FWIW, I've been on adrenal support since last fall. Hypotension continues to wax and wane.
Posted by cactus (Member # 7347) on :
You know I'm on Cymbalta (getting geared up to wean off of it)...
But you know... I too have POTS. I don't think it's connected to the Cymbalta because I've had symptoms of it come and go forever. Wonder if the Cymbalta has exacerbated it, though? Food for thought.
Anyway - adrenal support is what made me read your post.
I'm on adrenal support and wow, the difference it made in my POTS symptoms blows me away!
The caveat is that I do have Addison's. So I take both hydrocortisone and fludricortisone.
The hydrocortisone lessened the POTS symptoms to a degree.
But the fludricortisone knocked the POTS symptoms right out of the water.
So this definitely could be worth investigating.
Hope you're well, Cactus
Posted by lymeHerx001 (Member # 6215) on :
quote:Originally posted by [email protected]: FWIW, I've been on adrenal support since last fall. Hypotension continues to wax and wane.
hmm, what to do what to do?
Posted by lymeHerx001 (Member # 6215) on :
I think that the cymbalta would work for you if you support the adrenals!
Im at least hoping that.
Posted by lymeHerx001 (Member # 6215) on :
^
Posted by lymeHerx001 (Member # 6215) on :
up
Posted by Hoosiers51 (Member # 15759) on :
Maybe you could take something like Midodrine, which is a prescription drug POTS-experts use to treat POTS. It helps the blood vessels constrict better, so my guess is that it normally would raise blood pressure for POTS sufferers.
Though when I was on Midodrine, I never really monitored my blood pressure, so I can't say from experience if it indeed will raise it.
For me Midodrine didn't make a huge impact in how I felt, though it did make a slight impact, but I think that's because I was so ill with Lyme that helping my POTS wouldn't have changed how I felt overall.
Posted by Hoosiers51 (Member # 15759) on :
Or, if you are not worried about the possibly negative effects of exceeding the FDA's recommended salt intake, you could do some sea salt in water daily.
Many POTS sufferers benefit from adding more salt to their diets. You definitely should not be restricting salt.
Maybe either Midodrine or salt could counteract the hypotensive effects of the Cymbalta.
Just be aware of the risks for "salt sensitive" individuals.
Also, sea salt is said to support the adrenals, especially taken first thing in the morning.
Posted by glm1111 (Member # 16556) on :
Pantothentic acid(b-5) works great for adrenal support. Also sea salt and vitamin C are really excellent for the adrenals.
Gael
Posted by lymeHerx001 (Member # 6215) on :
Yes, I love salt!
Also Im used to the POTS and Orthostatic Hypotension allready so I dont know if tis going away or not.
Im sure the coffee makes it alot worse.
B5 is also great I take it with b12 I believe sublingually.
Whats weird is that the Plaquenil gave me worse dizzyness (low BP when getting up) then the Cymbalta, thats why Im thinking of sticking with it.
Thanks! Posted by lightparfait (Member # 22022) on :
Cymbalta makes you dehydrated and constipated.
Your don't have to feel thirsty to be dehydrated!!!
Coffee also does not help with fulid retention.
This is negetive for POTS, which already you are not retaining your fluids...and need sea salt or electrolytes.
Posted by lymeHerx001 (Member # 6215) on :
How did you know this? Ive been experiencing both.
Dehydration even though I drink lots of water and constipation!
How did you know cymbalta did that. Is it worth it then?
Does it go away????
Please help!
Posted by lymeHerx001 (Member # 6215) on :
up
Posted by TxLymie (Member # 20847) on :
I thought Cymbalta was for depression...does it treat POTS too?
I haven't been officially diagnosed with this but I'm sure I probably I have it. I get dizzy and black out every morning when I first get up. It usually lasts about 10-30seconds. I also do this if I stand up to quick or bend over to pick something up. It's very annoying and makes me feel drained.
I always thought it was from low blood pressure. Is there a specific test to be diagnosed for POTS? I have found that salt helps me with this
Posted by lymeHerx001 (Member # 6215) on :
no its not for POTS.
Its for depression and neuropathy and fibromyalgia.
Its a reformulation of PROZAC with a nerve norepinepherine component.
Posted by lymeHerx001 (Member # 6215) on :
its called orthostatic hypotension, basically when you get up from a sitting position you get dizzy because your adrenals dont shoot enough cortisol and adrenaline to constrict your vessels in your legs to get the blood up to your head.
Posted by TxLymie (Member # 20847) on :
That is what I have...I'm sure of it. I self diagnosed myself years ago with this. Even went to a doctor about 4 yrs ago telling him I thought I had adrenal issues. I was borderline on the tests and he gave me some meds...but I didn't stay on them long enough to see if they really worked.
Guess I should add that back to my ever growing list of medications. I am only 44 and I am starting to feel like I am 80! I never expected to be one to take a lot of meds...I hate this.
Posted by lymeHerx001 (Member # 6215) on :
Ive been feeling 90 for a long time even since a teen!
[ 09-17-2009, 08:55 AM: Message edited by: lymeHerx001 ]
Posted by lymeHerx001 (Member # 6215) on :
![[Smile]](smile.gif)