while doing all of the tests, to figure out what is wrong with me, they do a chest x-ray.
The findings: Irregular sclerotic lesion of the proximal right humerus, only partially included on this study.
In other words, they were doing a chest x-ray and happened to get part of my arm, and accidentally found this.
Now you would think after complaining for 4 years about bone pain and burning in my arms, after having a white blood cell count of 15,000, and "suspecting" leukemia, that they MIGHT check or do an x-ray of my arm(s) to see if there is an issue.
Although, I am not sure what an "irregular sclerotic lesion" is, from the little bit of information I have found on the internet, it might not be good.
I have a follow up tomorrow morning with my family doctor. This doctor will do pretty much anything (within insurance limits) that I ask her to do.
First, does any of what I have described relate to Lyme Disease?
Second, does anyone know anything about Sclerotic Lesions, and the questions I should ask my doctor?
Thanks! Wilthing
Posted by Amy C (Member # 19297) on :
So sorry to hear about this! I can relate to the dr's not listening though.
I tried to look online but most of what I found is hard to understand.
I too get bone pain and every time I would tell my dr he would look at me weird. I am curious to find out more of what this is?
Let us know how your appointment goes! Best of luck!! Amy
Posted by Wildthing (Member # 6791) on :
That's what is happening to me. I am having trouble understanding it. But I do see the scary words like "sarcoma", bone cancer, etc.
I will definitely let you know how it goes. Hopefully it's nothing. Sometimes I wonder if I blame too much on lyme disease and overlook other things.
Posted by bettyg (Member # 6147) on :
1 : being or relating to the sclera <the sclerotic layer of the eye>
2 : of, relating to, or affected with sclerosis <a sclerotic blood vessel>
Posted by Wildthing (Member # 6791) on :
Thanks for your help BettyG! It's been a while since I last posted, it's great to know you are still here for all of us.
Posted by Wildthing (Member # 6791) on :
Does anyone else have any information or questions that I should ask the doctor tomorrow morning?
Posted by Parisa (Member # 10526) on :
I've found a good link for you with differentials to work through. Not all of the differentials are for cancer so stay optimistic:
Oh! Thank you SO MUCH!!! This is really helpful. I'm so glad I bumped this up one last time.
Posted by Parisa (Member # 10526) on :
You're welcome. Good luck tomorrow!
Posted by bettyg (Member # 6147) on :
paris, you hit the jackpot on that one; i skimmed thru it; interesting.
good luck wildthing; we'll be thinking & praying for you on a good outcome of your appt.
Posted by Wildthing (Member # 6791) on :
Hi,
I did see my doctor today, but as I figured, didn't really get any definitive information.
I am scheduled for additional tests. I asked if the sclerotic lesion could be "bad news" and she said "yes" it could be.
I know it's a little early to give advice, but Amy, if you have bone pain, like I have, a deep burning pain in my "long bones", which are arms and legs, try to get a bone scan or at least an x-ray, to rule out other possibilities.
I figure, just because we have lyme, it doesn't make us immune to all of the other cruel possibilities out there.
Good luck, thanks to everyone for their help, and I'll keep you posted.
Posted by TerryK (Member # 8552) on :
Generally bone sclerosis signifies a slow-growing process. Bone reacts to disorder in two ways -- either by removing some of itself or by creating more of itself.
If the disorder is rapidly progressive, there may only be time for retreat, hence bone resorption will occur giving rise to lytic lesion . If the process is slower growing, then the bone may have time to defend itself by forming a sclerotic border around the offender.
9. Endocrine/metabloic - Hyperparathyroidism, Paget's disease
Posted by bettyg (Member # 6147) on :
wildthing, i tried NIH's medical area again and found this time:
Results 1 - 4 of 4 for sclerotic lesion
1. Glomerular Diseases From the National Institutes of Health (National Institute of Diabetes and Digestive and Kidney Diseases)
... because of the patients' already compromised immune system. Sclerotic Diseases Glomerulosclerosis is scarring (sclerosis) of the glomeruli. In several sclerotic conditions, a systemic disease like lupus or diabetes ...
kidney.niddk.nih.gov/kudiseases/pubs/glomerular
- External Health Links
2. Tuberous Sclerosis From the National Institutes of Health (National Institute of Neurological Disorders and Stroke)
... which calcify with age and become hard or sclerotic . The disorder--once known as epiloia or Bourneville' ... enlarged cells, as are seen in TSC brain lesions. top Is TSC inherited? Although some individuals inherit ...
3. Total Knee Replacement for Women Video (OR-Live) ... DR. GILES SCUDERI: You know, sometimes you get sclerotic bone, though, you know. Maybe in the valgus ... re first going to address repairing this SLAP lesion. What we'll do is we'll take ...
... in a Type IIA defect is several cavitary lesions surrounding the acetabulum. However, you can see with ... and the implant. You can see some osteolytic lesions and what appears to be a radiolucent line. ...
sorry you didn't get HELPFUL info today so you don't HAVE TO WORRY ABOUT THE UNKNOWN! that's what i hate the most.
growing up i always thought the worst, so whatever came up would be MUCH better since i had prepared for the worst!
praying for you wildthing Posted by Wildthing (Member # 6791) on :
I know what you mean BettyG, I do the same thing!
2 Christmas's ago the Hematologist told me that I most likely had Chronic Leukemia, because of my white blood cell count, I spent the Holidays thinking I was going to die.
Turned out, all of the testing showed I didn't have it.
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