Anyone have chronic excruciating chest wall pain related to Lyme disease?
Posted by randibear (Member # 11290) on :
well i've got it, but where it's coming from, i don't know.
Posted by ruggie100 (Member # 21415) on :
I get terrible pain in the center of my chest (thymus gland). I think it is when I am toxic and need to detox. I know this isn't much help, but it does hurt.
Posted by Lymeorsomething (Member # 16359) on :
It was one of the first symptoms that popped up for me some three years ago....
Fortunately, I have not had a bout in a longtime but I remember that when I did it was very scary (heart attack-like aches and pains)...
I think the abx resolved it for me...
My echo tests were normal. I have what you could call bradycardia at times but no apparent heart problems....it seems endocrine related....my CRP was fine (better than average)...
Posted by JamesNYC (Member # 15793) on :
My friend had very severe chest wall pain soon after she had a port put in her chest and started with IV abx. The Drs could not relate the pain to the port.
So, it is possible it was a symptom from the lyme in reaction to treatment. Lasted about 6 weeks.
James
Posted by painted turtle (Member # 7801) on :
yes, this was lyme related costochondritis, very, very painful.
started back in the early to mid 90's. diagnosed 2005.
has not resolved, but only flares sometimes.
Posted by LostnAfraid (Member # 21104) on :
I have this as well. Looks like I have more research to do. Posted by purplemom (Member # 21064) on :
The scoop is I developed severe chest wall pain diagnosed as costochrondritis after a severe strange flu like illness (chills, fatigue, muscles aches, stiff neck...)
went through 2 rounds of oral steroids and 2 rounds of steroid injections...I know, I know, steroid disaster..."negative lyme" (as well as negative everything else under the sun after a $20,000 work up, thank God for good health insurance, on paper I am the healthiest person alove) ...now have leg weakness, not sure if it is from the steroids or lyme,
see an llmd tuesday for the 2nd time and hope to get on antibiotics
just curious to see if the chest wall pain is common in lyme as it is my biggest problem, been on narcotics now for 3 1/2 months, did do doxy for 3 weeks..llmd thinks i have had lyme for longer then the flu like symtpoms
Posted by TxLymie (Member # 20847) on :
I too had the chest wall pain from Nov 08 until just recently. My IM doc diagnosed it as costochrondritis related to Lyme.
I continued to have the pain while on abx (mine was almost always at night...hardly ever during the day)
Funny thing, I got off the abx about 3 weeks ago and I have felt very good. My chest pain has been gone for about 2 weeks now. I mean completely gone! The one thing I did add to my vitamen mix when I got off the abx was CoQ10.
I had read that helps with the chest pain. Maybe that is what stopped it? I don't know but I'm knocking on wood that it stays gone.
Posted by painted turtle (Member # 7801) on :
purplemom,
hopefully you will find a way to alleviate this pain.
for me, it is something i live with, i have learned to live with.
the lyme has been progressive for me, even through two years of active treatment, i have not actively treated with antitbiotics in over a year
sometimes the pain flares to excruciating
daily, there is some pain in my chest, and lots of weakness.
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