I am currently seeing a LLMD who is no doubt very knowledgable. The first time I saw him was at the end of May and then I took the IGENEX test, which finally came back the 3rd of July as positive. He started me on clarithromycin.
I then went back the end of July where he told me that I would at the very least need to be on IV rocephin, but he was going to prescribe it through my primary doc back home.
Well that was going on 2 months and he has not called my doc as promised, nor has he returned my calls or my doctors calls. In the meantime I am experiencing what seems like a new symptom everyday.
Also he did not check for any co-infections, which makes me a bit worried. What do you think I should do? I am kind of tired of waiting around, as well as I am tired of harrassing him. And I can not continue to sit here and get sicker!
[ 08-28-2009, 02:54 PM: Message edited by: SarBear ]
Posted by sariejack (Member # 21958) on :
I would try to find another LLMD who can offer a second opinion. It sounds like your current MD is not fulfilling your needs!
Posted by JamesNYC (Member # 15793) on :
I agree with Sariejack, He may be knowledgeable, but he seems to not be a very good Dr. What is his job if not to be responsive?
Also, 6 weeks to get Igenex results is outrageous. I'll bet he had the results in 3 weeks but he didn't contact you right away.
Is he an ILADS LLMD?
Someone here collects comments on the Drs for the Seeking a LLMD discussion. I'm not sure WHO it is, but your comments on your experience should be recorded.
Try calling his office and ask for a referral to a LLMD that has more time to respond to you.
James
Posted by randibear (Member # 11290) on :
with lyme every day counts. get yourself to another doctor.
Posted by SarBear (Member # 21196) on :
Thanks guys! That is kind of what I was thinking too. The frusterating part is starting over again to find a doctor that will help me. I have put in a post on the seeking a doctor portion, so hopefully that will help.
Posted by bettyg (Member # 6147) on :
sara,
please break up your post into many, short paragraphs and double space between each paragraph so us severely neuro lyme folks will be able to read and comprehend this.
click pencil, 3rd box to right of your name, to open up text and break it up....thanks Posted by SarBear (Member # 21196) on :
Done bettyg! Sorry!
Posted by Leelee (Member # 19112) on :
I agree with the others that have posted that a new LLMD is in order. We need to be able to count on our doctors.
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