LymeNet Flash: can a llmd diagnose morgellons?

This is topic can a llmd diagnose morgellons? in forum Medical Questions at LymeNet Flash.

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Posted by randibear (Member # 11290) on :

you know i've been researching this morgellons and have a suspicion that a) it's lyme or b) i've got a lot of the symptoms.

i have a downey white like, fur or something on my cheeks, white hair on my legs. i have NO lesions.

my hands have large veins and look very old. the skin looks horribly wrinkled.

can a llmd diagnose morgellons or can anybody here tell me what it is? the web keeps saying you have these awful lesions which weep and people actually pull fibers out of their bodies.

ain't got that, thank God.

does anybody have morgellons or know of somebody who does? is it treated by antibiotics?

i just pray i don't have this crap...

Posted by glm1111 (Member # 16556) on :

People with "Morgellons" have been dx with Lyme disease. It is a name given to symptoms. I have seen info that it really is Filarial Worms, a co-infection of Lyme. If you look on

www.lymephotos.com

you will see the so-called colored looking fibers which are actually these worms. I have had these and am almost in remission using antiparasitics.

If you google clm (cutaneous larva migrans) that could possibly explain your enlarged veins.

Gael

Posted by randibear (Member # 11290) on :

do you think humaworm would help?

i just got finished looking at a site that recommends something called nutrasilver and trilogy cardio essentials. said to use borax and some lemon soap.

i don't know what these are but i'm willing to give them a shot.

is nutrasilver the same as collodial silver? apparently the cardio essentials is some kind of drink with coq10, sort of like xango or something.

Posted by squashlyme (Member # 12865) on :

i saw an episode of mystery diagnosis and they said that morgellan's could be a co-infection of lyme disease, i think there was an NP in california who was treating this person

if i do a bit more research, i could get you the name, if that would be helpful, maybe a telephone consult?

the girl in the program said she was much better under the guidance of this NP-

Posted by Lymeorsomething (Member # 16359) on :

How many LLMDs are willing to prescribe antiparasitics on a hunch? I'm not talking about Alinia per se but others as well...

I'd be willing to give this a whirl...

Posted by Lymetoo (Member # 743) on :

quote:
Originally posted by randibear:
[QB]

the web keeps saying you have these awful lesions which weep and people actually pull fibers out of their bodies.

ain't got that, thank God.

Then you probably don't have it. ( thank goodness )

Nothing much helps Morgellon's.

Posted by Lymetoo (Member # 743) on :

quote:
Originally posted by squashlyme:
[QB] i think there was an NP in california who was treating this person

Yes, a person with initials G.S.

Posted by glm1111 (Member # 16556) on :

Only the LLMDS that follow Dr. K and his protocols are aware. He treats all of his Lyme patients for parasites/worms. I had to do this on my own as have others.

Antiparasitics are key in getting rid of Lyme disease. Check out

www.curezone.com Lots of great info. You can't always rely on your LLMD for everything. You might have to treat yourself for this,

Gael

Posted by glm1111 (Member # 16556) on :

I had the lesions and the "so called" fibers. I never saw them in all the years I had Lyme disease.

They only started to appear when I started to take herbs and salt/c. They were lying dormant until I started pushing them out of my body. They were causing most of my symptoms.

Gael

Posted by Melanie Reber (Member # 3707) on :

Morgellons is being studied quite heavily now as a matter of fact and the CDC has actually admitted that this is a new and unknown condition. Thank Goodness!

Dr. S and Dr. GS are doing some pioneering work on the subject and the latest results indicate that this is of an agro nature.

Really interesting stuff.

To read more accurate information on this condition, a good site is the Morgellons Research Foundation:

http://www.morgellons.org/

Posted by Melanie Reber (Member # 3707) on :

Randi,

Is it possible for you to post a photo of your hands?

Posted by bettyg (Member # 6147) on :

randi,

i and tutu have address/phone no. for calif. woman if you need it ok [Smile]

Posted by Pinelady (Member # 18524) on :

You don't have to have the lesions to have

Morgellons. In fact I think the lesions may be

caused by a different entity altogether. The

lemon idea is a good one. I tried in on the neck. As for the agro nature,

pollen related? I think they may be grasping at

straws, but with our immune systems turned off by

Lyme who knows? One lab even suggested the

protruding filaments were a feeding projectile.

So far Cancer patients who have

undergone treatment, Lyme patients, and HIV

patients are reported to be the most infected.

Most common sites reported are palm side of

hands, feet esp. between toes, neck. Most

luminescent under UV light. They are working on

sequencing the DNA. But for the most part

patients look like Lyme patients. Could it be

that preventing this is an option? Meaning if you

suspect Lyme wear a mask and only bathe in

purified water? It will have to be determined

when actual infection takes place. Now if it

occurs from the bite on an insect or whether it

is acquired after the immune system is turned off

or compromised by whatever, treatment or

disease. I don't know but I wish they would hurry up.

http://www.morgellons.org/docs/Case_Series.pdf

Posted by glm1111 (Member # 16556) on :

If you read the link pinelady posted above "Morgellons" is referred to as a parasitic illness.

By the early 1600s the illness was thought to be caused by the parasite Dracunculus (parasitic worms)

Posted by TO LIFE (Member # 12371) on :

UP

Posted by randibear (Member # 11290) on :

well they do spray a lot around her in d/fw. for west nile and all.

i'm pretty bad about running around without shoes even in the yard, but i'm learning not to do that.

i just don't know where i would pick up something like morgellons, but OMG...the pictures of people. i feel sooo sorry for them.

i'm just paranoid enough to believe this is a man-made bug that got loose..bioterror stuff.

Posted by TO LIFE (Member # 12371) on :

Randi,

Have you treated for parasites?

Posted by glm1111 (Member # 16556) on :

I just read Garth Nicholsons info. Along with the guidlines he states that it should be considered parasitic.

Worm like forms have been removed from lesions, but their role in the illness has not been confirmed. I still say it's a co-infection with Filarial Worms.

Willy Burgdorfer found adult FW in the ticks he dissected in 1984.

Gael