I am very interested in talking with others who were diagnosed near 1983. I presented with a very unusual illness at that time, was very very ill for months, was given IV tetracycline for a few weeks, and "recovered" during 1983-4. In 1984 it was confirmed by the CDC that I had had Lyme. I have never seen a Lyme dr. since but have suffered from much illness the last 10 years since my first child was born--all autoimmune related and I always seem to feel better when on antibiotics. I am just now seeking a LLMD. But equally am interested in talking with people who were treated many years ago like me but who still suffer now. Am curious what your journey is and what treatments you now find effective. Am also happy to participate in studies--anything I can do to help others and help myself. Susan
Posted by Pinelady (Member # 18524) on :
Susan glad you are seeking a LLMD. It is becoming
well know that Borrelia has to be treated like the possible latency of
syphilis. For you and your family I have seen a few
research studies being conducted in various areas
of medicine including psych treatment trials. You may be able to
find them doing a search of clinical trials of borrelia.
Posted by bettyg (Member # 6147) on :
susan,
please break up your long post into many SHORT paragraphs and double space between each one.
use the guideliens i provided you in my welcome letter; you'll get more readers and replies since majority of us are severely neuro.