it is the spot they test for fibromyalgia...almost at the same height as belly button-but over to each side
the pain feels very much like fibromyalgia pain too
but it also feels exactly like when i broke my pelvis. i can point to where it starts with one finger...but then it radiates out from that extra sore spot
i don't remember doing anything to hurt it-altho i did more movement than normal for 3 days having a yard sale
i tested ok for no osteoporosis a few yrs ago
it hurts to lie down and weight bare-bear-i don't know which bear it is...but it doesn't hurt to sit.
i can hardly walk with a cane-but went to the barn anyway hoping to get some "sitting" exercise in and she was a pain and almost bucked me off so i didn't get to ride.
now i can't sleep cuz of pain. even tho i'm exhausted.
so i'm whining here...
anyone else with this pain?
Posted by JamesNYC (Member # 15793) on :
Yes.
I know several people, including myself and my brother who have had severe pain in the pelvic girdle. The orthopedists could not explain it.
It is typical with lyme infections and gets better with treatment.
I went off abx for a month, and I too had pain when I laid down on my side.
My brother had it so bad he couldn't even sit. He was given methadone to try to deal with the pain. It didn't help.
After 2 years on doxy, his pain is all but gone.
He was told he had FMS too.
FMS is not a disease. It is ONLY an acknowledgement that someone has chronic pain. It has no known source or treatment. Basically, it's a way the Dr can duck any real diagnosis.
Good luck. I hope you feel better.
James
Posted by Pinelady (Member # 18524) on :
Females should have a gyn exam every year. This is coming from someone who had dysplasia x3. Been clear since leep and endometriosis ablation now 10 years. Very important. If it is ovary or other a gyn may be able to find it.
Posted by EyeBob (Member # 12572) on :
I'd guess that you "triggered" a trigger point and set off some inflammation, hence the pain.
I get this occassionally too.
bt
Posted by btmb03 (Member # 18394) on :
A resounding "yes" Ipkayak - I have those all over my body but esp bad in that area. I tried Myofascial release a long time ago and that made the pain worse.
Nothing but the proper treatment will help I'm afraid. Devin Starlynyl's book on Fibromyalgia was minimally helpful in learning about anatomy...the piriformis syndrome, etc.
Nerve entrapment by constricted muscles leads to horrible pain and also shoots down my leg like sciatica + the outer part of the leg (IT band) which is taut and painful.
Some find massage helpful, I don't. Heat never helped either. Stretching minimally helps but knowing where muscles/tendons/ligaments meet helps me to make sense of my pain. ie: behind the knee is a 'meeting place' for a bunch of important muscles. Same as the hip area, etc.
Occasionally when my fatigue improves so does the pain. I think treatment (for me) might be the only thing that helps. Take care and know you're not alone!!
Posted by bettyg (Member # 6147) on :
didn't read all comments, but have you had hip xrays, and do they show BONE ON BONE meaning you need a hip replacement.
reading your post was like the severe pain i had prior to being told my hip needed to go! be replaced; NO pain now ... so nice to be able to bend over to make the beds, etc. good luck to all.
Posted by lpkayak (Member # 5230) on :
thank you. i was in pretty ruff shape for about 48 hrs. i kept the phone and cane near me cuz i was one step from not being able to walk to the bathroom...thats usually my cut off for going to er.
but i took a few extra ibuprofens and realized it seemed to get a little better if i moved some.
i went to the barn again cuz i knew it wouldn't hurt once i got on and was in a sitting position. this time whe was reasonable and rode her pretty hard (for both of us)and when i got off my pain was almost gone.
i can still feel it and it does hurt lying down-but no where as bad.
betty-my hips have been xrayed in the past...and were ok. this pain is at the point of the hip...not where the joint is where it would be bone on bone. (my knees were like that)
a lymie friend said maybe the ketes aren't happy in my artificial knees so they are moving to my hips. i'm not ready for another surgery. and my hands are in line first.
as long as sitting doesn't hurt i can ride and kayak!
i hope i just keep getting better.
ps-evrytime a doc told me i had fibro i rejected it and said it didn't exist and it was just undx lyme. but now i realize...since it is accepted by ins and disability etc i might as well just go along with it and agree...sure i hurt in all those spots so i have fibro
i met another person with that poly-something-myalgia-whatever they call it. it just means pain in a bunch of joints that we don't know what caused it and they give the ppl steroids.
i know 2 others who felt good right away so they were sure the doc was right-but then they both crashed.
its time for a cure. i feel so bad running into new lymies all over that don't know they are lymies or what to do about it i can't bellieve i'm in this happy mood now...when two night s ago i was sure i would have to call the emt's to get me out of bed.
Posted by farraday (Member # 21494) on :
I am sorry to hear about such terrible hip pain. It sounds so familiar. I was on methadone 5xday and IV lidocaine 2x week for 6+years. Even morphine did not fix it completely.
After the IVabx I got much better and started walking. Just a little at first. I was amaazed that I no longer used a cane or wheelchair. The walking greatly eased the pain.
Then I got worse and worse. That is when we realized that I needed long term abx. Now I am once again dealing with the lousy pain. But I try to walk a little bit even when it hurts. And I am off the heavy duty drugs.
If you want to hear what I do for my pain you can PM me. I will be happy to send you (or anyone) my list of tricks. And I am always looking for new ones to add to my reperatoire! (Yes, that IS a hint!
I would say, however, that it is important to be careful how and how much you exercise....the wrong program can set you back weeks! It is so tempting to go crazy on a good day...and then pay for it for days or weeks.
Better to do just a little bit every day is my thought.
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