I know the review board met on July 30th to look over the current guidelines. When can we expect the results from this meeting to be made public. Were there any LLMD's on this panel. DO we think the ISDA will actually change some of its guidelines?
[ 09-30-2009, 03:29 PM: Message edited by: purplemom ]
Posted by BC (Member # 20675) on :
They said we should know by the end of the year.
Yes, there were LLMD's. Dr. Cameron was there, Dr. Liegner, Dr. Stricker, Dr. Phillips... I can't remember who else...
I watched the entire thing, I thought the ILADS group made a convincing arguement, but it seemed
to me that the panel was more interested in what the IDSA people were saying... I don't know how
that is going to shake out, it's scary.
Posted by BC (Member # 20675) on :
No LLMD's on panel -- there were several LLMD's who presented evidence.
Personally I think ILADS won hands down.
But I also think there will be no major changes to the current guidelines.
That is just my opinion.
Bea Seibert
Posted by sutherngrl (Member # 16270) on :
I think they will make subtle changes just so they can say they made some changes. But I doubt anything that will help ppl with chronic LD. This is just my humble opinion.
Posted by BC (Member # 20675) on :
Sorry... misread the original post. No LLMD on the panel, but the ones I listed above were presenters in the hearing.
I thought ILADS won as well, but what we think and what the Panel thinks are two different issues.
It seemed in the questioning periods that they were more interested in what the IDSA said than what ILADS had to say.
I'm not being to optimistic on drastic change.
Posted by bettyg (Member # 6147) on :
dec. 31 ... hopefully we'll have answers...and i don't have my hopes up high based on past incidents.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by sutherngrl: I think they will make subtle changes just so they can say they made some changes. But I doubt anything that will help ppl with chronic LD. This is just my humble opinion. [/QB]
That pretty well sums up my thoughts! I'm not holding my breath for anything that will help us or anyone else.
Posted by Pinelady (Member # 18524) on :
Say for instance they do wiggle this and that, and that is all. Would we have a greater chance at a change if we all showed up on congress' door to protest now or later after their decision has been announced?