LymeNet Flash: No LD in Iowa says duck and student duck!

This is topic No LD in Iowa says duck and student duck! in forum Medical Questions at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/87376

Posted by orrn (Member # 6672) on :

I went to the doctor with my boyfriend yesterday. He had a closed head injury in an

automobile accident in 1994, so all his symptoms are from that according to all the doctors. I of

course don't believe that and feel that he has Bartonella for sure and probably LD with whatever else.

So he had been having very bad stomach problems that they have been trying to figure out.

He has lost ALOT of weight and can't eat for days sometimes. So the doctor is asking all these questions and he has a student doctor with him.

He comes to nightsweats which my boyfriend has pretty bad. He of course asks about TB, etc. and

then says it's probably from his meds because he has a diagnosis of bipolar also. I ask "what about Bartonella?"

He says "well he has no other symptoms". I about fall out of my chair. I start listing

them...severe headaches(that even all his meds don't control), rage like episodes(which brought

him to his bipolar diagnosis and many psych meds), stomach pain/digestive issues, extreme

weight loss, severe night sweats. He just looks at me with a lost look on his face. I say

something about LD and the med student looks at me and says "We don't have LD in Iowa"! I about

came out of my chair. I was so upset! I said that was probably because we have no one to treat

us here so we all go out of state for treatment. And then I tell her about the veterinarian that

has multiple dogs test positive for it every month. I guess our ticks(and other bugs) here in

Iowa only bite dogs. So then the doctor notices that my boyfriend has gained 7 pounds since his

appt 2 months ago(they forgot to weigh him last time we were there). He said "oh that's great".

So I asked my boyfriend when he started taking the resveratrol that I got for him and he said 7

weeks or so ago. The doctor said "well that's great! Does he need a refill for that

prescription? I don't see it down here his psych doctor must prescribe that one." It scares me

that people like this are taking care of people medically. I know that you can't know everything

and I don't expect doctor's too either. After all they are just people too, but to not admit

when you don't know is scary!!!! Just had to share our experience. All I can do is shake my head!

I hope everyone else is having better luck in their healthcare travels. I am trying to get him

to a LLMD. He obviously is reacting to the resveratrol, so....

Just floors me though!!!! Take care all!

orrn

Posted by coltman (Member # 21272) on :

quote:

I know that you can't know everything

and I don't expect doctor's too either. After all they are just people too, but to not admit

when you don't know is scary!!

Yeah after running in several cases of complete ignorance borderlining on incompetence I kinda gave up on trusting anything Dr say or present as authoritative opinion. Some of more "alternative" docs I did see though did impress me knowing stuff I did not expect them to know
They were pretty mainstream - I stick to allopathic practitioners for now, but were much better informed .

I also found out that ignorant docs also do not bother to read anything you present them. I tried a few times printing out research from pubmed supporting my positions and presenting it to them and I had replies lie "don't trust anything you read on the internet".

Posted by canefan17 (Member # 22149) on :

My experience with the CDC was beyond ridiculous.

I told her symptoms I was having and she said, "no you're not. You don't have ______ or you don't have _______."

"Here's 2 weeks of doxycycline. you're good to go."

Less than 5 minutes...in and out.

But honestly... I thank God to this day that she treated me that way. It was THAT visit that led me to do my own research. I found this website and eventually my LLMD. and my LLMD i 15 minutes from my house.

God is good and can work wonders in your life if you let him. (Sorry didn't mean to preach... I just get excited!)

Posted by Tincup (Member # 5829) on :

QUACK, QUACK, QUACK.

Sorry you were ducked.

Take this to the duck and tell her she is one beer short of a six-pack.

http://www.lymediseaseassociation.org/CDCCases2008.pdf

You can also take this and tell her that the CDC states for every case reported.. approximately 10 are missed.

http://www.lyme.org/resources/2000-9.htm

And then you can tell her dumb duck self...

It's hard to fly with eagles when you listen to IDSA turkeys.

[Big Grin]

Posted by orrn (Member # 6672) on :

Yeah these docs would probably just file any information I gave them in the "round" file!

When that med student said that about there being "no LD in Iowa" I about come unglued.

That is what they are teaching them... And he did write an order for a LD test. I asked what lab and

he said where ever they send labs. I said that Igenex was the best and he said he had "no

control" over what lab was used. So it's going to come back negative and he will have closed the

book...although he already has. He ordered that just to shut me up.

He thinks my boyfriend's stomach issues are from depression. Nobody will prescribe him an

antidepressant though because of all the psych meds he's on. I do agree he's depressed(and will

not be treated for it...sometimes on the verge of being suicidal), but I don't think that is what

is causing his stomach issues and weight loss. Boy once you have ANY mental health issues you

are written off! It was funny too, because as we were leaving the office my boyfriend turned and

looked at me and said "Who said I was from IA?" I about died laughing then! GOOD POINT! But was

he asked....NO! And does no one vacation or travel?...DUH!!!!!!

orrn

Posted by bettyg (Member # 6147) on :

tincup,

thanks for the 2 links; i didn't have the latest!

yes, drs. like that stink; yes been around iowa's hogs/pigs too long ..... hog wash!

sorry for your experience, but keep trying to educate. [group hug]

Posted by lou (Member # 81) on :

Tick-Borne Agents Cause Illness in Iowans - 1997 report

http://www.uhl.uiowa.edu/publications/archive/annualreport/1997/tick.xml

Article: Ticks tick best after dry, mild winter; Early arrival: Deer ticks can spread Lyme disease
2002

http://www.highbeam.com/doc/1P2-11052519.html

Deer tick pictures and links from U of Iowa

http://home.ptd.net/~insect/tickpics.html

Posted by massman (Member # 18116) on :

Quackers like soft and really soft food.
Predigested.

They are allergic to hard facts as these make their bowels loose.

And many are actual clones - just burp up what they have been told in school.

Posted by bettyg (Member # 6147) on :

lou,
thanks for the links; i added them to my iowa info; hugs [Smile]

Posted by orrn (Member # 6672) on :

Thanks alot for the links! I am gonna print them out and take them in the next time we go(in about 4 weeks).

Could anyone recommend some good articles on Bartonella for the ducks...er, I mean doctors?

Am I bitter? YES!!!! Sorry! My daughter and I have suffered too long and now him too...depressing!

Thanks again! Take care all!

orrn

Posted by Lymetoo (Member # 743) on :

"Who said I was from IA?" Classic and one to remember! Lots of people can make use of THAT line!!

Glad YOU are well informed!

I hope you can get him some help soon!

Posted by LizaLu (Member # 21483) on :

Orrn--they are just as bad here in MN. The Mayo Clinic is not all it's cracked up to be...too many ill fed ducks there as well. Good luck with your hon's diagnosis...and don't give up!

Posted by Lymetoo (Member # 743) on :

Lisa.. Mayo is the REASON "no one has Lyme in MN!" They "don't do Lyme." and most clinics are associated with them... so NO diagnoses!