I am trying to get a perspective about this brain fog thing. I hear so much from everyone here saying they have experienced this due to Lyme, but I want to test to see if we are talking about the same thing.
My wife has been diagnosed to have Lyme infection, plus multiple co-infections. She is really sick, disabled.
Her brain fog to me is unreal. She basically can't figure out and remeber very simple things. I have tried to make life for easy for her - I mean so easy that I expect a 3 year old can handle it.
She stays home.
She has her medicine arranged in the tray.
She has her breakfast cooked.
Lunch cooked and refridged in a container.
So here is all she has to do in a daily basis:
1) She takes her probiotic brought to her bed side with a cup of water. 2) get up 3) Eat her breakfast, usually baked oats with almond milk. 4) She takes her mornign medicine. 5) I bring our daughter to the daycare, and she relaxes on the deck getting rest and sunlight. 6) Some day she is reminded by me to exercise at home (I have no idea if she does) 7) She take morning snack usually containing nuts and fruit 8) she is called at lunch time by me, and microwave her lunch box to eat 9) She takes her medicine 10) she takes a nap 11) Gets up and have afternoon snacks, wait for me to come home with our daughter and cook dinner (I do, she doesn't) 12) Eats dinner 13) Eats her medicine 14) I prepared my daughter to go to bed. She reads books at bed time with my daughter 15) Watch some TV 16) Takes her yogart with probiotic 17) Come to bed
She is free to do anything in between if she has the energy.
No un-eatable foods around the house to confuse her.
So I should expect no confusion, right?
Wrong! She is still confused. She decides to take some yogart with antibiotic. She goes to the grocery store to get orange juice with whatever is in it. She forgets to take medicine after meal. The list, minor but many, goes on...
And this "routine" is supposed to be in place for the last 5 months.
I made notes and tables for her, but she forgets to look at them. And even she does, she still can't remember when the time comes for certain task.
I have been adviced to have someone come and help. But unless I am going to hire a full time babysitter, I don't think someone comes over for a hour or two is gonna solve the problem.
Are we really talking about the same brain fog? Or she has really gone behind what the Lyme brain fog is about?
sorry for the long post. I am not sure how to condense it.
Posted by coltman (Member # 21272) on :
That looks a lot worse than "brain fog" .Sounds like MS/ALS/Alzheimer - e.g. a really progressed neuro symptoms... - Did you guys check with neurologist if there is demylienation/lesions/perfusion in brain?
Now about notes/schedule - you can use something like PDA or smartphone , make a schedule with alarm in it so all she has to do is look at screen and do what it says when alarms sounds.
What kind of protocol you guys doing? Sounds like really bad case of neuro lyme -if it is not something else , most docs use IV for that stage (as orals do not really penetrain BBB all that well)
Posted by wtl (Member # 19883) on :
Hi coltman,
Yes, as a matter of fact, that's the most puzzling thing.
Her MRIs (several times over more than a year) came out normal. Her SPECT came out normal.
Her neuro psychy came out with a huge disappointing result - far below her education level.
Posted by wtl (Member # 19883) on :
She is currently on oral, biaxin + rifampin.
Posted by Carol in PA (Member # 5338) on :
It sounds like you have worked hard to set up the schedule.
If she can't remember and gets confused easily, my guess is that she's not getting enough blood and oxygen to the brain cells.
My short term memory is lousy, and has been worse at times. I had trouble following a recipe, because I couldn't remember what I just did.
I'd reach into a cupboard to get something...um...what?
Inability to hold things in short term memory long enough to classify and analyze them.
Lack of motivation. Depression. Poor executive function.
Glutamate in the brain can do this too, from what I understand. Resveratrol reversed this for me, but I had to stop taking it due to kidney pain.
I don't have clear answers on how to fix this for your wife. I'm still working on it for myself.
Carol
Posted by wtl (Member # 19883) on :
Carol,
Thanks.
You are a much better words(wo)man than I could ever be. I observed exactly the way you put in words.
Is resveratrol a prescribed drug or over-the-counter? Is this something I should discuss with her llmd or another doctor?
Posted by Ocean (Member # 3496) on :
I'm sorry that your wife's cognitive ability is so diminished! It has to be very difficult for you, but you are doing a wonderful job in caring for her!!!
Brain fog can definitely be pretty severe. I had it the worst the first 2 years. I was in high school and went from an A student to getting D's in some subjects.
Simple things...standing in front of the fridge, knowing I wanted to open it but literally having NO idea how!
When I was very sick in the late 90's, I had gone to an alternative DC because no other doc's had a clue what was wrong with me (besides CFS diagnosis). He started me on these tinctures from animal glands. I came away from the appointment with about 4-5 and I remember thinking that I would not be able to remember to take them. I was living with my parents because I was too sick to be on my own (I was only 18-19) and they both worked so no one could help me at home.
I eventually gave up on the protocol because I couldn't remember when to take what. It was really really overwhelming.
Hang in there, it can get better...at my worst I thought my life was over and really didn't care if I died because I wasn't living anyhow.
Compared to my brain function even from this spring, I am much improved...which I do attribute to the cold laser, as it's the only treatment I was on when the majority of the brain fog disappeared.
You are doing so well with her, keep up the good work my friend!!!
hugs,
Ocean
Posted by wtl (Member # 19883) on :
Ocean,
You have always been so kind and generous. I am hopeful through your words.
Will see if the cold laser helps. Thanks again!
Cheers!
Posted by coltman (Member # 21272) on :
Hmm you guys with "remembering schedule issues" are ignoring/ never tried smart phone with alarm on schedule option? -You can be totally brain dead, hung over ,complete amensia, etc but as long as you remember how to read it works!
Posted by Carol in PA (Member # 5338) on :
quote:Originally posted by wtl: Is resveratrol a prescribed drug or over-the-counter? Is this something I should discuss with her llmd or another doctor?
In Healing Lyme by Stephen Buhner, he discusses that you should take Resveratrol from Japanese Knotweed, and he recommends Source Naturals brand.
Yes, talk to your LLMD. Carol
Posted by wtl (Member # 19883) on :
Thank you again, Carol. I will check into it. I have the Dr. Buhner's book but I must have not paid close attention.
coltman - Even without brain fog, I have no idea what a smart phone is and how it works. I will check into it to see if that's something to work with in the mean time. Sound neat.
Posted by coltman (Member # 21272) on :
quote:
coltman - Even without brain fog, I have no idea what a smart phone is and how it works. I will check into it to see if that's something to work with in the mean time. Sound neat.
Its a cell phone with a bit more processing power and software support built in. Iphone, Treo and google android are good example of such thing but there many others. iPhone is probably the most widespread and well known one .
You just make the schedule once in outlook (or whatever scheduling app smartphone is compatible with) , plug in your phone and synchronize, you can do alarm notifications ,recurring schedules -anything
And btw many simple cell phones support making of scheduled notification with alarms (I know my $10 cell phone can do it)
p.s. I personally use blackberry since that is what my employer gives to me (I am IT admin)
Posted by Keebler (Member # 12673) on :
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The brain fog can vary widely and is really just a term. Lyme and other TBD affects every part of functioning. This can be from the liver being overwhelmed, too. That affects neuro function.
I applaud your hard work and understanding and I'm too tired to comment on much but just wanted to caution about fancy gagets and bells and whistles.
I would never be able to figure out how to use such a phone. Alarm notifications would trigger falls or seizures for me.
Perfumed stuff causes great brain fog for me - for days. Even in someone's shampoo. Perhaps going scent-free (if you've not already) will help. Sorry to suggest more work but chemical exposure could be a big key.
You don't have new carpet, drapes or upholstery furniture, I hope. If anything is dry cleaned, do not bring it into the house. If you have a garage - and no air vent to the house - you can air out dry cleaned items there for a week or so. New car smells can pose problems too.
Hair products - best to keep it very simple and unscented. No perms or coloring for now is best.
If she is sensitive to chemical/exhaust/perfumes it could me she needed more liver support and possible avoidance of drugs that stress the Cytochrome P-450 liver detox pathway.
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Just in case your wife has any inner ear / balance or startle reactions, electronic stuff can be very difficult to use - or even tolerate. And, if the inner ear is affected, that can cause a major sort of constant - or fluctuating - brain fog. I sometimes can't remember how to crack an egg into my pain if ANYTHING distracts me.
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Someone suggested MS/ALS/Alzheimer - well, (not always, but often) lyme can be all those things and with treatment, often, great improvement can be achieved.
Do you have an excellent ILADS LLMD? That would be the best person with whom to discuss the why and how of all this. I would never rely on a neurologist to help at all unless it would be an ILADS-member LLMD neurologist.
-===
Vestibular involvement is common with lyme and other TBD (tick-borne disease). If she has any sort of balance or hearing trouble, check this list and that can explain much about brain fog. When the infections get better, so should symptoms. Qi Gong or some balance therapy can help - but ONLY with someone truly lyme literate.
SYMPTOMS of possible vestibular disorder (although these symptoms are also very common to lyme AND many lyme patients also have vestibular involvement that may clear with treatment for the tick-borne infection(s).
-------
As for having someone come over to help, I understand what you mean about needing them all the time, then. However, if it is someone to engage your wife in a short conversation or a yoga routine or playing a musical instrument, singing or drawing - that - even if just for 30 minutes and IF it would not tire out your wife could be some brain stimulation that will be helpful.
Whomever might be involved, though, should be very careful in how they phrase their words so as to be totally non-judgmental. If they could watch the film UNDER OUR SKIN first, it would be great.
I applaud you for your hard work. I am sure it's exhausting and very frightening for you, not to mention logically taxing, especially with a young child.
If you have a local lyme support group, there may be some practical hints there for you.
Good luck. -
[ 09-15-2009, 03:44 PM: Message edited by: Keebler ]
Posted by ninjaphire (Member # 18234) on :
CDP-choline should be really good for Brain Fog. Also supplementing Magnesium should be helpful.
I had a lot of brain-fog myself, and these are the things that helped me the most.
What supplements does she take right now ?
Posted by Keebler (Member # 12673) on :
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In addition to ninjaphire's suggestions, is your wife following the nuturitonal guidelines in Burranscano's guidelines?
Fish oil is excellent. And liver support, too.
Gentle exercise like Qi Gong.
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Posted by btmb03 (Member # 18394) on :
Wtl - you're one amazing husband to have thought through her routine so carefully!!
You mentioned she goes to the grocery store..I assume she's not the one driving?
Yes, unfortunately brain fog can be one of the most debilitating symptoms (next to pain) and they're all related.
Has she ever had a QEEG to find out how her brain-waves function under "mild" cognitive stress? Basically she's having a lot of slow-wave activity intrude in her "awake" time. More about that in my PM.
I do know that it IS disturbing to the patient and those around them to have severe brain fog. Many times I don't even know what day of the week it is, don't dare touch the stove (used to love to cook) and many other things as people mentioned above.
Also don't forget that "pound per pound our brains use more energy than any other organ in our body"...I got that from the newspaper once.
Makes sense, since this is often described as a "metabolic encephalopathy". Aggressive treatment and supportive treatment will improve it.
PM coming your way...all the best to you and your family!!
Posted by wtl (Member # 19883) on :
Keebler - first of all, great to see you back. I miss you.
For nutritional guidelines, she has been in good diet but not as strict as I like.
Her diet contains a lot of vegetables, some fruit, brown rice, gluten-free, sugar-free, yeast-free, dairy-free. We also use olive oil and coconut oil in cooking.
Most organic but not all of them. If not organic, I pick items with antibiotic-free and hormone-free at a very minimum.
She has a very decent llmd in WI. Though he himself is not a big preacher for supplement, he supports what's being recommended by her holistic practitioner. During visits, my wife performs relatively well so I bet he hasn't seen the worst yet but he seems to trust what i told him.
Keebler, I know you talked to me about liver support before but I think I need a bit more when you feel up for it.
ninjaphire - Aside from seeing the llmd, she is working with a holistic practitioner right now. She takes mmany recommended supplements including fish oil/black seed oil, magnesium, vitamins, amino acid, protease, also with Lyme HP and Detox I, both liquid drops.
Posted by wtl (Member # 19883) on :
btmb - Thanks for your kind words.
Yes, she is the one driving to the store, though that was only a few blocks away in a residential area. Compared to walking which she could no longer do much due to her balance and stiffness, driving is much easier for her. Though she won't admit, she gets lost quite frequently but my sense is that she is still safe and has that much brain left.
I am not familiar with QEEG test but I will read your PM and look into that. Much appreciate your thoughts and information.
She did an neuro-psycho evaluation for her disability and boy, it was painful. She gets some score as low as 9 percentile. And she graduated as an honor student from a top engineering school in the nation, Cooper Union in NYC. Prior to that, a first chair in a student sympany and a ballet dancer.
So my pain is not nearly comparable to hers.
Posted by Keebler (Member # 12673) on :
- wtl,
I'm no expert and far from a success (yet) but I'll be glad to share what I know. But most of what I know is 3/4 of the page down at this link - see the liver stuff:
Heart function also has a lot to do with brain fog. If the heart is not tip-top, the brain will struggle. Hawthorne extract helps me a lot.
------
Glad to see the good foods on the list. You are certainly up to speed on that concept. Can you get some fresh or canned wild salmon? Sardines help me. I don't like them but they help me.
Nuts, too. You mentioned no sugar but is she getting enough carbs? Her brain may need more good sugars.
Goji berries help me - most naturopathic doctors can order from ITM - One bag lasts me a week. Less expensive than other places:
1 bag = eighteen, 1/4 cup servings (2-3 times a day) rather chewy and sort of wild tasting. I mix with a little coconut or nut oil to soften. Can be added to soups, etc. Not sweet but good functional food.
Massage can help everything - liver, heart, brain, nervous system and balance. And - emotional centering or release, too.
-===
I've had several of the QEEG's mentioned above and all mine showed problems. - slow. and encelop... stuff
Bottom line, if there is infection in the brain, brain waves will be slow.
I'm sure it's been mentioned but, if not, magnesium also helps with brain as it is anti-inflammatory and also helps the liver detox (and that helps the brain). It is not anti-microbial, however.
Allicin has helped my brain fog when I've taken that. I prefer that from www.hepapro.com
-=========
Phosphatidylcho) is something that someone recently talked to me about regarding liver help. (Thank you to TerryK). I've not yet tried that.
Why Phosphatidylcholine (PC) is an Important Nutrient -
Posted by JamesNYC (Member # 15793) on :
Yeah,
This is worse than "just" brain fog that we all seem to have. But what she's experiencing is well known in severe TBD cases. Also, this may be the result of minor seizures.
I have a friend who goes through symptoms like you describe. She will sometimes not know her name, my name, or where she is. But that passes. She has sometimes has luck with anti-siezure meds.
Coltman,
quote:That looks a lot worse than "brain fog" .Sounds like MS/ALS/Alzheimer - e.g. a really progressed neuro symptoms... - Did you guys check with neurologist if there is demylienation/lesions/perfusion in brain?
You never cease to amaze me.
Have you read Cure Unknown? Have you seen Under Our Skin? Have you seen the case histories of people who seemed to have Alzheimer's but it turned out to be lyme?
For all the research you've done, how can you NOT see that this is a very familiar lyme story?
Sure, she can have lyme AND ALS, etc, but what are the odds? She has lyme, she has extreme symptoms, I would see a rather direct link.
WTL, stand by her. She'd be there for you too. Hopefully she'll improve soon.
James
Posted by seekhelp (Member # 15067) on :
Keebler, I'm starting to see just how debilitating inner ear issues are. I think I'm facing it.
Nice to have you back helping others again, though I recall you said you weren't feeling well. It's appreciated,
Posted by Keebler (Member # 12673) on :
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Thanks, Seek.
---
adding to JamesNYC wondering about seizures . . . I was wondering if, perhaps, that might be involved. I have found allicin or andrographis to be the best to help lessen seizures.
But andrographis adds to my brain fog because it makes me so much more tired. Still, it really helps my brain by calming down the startle seizures. But I think other stuff might be better. Carol's suggestion of Resveratrol is good.
Schisandra (schizandra), too.
Various kinds of seizures go along with TBD but beyond the brain fog is the "stalling" sort of thing. Bairly able to go throught the motions, trying most of the time to pretend all is okay or get the body moving in hope that the brain will wake up.
The slow brain waves (as mentioned by the guy posting about QEEG) can help show if brain waves are so slow to be in seizure country.
What can happen is the brain is so slow and sleepy (delta/theta) that it tries so hard to wake up and then a burst of beta or alpha and the the brain short circuits a bit (or a lot) . . . sometime no one will notice but it can be like an elevator dropping or an earthquake.
sorry - leaf blowers are coming down the pike. I have to stop.
Look up the author of "Symphony in the Brain" it's about QEEG -
QEEG can measure so much more than the mickey mouse EEGs can, by the way. Still, no test can show all parts of the brain and unless a seizure is happening at the time of a test, it won't show.
I did neurofeedback for years - some help - but the guy said until the infection was healed I was wasting my money.
Qi Gong trains the same stuff and that is cheaper.
Good luck, and take care of yourself, too. You've been loaded with lots to consider and it's surely sad. But it can get better. REally.
-
Posted by wtl (Member # 19883) on :
Thanks again, Keebler.
Yes, I forgot to mention that she gets wild caught salmon as often as she likes, and I have a full drawer of nuts any time she wants some. Her llmd recommends Walnut, cashew, and almond.
No new furnitures and no dry cleaned items in the house. As a amtter of fact, through learning, I have given up all items that require dry cleaning. she stops wear makeup, and we are not chemical-free due to living in a city, but our house is close to a mud house at his point.
What about the inner ear issues again, Keebler? I think you had mentioned it once before but I am not sure if I got it all. English not being my mother tone certainly makes learning that much harder. That's another reason that I hope my wife can improve soon for she is a native speaker in the house.
James - Thanks for the encouraging words. I am trying to hand in there.
Posted by wtl (Member # 19883) on :
Funny you all should mention the word "seizure". I was taking some pictures that other day and have noticed her eyes seem to be asleep from some pictures. I wonder if she really had a seizure but was so mild to be noticed.
Posted by Keebler (Member # 12673) on :
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Could be. Spacing out is one type.
Remember magnesium is her best friend. Up to 2,000 mg a day - or to just below bowel tolerance.
wtl,
I came back just to suggest very dark chocolate. With the lawn guys a little bit keeps me (and them) alive.
If candida is not an issue: 85% dark chocolate - about one ounce a day, with nuts or after a meal should be fine. It's not very sweet at all but can offer a little sugar for the brain and great anti oxidants. It helps me not spaz out so much and also helps me not despair on the leaf blower days.
If candida is an issue, olive leaf extract should help. And you can put dark chocolate powder (plain) in with almond milk and touch of stevia.
Others will be along with other good suggestions, too, I hope. We have to keep the care-givers in good shape, too!
Now the sirens are coming this way ! I'd Better go hide.
-
Posted by coltman (Member # 21272) on :
quote:Originally posted by wtl:
Yes, I forgot to mention that she gets wild caught salmon as often as she likes,
Hmm did you guys test for heavy metals load? Severe memory issues are one of symptoms of mercury poisoning. Fish is one of the major sources of mercury
as of my electronic schedule suggestion - dunno why you guys up in arms about it .People used it all the time for they elderly and/or demented parents to remind them of their meds/daily tasks
They impaired person doesn't have to do anything - YOU set up it for them. All they have to do is check screen when alarm/ vibrator sounds (and you can set up different alarms for different type of messages)
Heck in japan they even build robots exactly for that kind of thing
Posted by Keebler (Member # 12673) on :
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Coltman,
I did not mean to squelch a Good idea - with my sound senstivities, a bell just went off - the alarm can be very disorienting for some. Of course, soft chimes or a hum could work.
But, also, depending on what is on the screen - I can't even look at many web pages if too colorful or moving - but that can be programmed for easy view, I guess.
For someone with major inner ear stuff - ANY movement can be disabling. Even shadows. It's amazing.
And, yes, you are VERY right about heavy metals - that goes with lyme a lot.
As long as this does not run you down too badly that you would once again "hide" from all of us for so long, your words are the bible that I frame to hang on the wall.
Thanks, Keebler.
Posted by wtl (Member # 19883) on :
And you are right that her llmd is not demanding for supplement but he does respect and acknowledge what her holistic practitioner's suggestion. So two of them work together. As a matter of fact, I have so far linked them so they talk.
Posted by Keebler (Member # 12673) on :
- wtl,
oh, my.
Remember that I have stuff from basic books and merely a fraction of the overall picture or what others here also contribute. I am far from close to pulling this all together for myself. I'm still to foggy brained to understand what I need to know about heavy metals to really get my rife going. So, what I write is just basic stuff.
Still, I hope it all helps in the puzzle. There are many others who know much more. You might look at the Success Stories:
Thank you again, Keebler. It is a lot of information from you and everyone else that will keep me for days to digest.
One day when you figure all out, you have to remember to write them down.
Good night in the magic forest!
Posted by Keebler (Member # 12673) on :
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One more. We (or I) seem to think that the brain fog will surely lift any moment. Sometimes, it can. However, it is also important to remember that beyond brain fog is brain / liver / nerve damage from lyme & co. However, healing can happen. Remember that. And, if not, focus on what really matters about life and love. Enjoying life can bring about great chemistry for healing to do its part.
I hope your wife and you can have some times that are just sort of normal - and with your daughter, too.
Sometimes all the regrets and pressure to be normal can weigh heavily. Enjoy what you can . . . now. That is good for everyone.
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Posted by MY3BOYS (Member # 17830) on :
just wanted to say, what a wonderful husband to go to that extreme to not only help but to be as understanding as possible.
i am close to the place your wife is cognitivly. my neruo-psych placed me around dementia levels and less than at something (of course i dont remember waht)
i went from being the multi-tasking queen, medical professional with great resoponsibility, mom, wife,etc and did it all.
now, can barely handle the boys, my oldest got an "F" on science grade bc I forgot to sign a paper. he left it out for me, i forgot.
i have gone to grocery store (only 1 mi. ) and overshopped or forget the dang milk/bread and get stuff i have ....try to use a list.
lists can work when someone with me. tried cupons and was in there 3 hrs, could not figure out why was sooooooo tired. crazy stuff
i feel like is more than just brain fog, but broken brain right now.
acupuncture has been helping- i have great woman who i connected with well. she does engery work and i have opened my very western medicine mind and pragmatic, analytical mind. all i know is it works.
she told me she picked up on the "fog" around brain and worked to connect r/l hemispheres. to me felt like a very weird masssage of sorts? hard to describe.
i take the dr b supplements, tons of mag. zyflamend helps, bio-identical hormones, etc.
i am one yr into tx and still have 2/3 IgM band, have gained no IgG and CD 57 same. only change is WAS 3/3 IgM. very fustrating.,
i do try to use my phone. i have palm pre. has calander to put taks in , then you can set what ever alarm ring to suit you. problem is i will hit "dismiss" and STILL forget to do the dang thing i set the calander for.
forgot to call on a ticket in the mail from one of those cameras for 2 wks...how does that happen???
is sooo fustrating, and even demeaning to the person going through it.
so, i keep trucking on the IV meds, and fight for my life and "me" back.
keep going, gain the baby steps as you get em. and would recommend using acupuncture with someone you are comfortable with . some ins. cover it...ours is private and does not. shame to pay almost $800 /mo to HAVE ins. and find out how limited it is when you get sick.
best wishes. and if you find something that really helps PLEASE PM me and let me know !!!
Posted by Haley (Member # 22008) on :
good advice Keebler.
Hey WTL. I have never been able to accept the term brain fog. when my doctor asks me - "how is the brain fog" I think, he has no idea what I am experiencing. This is brain damage not brain fog. I explain to him that I was unable to have a simple conversation with the receptionist. He looks at me perplexed. I think that the term is misleading in many of our cases. Brain fog to me would be feeling like you didn't get enough sleep.
I'll say a prayer for your loved one.
Posted by nenet (Member # 13174) on :
wtl, I will write more tomorrow but I wanted to tell you that your wife and I share very similar issues. Encephalopathy is a good descriptor, as it kind of encompasses a whole range of issues dealing with brain function.
"Brain fog" is shorthand for many to describe cognitive and memory and other issues from one end of the spectrum to the other.
Your wife is actually more functional than me, judging from the schedule you laid out, and the fact she can still drive and shop on her own. I have seizures that keep me from driving, not to mention when I am in a bad state, I can't recall what I just read on a list, or a website, or whatever, and anyone watching me might think I had OCD since I would have to keep looking down to remind myself, and then forgetting what it was when I looked up at the shelf or what-have-you. Yep, some days it is just that bad.
When I am not overdoing it, my mind does much MUCH better. You might really want to consider asking your wife not to exercise right now except for VERY gentle stretching. And also maybe refrain from driving and shopping.
It's a very hard decision to make, but resting is paramount, even resting from things non-sick people would not see as stressful or taxing. Heck, just having a child around takes energy, whether you are directly caring for them every day or not.
I'll try to [post more tomorrow - I am up now from overdoing it and having resulting insomnia and anxiety etc. I have really missed you and your family, and I miss this place too! (Also, hi to Keebler! glad to see you are back, and hope you feel better very soon.)
Posted by bettyg (Member # 6147) on :
wtl, my what an outstanding list you wrote above making things as simple as possible.
your wife is so lucky to have you!!! and everything you are trying to understand.
your english is wonderful what is your native language?
this might help you some and someone else mentioned it above ...
Distinct Pattern of Cognitive Impairment Noted in Study of Lyme Patients .....MUST READ!! EXPLAINS EVERYTHING !!
written by Marian Rissenberg PhD & Susan Chambers MD,
One more. We (or I) seem to think that the brain fog will surely lift any moment. Sometimes, it can. However, it is also important to remember that beyond brain fog is brain / liver / nerve damage from lyme & co. However, healing can happen. Remember that. And, if not, focus on what really matters about life and love. Enjoying life can bring about great chemistry for healing to do its part.
I hope your wife and you can have some times that are just sort of normal - and with your daughter, too.
Sometimes all the regrets and pressure to be normal can weigh heavily. Enjoy what you can . . . now. That is good for everyone.
-
Keebler - I appreciate the wisdom and will reminding myself through this ordeal.
Posted by wtl (Member # 19883) on :
quote:Originally posted by MY3BOYS:
i do try to use my phone. i have palm pre. has calander to put taks in , then you can set what ever alarm ring to suit you. problem is i will hit "dismiss" and STILL forget to do the dang thing i set the calander for.
I want to laugh when I read this because you hit the nail on its head, but I can't. I am so sorry.
quote:Originally posted by MY3BOYS:
best wishes. and if you find something that really helps PLEASE PM me and let me know !!!
Will definitely do and please do the same. Good luck, mom of 3 boys. You are wonderful.
Posted by wtl (Member # 19883) on :
Haley - Broken brain does sound more like what I have witnessed.
Posted by wtl (Member # 19883) on :
nenet - I just dropped you an email.
Always glad to hear from you, both here or email.
I remember our conversation about the exercise and, no, I didn't mention clear enough that she doesn't do much hard core stuff. Stretching is pretty much all she does, very rarely in fact.
And yes, you are right about shopping. She doesn't actually. She just happens to have this instant pulse to go and get herself some orange juice, things like that. I can't imagine she would be able to do the regular grocery shopping. No.
Now tell me, what are you doing at this hour of time? Posted by wtl (Member # 19883) on :
quote:Originally posted by bettyg: wtl, my what an outstanding list you wrote above making things as simple as possible.
your wife is so lucky to have you!!! and everything you are trying to understand.
Thanks, Betty.
quote:Originally posted by bettyg: your english is wonderful what is your native language?
You just made me flush. My native is Chinese (Mandarin).
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